I HURT

 Ok here goes, I HURT. I cry and scream and bawl my eyes out all day. I had RNY 3 yrs ago. I am 21 years old.  I had a baby last year.  I got diagnosed with fibromyalgia a few months before i got pregnant . Before i got pregnant i was taking lyrica twice a day and 100mg Ultram twice a day. During my pregnancy i took Vicodin 5mg 3 times a day.  After my baby was born my nerve pain and fibro have gotten worse and now i think i suffer from arthritis. I do see a pain management DR but i'm assuming my age has a lot to do with how they treat me. I am not looking for drugs i am just in a crap load of pain. I sit and cry all day. Someone else takes care of my baby. Currently i take Darvocet N100 two times a day and 100mg ultram two times a day. They don't work anymore i am in a lot of pain. My pain dr keeps telling me to exercise but i am having a hard time with my daily functions even walking far and bathing seem to take a whole lot out of me. Currently i can't work.  My meds wear off the little that they do help within two hours of taking them.  i think with my age i can't get help. I am not trying to get drugs i am in a lot of pain and will take whatever they give me as long as it will work. My surgeon isn't in the picture so he can't help i believe he has retired. Any advice??? I'm in pain and i want to have a somewhat normal life again. 

I am new to this board.  I plan on posting my intro & some questions later tonight when I have sometime.

I just wanted to say that I am so sorry you are in so much pain.  I know that does not help you.  But, I want you to know that even though we are probably all in pain daily on this forum, you sound like you are going through an especially bad pain flare.  Those are terrible!

I too take darvocett n-100, 1-4 times per day.  I can honestly say that on a bad day it just takes the edge off.  I do not even have an official diagnosis yet.  But, I have had chronic pain for the past 15 years with the fibro like symptoms really kicking in big time this January 2010.

The reason I am telling you this is because I have done a lot of research & pain pills are only one aspect of coping with fibro.  I think (I am no expert) given your post you need to be on something besides pain pills.  There are different options out there but I can't imagine going through what you are with out being on anti-depressants.  I can at least say I am not clinically depressed.  I know what that feels like & it sucks!

I have to cut this short. again I am sorry you hurt so much! :-(

I will write more tonight when I have time.

Be kind to yourself!

Gina is right, there are drugs specifically for fibro. Sometimes combining them with pain meds helps both work better. Ask your doc about Lyrica, Cymbalta and Savella. There are lots of other drugs in the anti depressant and relaxation areas that also help the fibro. If the pain doc isn't helping you might try a rheumatologist they also treat fibro. I wish you the best, it's just a crappy disease to deal with!

I'm so sorry you are having that pain.    I too had pain in Jan 2010.  A particulary huge and still happening bit of pain.

I have been having bouts of pain for I guess most of my  life.   Every doctor said take aspirin, advil, tylenol.   Yeah, whatever.   They never touched it. 

So 5 years ago, I blew out my knee.  My orthopedic doc said..1.  Come down from the 3rd floor

2. Lose weight.  3.  Here is some vicodin.

Another year went by, I was now walking with a cane, when I ventured beyond work and home.  I cried, I ranted, I raved about the pain.  Deaf ears, here is some more vicodin.

The winter was cold.  I don't do well with cold on a good day.  I went to my PCP.  She started pressing on different parts of my body.  Lo and behold I had all but two of the pressure points for fibro.  Then the doc says, I have suspected this for awhile, but when you say you are fine, I can't make a diagnosis.  Now it is fibro.   and bad.

She started me on a low dose of Cymbalta 30 mg once a day and Lyrica 75 mg at night.  Then when it seemed to help me she boosted it to 60 mg twice a day and Lyrica 300 mg twice a day.  I must say that the first couple of weeks on the Lyrica in the daytime was a little miserable. 

So I take my drugs, they seem to help.  In the meantime I take my vicodin when I need a little boost in pain reliever.

It's been almost 60 days now.  I have good days and bad.   Now my thyroid is giving me difficulties, my tsh is sky high and the ultrasound on my thyroid says there is nothing wrong with it.   So I go next week for MRI on my pituitary gland and a thyroid scan that involves 3 scans over the period of two days with pills to take.   

Get help, hon.  It may be post partum depression that is making it worse.  The doc told me that not sleeping at night seems to trigger more painful flareups.    I believe it.  When  I don't sleep well, I have a terrible day, but when I sleep well, the pain is almost insignificant.

My husband of 45 years continues to be amazed that I will be fine one minute and the next be wracked in pain and need my narcotics.

Some people, it takes 15 years to do a lot of tests ruling out other things before they diagnose fibro and get you some real help.  For me it was 12 years.

Good luck hon.

Candy

I take Melatonin its an all natural supplement. i take that to help me sleep. I SOB the rest of the day. The doctors don;t believe me for some reason. I really do hurt though. I have been on these medications for a whole year before i got pregnant and now for the last 6 months so i think they just don't work anymore. Also, i have tried cymbalta and it gave me terrible migraines. The Lyrica seems to bug my stomach. I tried all of the homeopathic stuff like tumeric and curamin and they made my stomach so raw i am still in pain and yes i took them with food. I am going .    I went to a therapist and the ER to talk to someone and they didn't offer much support and didn't give me a script for a therapist because they said its not necessary. ( i got public aid)  .   I am not sure what else to try.  My pain dr told me to keep taking the stuff that doesn't do a damn thing for me. HELP!!!!!!!!!!!!!

You are right about the excersise. I think that some good cardi, yoga, or pilates helps me the most. I do receive messages sometimes which is really painful the first couple of times, but they really do help after that. I also refuse to let fibro get me down. I have had it for about 10 years now and am very curious about the disease. I wish there were more studies on this. They believe that magnesium may be a factor.

Please read my post on Fibro it my help. I am sorry your hurting I as most emphasize with you. But you have to get a hold of your depression and try to work on meds some time switching them around until you find what helps your body some. Just know the pain it never goes away you have good days and bad, and you just enjoy the good deal with the bad and tell your self your to strong to let it knock you down. as I did mention the pool with warm water is great I went to YMCA and hung out with seniors and took their class. I felt good. I don't live near one now so I wrap warm towels on me when I hurt alot. Keep socks on and find things to do in the reclyner(crafts) on my bad days. Email any time you want to talk [email protected] Feel better Marylou

cant help u at all, im in the same boat , as i sit here dying in pain, im watching this post to see what all advice u get ....good luck! im sorry