fibromyalgia so much pain

lucybarreto
on 5/14/10 2:46 am
I have fibromyalgia and every since i had surgery seems like i feel worse, has anyone expierenced this and what do you do for it please help, Have so much pain.
TinkL *.
on 5/14/10 3:22 am - Columbia, SC

I'd had pain pre op.  Nothing that was diagnosed as fibromyalgia.

3.5 years post op  I have had more flare ups of pain, taken more vicodin, etc.

This year I was finally dx'd with fibro.  The pain is intense and hard to control.  I will be fine one minute and doubled over in pain the next.  I have finally been on meds for 60 days and am beginning to feel for most of the day like I want to live again.

Good luck.

60 mg Cymbalta  2x day

300 mg Lyrica  2x day

Vicodin as needed

amystone
on 5/15/10 12:26 pm

I am already a heavy sweater, in fact, I have been diagnosed with hyperhidrosis, and one of the side effects of Lyrica and Cymbalta is excessive sweating. I have been taking Savella for a little over a week, and the past two days, I have been sweating so bad, even in the AC, that I have to peel my clothes off. Have you had this side effect?

Thanks,
~Amy~
TinkL *.
on 5/18/10 12:09 am - Columbia, SC
On May 15, 2010 at 7:26 PM Pacific Time, amystone wrote:

I am already a heavy sweater, in fact, I have been diagnosed with hyperhidrosis, and one of the side effects of Lyrica and Cymbalta is excessive sweating. I have been taking Savella for a little over a week, and the past two days, I have been sweating so bad, even in the AC, that I have to peel my clothes off. Have you had this side effect?

Thanks,
~Amy~
So that is where the excessive sweating comes from.  I'm on Cymbalta and Lyrica and this has only happened to me twice in the last 60 days.    Most of the time I am so cold I can't get enough layers on.

It's always something isn't it?   I guess we all just have to figure out which symptom we want  to control:  Pain, sleeplessness, pain, excessive sweating, pain,  weight gain, pain.

Why does life have to be this tough? 

Candy
hartmac
on 5/15/10 2:27 pm - AR
Tink!  A familiar face on here!!!  I was just dx with fibro and I am so full of questions - mostly that I don't even know.  Just wanted to say hello.
TinkL *.
on 5/16/10 10:43 pm - Columbia, SC
On May 15, 2010 at 9:27 PM Pacific Time, hartmac wrote:
Tink!  A familiar face on here!!!  I was just dx with fibro and I am so full of questions - mostly that I don't even know.  Just wanted to say hello.

I'm glad you were finally dx'd for all the issues you have had, but sorry that it is fibro. 

I'll be glad to answer any questions I know the answer to and I've gotten some great information from the folks here on meds.

We also have some questions about absorption rates of the meds based on our surgeries.

Welcome aboar Margie.

 

Candy

hartmac
on 5/17/10 1:57 am - AR
I was pretty certain with all the tests and research that it was fibro.  I just didn't want to hear it.  I'm in a lot of pain if I'm not taking a pain med and even with the one I'm on I'm not completely pain free.  I know it's a trail and error thing.  I just want to be as pain free as possible when I go home to NC to see my family.  I want it to be a wonderful trip since I haven't been there in two years. 

Thanks for the welcome.
Margie
TinkL *.
on 5/17/10 2:38 am - Columbia, SC

As you will learn while you are reading here, all of our conditions respond to a different medication regime.

I have responded well to Cymbalta 60 mg 2 x day
Lyrica 300mg 2x day.

Vicodin as needed - usually with wet weather, or very humid weather or very cold temperatures.

I am currently also dealing with thyroid numbers way too high and  no indication that there is anything wrong with my thyroid.  So I will be having hormone tests, thyroid nuclear scans and MRI on my pituitary gland.    When all is said and done, my meds may very well change.

Is all this because of the RNY?   I don't know yet, however, the worst symptoms came after the RNY.  The thyroid was underactive and medicated pre op and post op this last year I have come off the synthroid completely and still running too high on my blood tests.

Good luck and don't get discouraged Margie.  It takes about 6 weeks to see any real relief.

Candy

hartmac
on 5/17/10 11:31 pm - AR
Thanks Candy.  I am just dealing with it day to day.  Last night was a bad and painful night.  Today, I had to get up really early to take my son to school for a field trip.  I'm still hurting and also very sleepy.  It will get better!
Margie
spritesdelights
on 7/5/10 3:39 pm
I know my pain has become debilitating since I had my surgery. They keep changing my medications. I am currently on:

Dilaudid 2mg 5x/day
Neurontin 100mg 3x/day
Cymbalta 30mg 1x/day

I have a few other medications too, but those are for other things. I've only been on these meds for a couple of weeks now (it's a new change in meds) so we'll see how it goes.

I'm not sleeping at night, just during the day and they have tried all kinds of sleeping aids and nothing helps. I'm currently on medical leave and have been for 2 months now. It's crazy. I just want to feel normal and not be in pain. It would be nice. Till then I'll just deal with it like we all do.
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