Fibro "fog"

jlinaweaver
on 7/22/10 12:16 am - Philadelphia, PA
Does anybody else have it and how do you deal with it?

I find that out of all of my symptoms, this is by far the worst for me. I've always been smart, quick learning, efficient and able to do almost anything. Lately, my fibro "fog" has been so bad that I can't concentrate on anything for long. I'll be doing my job one second and the next thing I know, I've completely "lost" 15 minutes. I always prided myself on my great memory, but I find that now, even that seems to be slipping a bit.

I'm 31, I take 150mg Effexor and 300mg Lyrica every day. I also have Flexeril for muscle pain, but since my RNY, it knocks me out and I can only use it at night.

Does anybody have any suggestions?
Our greatest glory is not in never falling but in rising every time we fall.
Hislady
on 7/22/10 6:42 am - Vancouver, WA
I know what you mean it's very frustrating. I find myself making lots of notes and lists to help remember things. Otherwise I don't really have any help for you. I'm pushing 60 so I can always claim old age.   Wish you the best and gentle hugs.
southernlady5464
on 7/22/10 12:39 pm
Not much help but I do understand, suffer from it myself. In fact, it's partially responsible for me being on SSDI.

Just take care of yourself and do what you can to minimize the memory lapses with notepads, stickies and a smartphone or pda for keeping track of things.

Now, I will tell you that I know I have fibro fog, known it for many years. Well, I went thru back surgery in March 2006...apparently my fog caused issues cause I was way out of it so badly the nursing staff was concerned and called in the mental health people. My dh knew what was going on and knew as soon as I woke up enough, I'd be fine.

Well, the following day the mental health doc who had checked on me came back. I mentioned fibro fog...he told me in no uncertain terms there wasn't any such animal and he treated fibro patients. I asked how he knew there wasn't any such beast if he didn't have fibro himself. He didn't like my smart ass answer but it convinced him I wasn't losing it.

Once I got home and was able to get back online, I found several medical journals who that mentioned fibro fog, and on my next visit to the doctor, I stopped by the jerk's office and left the articles with his staff.

So much for telling ME it didn't exist. I knew it was real.

Liz

Duodenal Switch (Lap) 01-24-11 | Surgeon: Stephen Boyce | High weight: 250 in 2002 | Surgery weight: 203 | Lowest weight: 121 | Current weight: 135 | Goal weight: 135






   

Hislady
on 7/22/10 2:52 pm - Vancouver, WA
Way to go Liz, you let 'em have it! How dare he imply we're crazy because we have "the fog". I soooo wish docs had to live with this nightmare for a few months. I'll bet it would open a few eyes!
Susan21
on 8/15/10 9:50 am
Love it Liz!!! Someone has to set these "God's gift to the world" doctors straight!
    
MainePam
on 7/23/10 12:07 am - Bucksport, ME
If more medial people had Fibro there would be more studies and researh on it .....
Those of us that have it KNOW there is fibro fog. My theory is our brains get so over whelmed with the pain they have to shut down a bit...
I too do notes in fact its become routine for me to constantly write a note.
Keep us posted
Pam
TinkL *.
on 7/27/10 2:01 am - Columbia, SC


I keep a small notebook with me and write down everything.  I am still attempting to hold onto my job.   I would say I am completely like you.  Missing a chunk of time - or bringing up an application and staring at it wondering why on earth I wanted that one.  Then I look at my notes and can tell why I went there.

It's hard as hell for me in a conversation to even speak a whole sentence.   I will start it, struggle for a word that is the reason I'm having this conversation and then find it and go on my way.
It's almost like stuttering.   It must be frustrating for my fellow workers.

I'm hoping to convince them to let me work at home soon.   They won't know if I am writing emails, or IM's to them that I pause and find the word.

I'm so supremely unhappy about this I've even contemplated suicide lately.  Down to the very last detail. 

My DH is now begging me to go to a psych.   I am getting off Lyrica as I feel like it is the culprit.   I'm in for another heartbreak if no Lyrica doesn't help the situation much.

Tink

 

MILLERSDAUGHTER
on 9/15/10 2:16 am - Lewisport, KY
VSG on 04/07/11 with
Your suicidal thoughts concern me. 

I understand your pain (emotional and physical). 

Please see a therapist.

In the meantime, please talk to your doctor and see about Cymbalta.  Although Cymbalta is an antidepressant, it helps diabetic neuropathy and fibro.  I have been on it for years and it is the only thing that keeps me able to keep going.

The first time I saw my doc with fibro symptoms, I thought I was going crazy and or had some terminal disease.  I actually thought I had bone cancer that had mets to the brain.  He listed to me tell my story, cry, and blubber.  He told me that he thought I had fibro but said "Are you depressed?"

My answer was "hell yes I am depressed.  You would be too if you hurt like crazy all the time and hoped you were dying so that it would end!"

That was before Cymbalta came out.  He tried me on Paxil, Neurontin, Flexeril and Fioricet.  I was zoned but still in pain.  Then he tried Effexor XR.  I was able to take it and not take the other meds but about once  - twice a month for bad flares.  Then Cymbalta came out...........heaven.  I take my Cymbalta daily and on bad days, I take two Aleve.  Usually that takes care of it.  I rarely (once every couple of months for 1 -2 days at a time)  take the Neurontin, Flexeril or Fioricet.

My brain fog seems better on the Cymbalta and Aleve too.
Heather_R
on 7/28/10 10:16 am - Hattiesburg, MS
Hey

My name is Heather and I am 19 years old. I have three children and they are ranging from 4 years old down to 15 months old. I have had problems now every since I was preg. with my last baby so it got so bad I finally went to the doc. He told me I had FMS and put me on Neurontin and I take 900mg a day and this med. is just like Lyrica. I also take Prozac 20mg a day every since I started this new med with the Prozac I am having bad problems with my memory. I mean I can not even remember where I put my keys a lot of the time. I really not have any help for you either because I am having the same problem you are not along. Another one of my docs said it might be my med. just to tell you take. So no I really do not have any I am so sorry if anyone lets you know any please tell me too.

Thanks
Heather
Susan21
on 8/15/10 9:57 am, edited 8/15/10 9:59 am
Heather...please talk to your doctor about Prozac.  I loved that drug at first and then I was super happy on Prozac...used to even say, "Prozac in the morning...it's a beautiful thing!" Next thing that happened though is that I found myself kind of zoning, not caring what happened...like it didn't matter what was going on around me...not good with little kids!!!

As far as the keys, please put a dish on the counter where you always put your keys or a peg board on the wall where you always hang them.  You will have to do little things like this in order to keep from losing your mind on a daily basis, besides if you put them up high enough the children will not "help" you by losing them. (Losing keys is normal...even my 16 yr old loses the keys sometimes!)
    
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