Fibro "fog"
Heather, I was on neurontin (or neurotten as we nicknamed it on the PN board at Neuropathy.org) for several years and I honestly belive it's partially responsible for my memory issues still today and I haven't been on it in years.
Gabapentin also known as Neurontin usually prescribed for Epilpsy. It's most common OFF label use is Peripheral Neropathy pain. How it got to be used for Fibro???? I use warm water for my fibro. I use Topamax for my PN and Tramadol/Amytriptyline for the breakthru pain.
Neurontin needs to be tritated up to rather large doses for MOST (not all) patients to even notice an effect. And then your body has a bad habit of getting use to that dose, which develops into an upward spiral of ever increasing doses.
It's typically given to patients with Peripheral Neuropathy
MedlinePlus Drug Information: Gabapentin
In the three years that I was on Neurontin, I had all of these:
drowsiness
tiredness or weakness
dizziness
headache
shaking of a part of your body that you cannot control
double or blurred vision
unsteadiness
memory problems
diarrhea
dry mouth
constipation
weight gain
swelling of the hands, feet, ankles, or lower legs
What they don't mention is that the memory issues NEVER go away once you've had them.
Drowsiness/tiredness/weakness did not come even close to describing what I felt and most of my PN friends experienced.
When I first started and every time I tritated up in dosage, I would be absolutely and completely useless to my family. I started at 1800 mgs (felt no relief) and got to 2100 mgs before feeling a difference. By the time I finished I was taking 4800 mgs a day. Some people I know were taking 7000 mgs with no relief.
I got off the neurontin finally in 2006 after coming down to 300 mgs between 2003 and 2006.
I was at 195 when I started neurontine, and hit my highest weight of 250 while on it.
PLEASE be careful taking that drug. Now in fairness, my husband is on 600 mgs right now and is not experiencing any of the issues I did. It hits different people different ways.
Liz
Gabapentin also known as Neurontin usually prescribed for Epilpsy. It's most common OFF label use is Peripheral Neropathy pain. How it got to be used for Fibro???? I use warm water for my fibro. I use Topamax for my PN and Tramadol/Amytriptyline for the breakthru pain.
Neurontin needs to be tritated up to rather large doses for MOST (not all) patients to even notice an effect. And then your body has a bad habit of getting use to that dose, which develops into an upward spiral of ever increasing doses.
It's typically given to patients with Peripheral Neuropathy
MedlinePlus Drug Information: Gabapentin
In the three years that I was on Neurontin, I had all of these:
drowsiness
tiredness or weakness
dizziness
headache
shaking of a part of your body that you cannot control
double or blurred vision
unsteadiness
memory problems
diarrhea
dry mouth
constipation
weight gain
swelling of the hands, feet, ankles, or lower legs
What they don't mention is that the memory issues NEVER go away once you've had them.
Drowsiness/tiredness/weakness did not come even close to describing what I felt and most of my PN friends experienced.
When I first started and every time I tritated up in dosage, I would be absolutely and completely useless to my family. I started at 1800 mgs (felt no relief) and got to 2100 mgs before feeling a difference. By the time I finished I was taking 4800 mgs a day. Some people I know were taking 7000 mgs with no relief.
I got off the neurontin finally in 2006 after coming down to 300 mgs between 2003 and 2006.
I was at 195 when I started neurontine, and hit my highest weight of 250 while on it.
PLEASE be careful taking that drug. Now in fairness, my husband is on 600 mgs right now and is not experiencing any of the issues I did. It hits different people different ways.
Liz
Duodenal Switch (Lap) 01-24-11 | Surgeon: Stephen Boyce | High weight: 250 in 2002 | Surgery weight: 203 | Lowest weight: 121 | Current weight: 135 | Goal weight: 135
. It seems when I left the house I left in my car. I took the bus home. Where the hell did I put my car? 
I go to the Fibromyalgiaa and fatugue center in PA, started treatment last month and found I have started to see a difference in everything even the fog we endure.
I have had so much pain over the years but the fibro-fog upsets me more. I finished my bachlors and Idropped a letter grade in my class averages from when I got my ASSociates because it was harder to think and remember.
I get a word "stuck" and the word that wants to come out of my mouth instead has the same first letter and I know it is not the correct one. It has even happened when I say my prayers at times.
good luck
battlyn
I have had so much pain over the years but the fibro-fog upsets me more. I finished my bachlors and Idropped a letter grade in my class averages from when I got my ASSociates because it was harder to think and remember.
I get a word "stuck" and the word that wants to come out of my mouth instead has the same first letter and I know it is not the correct one. It has even happened when I say my prayers at times.
good luck
battlyn
I have fibro fog too, but it is complicated with the cognitive issues I have from some other health issues. I was trying to read a recipe today and it was like trying to read a scientific thesis or something. Nothing about it was making sense to me and it was a simple recipe. I read a lot less now than I used to; I used to be able to have several books going at the same time. I can't do that any longer. Reducing stress, turning off sound, etc. helps me. Sound really complicates my issues.
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