Neurontin-anyone taken it?

choctaw4ever
on 6/2/10 5:47 pm, edited 6/2/10 5:48 pm - Spokane Valley, WA
I have had Fibro since 1998 and have been on it all neurontin did not work I could not get past 3 pills a day with out headaches. Lyrica is bad news yes you gain i took it for 3 or 4 years was ok all of a sudden I really got sick nerves made arms move with out my moving them dropping things and I gained 40lbs in one month. It has side affects they don't list. BEWARE!! a new one is out called savella, I would not reccomend it I got so many side affects from it I got off it right a way. I am trying to get off Cymbalta I am beginning to think all the pills make me worse. I take baclafin for muscles works great better than flexoril. They always start you off with that, why I have no clue cheap med I guess. I take Clonazapin for mood problems and it helps with depression and sleep. Mirapex works great if you get restless legs with it as well. Trazadone is an old med too. Sleep is one of those things one goes up and down with. Sometimes I do and sometimes i don't so I sleep when I am tired. My body hurts most times but I have learned to live with it exercise in the pool is wonderful if water is warm. I actually am thinking of getting off most meds take vitamins and getting a marijuanna card for pain. I am not a smoker of it but I have heard it helps better than all this pills stuff. Vicodin works some but I don't want addiction and it can make you itch after a while. Ultram does not work and well not alot does. I do know laying in bed makes you worse. try to get through pain by walking a little. standing is bad and falling seems to come with the territory so be careful. Muscle spasams are the worse. wear socks all the time for feet and don;' go for too cold or too hot. and on good days watch the road warrior syndrom. You pay three days or more for it. But we all do it" feel good go nuts" and then dive bomb into bed. Hope this helps and ask me what ever I have had it for a long time, and those dumb commercials make me mad, I have not worked since 1998 and never will again.
MargaretHM
on 6/9/10 6:53 am - Lebanon, OH
I take 1200 mg of neurontin a day.  It helps with pain and muscle jerks.  I have had no side effects that I am aware of.  I didn't know that it causes carb craving.
Margaret    
southernlady5464
on 6/13/10 7:20 am
Gabapentin also known as Neurontin usually prescribed for Epilpsy. It's most common OFF label use is Peripheral Neropathy pain. How it got to be used for Fibro???? I use warm water for my fibro. I use Topamax for my PN and Tramadol/Amytriptyline for the breakthru pain.

Neurontin needs to be tritated up to rather large doses for MOST (not all) patients to even notice an effect. And then your body has a bad habit of getting use to that dose, which develops into an upward spiral of ever increasing doses.

It's typically given to patients with Peripheral Neuropathy

MedlinePlus Drug Information: Gabapentin

In the three years that I was on Neurontin, I had all of these:
drowsiness
tiredness or weakness
dizziness
headache
shaking of a part of your body that you cannot control
double or blurred vision
unsteadiness
memory problems
diarrhea
dry mouth
constipation
weight gain
swelling of the hands, feet, ankles, or lower legs

What they don't mention is that the memory issues NEVER go away once you've had them.

Drowsiness/tiredness/weakness did not come even close to describing what I felt and most of my PN friends experienced.

When I first started and every time I tritated up in dosage, I would be absolutely and completely useless to my family. I started at 1800 mgs (felt no relief) and got to 2100 mgs before feeling a difference. By the time I finished I was taking 4800 mgs a day. Some people I know were taking 7000 mgs with no relief.

I got off the neurontin finally in 2006 after coming down to 300 mgs between 2003 and 2006.

I was at 195 when I started neurontine, and hit my highest weight of 250 while on it.

Liz

Duodenal Switch (Lap) 01-24-11 | Surgeon: Stephen Boyce | High weight: 250 in 2002 | Surgery weight: 203 | Lowest weight: 121 | Current weight: 135 | Goal weight: 135






   

granmmy54
on 6/16/10 7:57 am - Bangor, PA

 I also have Fibro for the last 10 years or so.  I have taken sooooo many medications that I can't remember all of them.  I do take neurontin and have found some relief from it.  I do think that my memory has gotten really bad and have gained weight over the last 2 years.  I now still take it, but I'm down 38lbs because of having lab band surgery.  I agree with everyone's response about each person is different, that is why we have soooooooo many different medications.  I also take Savella which I think is working okay. 

I do hope you can find your niche in the world of medi's for your fibro.  May many blessings come your way.

Eileen (Granmmy54)

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