massage anyone?

Tangerine4
on 3/29/10 2:21 am - Rochester, NY
Okay, does anyone with Fibro see a massage therapist?  I went to one last Thursday, today is Monday and I still ache.  I felt fine when she was doing it and even a little relief, I drank all the water that she told me to drink when she was done, and about an hour later I started to ache all over, it's been almost 4 days and I am still achy and in pain.

I just started Neurotin about two weeks ago and was begining to feel some relief and now I feel as though I am back to square one and I'm not sure if it's from the massage or not.

also, I was interested in getting a vibrating, heat, massage chair but now I'm reconsidering that also.

Anyone with any insight in to massage...do or don't....I wouldn't love to hear your experiences with it.

thanks a bunch,
Jennifer Louise
236/112/goal 125
lilredturtle
on 3/29/10 7:46 am
I personally cannot tolerate massage's... I did get a jacuzzi prescribed for me about 8 yrs ago sometimes I can not even tolerate the water moving in the spa... I did recently try acupuncture that was bad the first time out I thought it was more me being on the massage for a long time for the acupuncture that did me in more than the needles. Good luck and I hope you feel better too
grannymedic1
on 3/29/10 8:54 am - Lake Odessa, MI
Revision on 08/21/12
I can't tolerate massage, either. Also, I had p.t. for my arthritis (spinal) that was fine, except for the guy who runs the place managed to hit every single trigger point during his first assessment. I dang near died!
Tangerine4
on 3/29/10 9:21 am - Rochester, NY
lilredturtle,
Can you please tell me how you went about getting a jacuzzi prescribed for you? The one thing that feels awesome for me is a really hot bath.  My husband and I have been researching hot tubs but there is just no way to afford one right now.  We were wondering if this was a possibility, insurance paying for some of it, or even being able to deduct as a medical expense.  Any info would be greatly appreciated.
Thanks,
Jennifer
Jennifer Louise
236/112/goal 125
Hislady
on 3/29/10 9:25 am - Vancouver, WA
Sounds like she was doing a massage to rid your body of toxins which really doesn't help fibro. In that case it can make you feel cruddy because she's releasing the toxins into your system. I've had some massage but it's so expensive I don't do it regular. It can be helpful to relax the muscles but you have to make sure they are gentle about it. It also depends on the massuese, not all are experienced with fibro. In my opinion the chair would be relaxing but probably wouldn't do anything for the fibro itself. I would give the neurontin a try and if that doesn't help there is also lyrica, cymbalta and savella for fibro treatment too.
Tangerine4
on 3/29/10 11:06 pm - Rochester, NY
Thanks Hislady,  I am currently on Neurontin, 900mgs a night, but during the day I ache too and haven't been given anything for that pain.  I cannot take the neurontin during the day, as even one capsule knocks me out, I have 4 kids and cannot go through the day like that.

What do you know about something that would keep the pain at bay but not make me tired.  Another thing I am doing constantly is taking a hot bath, that is the best thing so far.
Jennifer Louise
236/112/goal 125
Hislady
on 3/31/10 2:58 pm - Vancouver, WA
I've heard good things about all 3 of the drugs I mentioned above. Lyrica can cause weight gain in some so all you can do is try it and see if it affects you. The only sure fire pain meds I take are a time release morphine and low dose oxycodone 4x a day, but most docs hesitate to prescribe narcotics. You usually have better luck getting those if you go to an actual pain clinic. I take cymbalta besides the narcotics which helps, but the pain never completely goes away. I agree there's nothing like a nice hot bath. I also turn my electric blanket on even in the summer to keep my muscles warm and looser at night. Wish you the best and if I can answer any questions for you just holler!
Pattis70
on 3/30/10 2:03 pm
I tried massage and it was painful pretty much like you are feeling. Plus it just plain and simple hurt me.
BTW Hello I suffer from fms and back problems.
But I hope you feel as best as you can asap.
Patti            
Vickie M.
on 4/9/10 3:52 pm - Olathe, KS
The Hot Baths feel good ....but I have so much pain in my legs, feet , back and arms that I have a very hard time getting in and out of the tub.  I would give anything for a Hot Tub.  I put in a Jaccuzi bath tub at my old house.  It felt wonderful...but had the same problem getting in and out.  I use multiple heating pads.  I wear them out...I use them so much.
  Vickie        
jenner76
on 5/11/10 2:27 pm - MI
I was diagnosed two years ago from my rheumatolotist and Fibro is so frustrating to deal with in general.  I see a pain clinic doctor because I also have degenerative disc disease that I get epidural injections for that seem to help for about seven to eight weeks at a time at least for the majority of the leg pain but not usually the all over pain.  I also have interstitial cystitis which in some studies have been linked to having fibro as well so the reason I am telling you this ....lol is to give you a history and that at 34 dealing with chronic pain just flat out sucks!!!  I was prescribed tramadol which really helped take the edge of the pain during the day and didn't add to the groggy feeling the neurontin would give me.  I personally can't take neurontin.  I see a chiropractor and massage therapist that is covered under my insurance every week and I absoloutely love her!!!  I have been to at least twenty different therapists over the years and she is by far the best and specializes in fibro.  I am not quite sure what it is but I walk away feeling really great and there are only a couple of occasions where I felt slightly bruised and that could just be the soft tissue that gets extra toxin or edema build up that is a pattern for fibro pts.  I also live with a heating blanket and heating pad and seem to find relief with heat vs. cold.  That would be nice if you could get the hot tub approved.  I wish you the best of luck.  I have children too and was just taken off work two months ago and it is frustrating having to deal with all of this and more and after having lapband two years ago I thought I would have a new lease on life and become this avid work out person but when you are in chronic pain all day, everyday that for me is the furthest thing from my mind.  I wish you the best of luck to a pain free life!!!

Best regards,
Jennifer
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