all these meds...and work?

TinkL *.
on 5/3/10 3:43 am - Columbia, SC

That is the dilemma I find myself in now.   I can barely concentrate, when a question is asked, it's like climbing out of of a volcano to figure out what they just said.

I was the one that everyone came to if they wanted to know what went on 6 months ago.   Now I can't remember 6 minutes ago.

I'm sure I'm still getting used to the meds, but I hate this and fear that I will become the problem, not the solution.

Candy

dorthe H.
on 5/3/10 9:30 am - farmington, MN
Hi Candy:
   I totally empathize.  I looked back at when that was posted and found that, even though I had spoken with my boss and explained I was having an issue - which she told me she understood and was glad I was working out with the dr., she called in HR for a 'discussion'.  I've been on FMLA since three days after I posted for advice.
   They're still trying to hone in on what I will need to take daily.  In addition to the fibro, I'm dealing with some weight regain, anxiety, depression, pain from foot surgery.  It seems the list goes on and on.  Suffice it to say that I hope to return to work this month, but we shall see what happens.
   Hang in there Candy.  It's so frustrating but if you keep working on it, it can get better.  There are many, many meds to be tried and they just need to find the correct ones with the right doses.
Good luck
hugs
dorthe
DORTHE
     AGING IS INEVITABLE
              GROWING UP IS OPTIONAL!   
TinkL *.
on 5/3/10 10:44 pm - Columbia, SC

Thanks for the encouraging words.   I have been studiously NOT talking to the boss, except to say I had been recently diagnosed and I would let her know if I am having any issues.    I then proceed to work extra hours to get the job done.  

It's draining to say the least.   I'm thinking I might ask to try 150mg morning and noon with 300 at night then maybe I won't be so sleepy in the day and sleep better at night..

I am going to have to get something else for sleeping.  At first the Lyrica was doing well, but now - meh - not so much.

As the fibro turns will return after this brief work time.

 

Candy

dd2010
on 5/11/10 4:09 am - Canada
hi I have had Fibroyalgia since 1985 . Went I was told what was causeing all the pain, & it had just started,that it would get worse. I was not going to give up anything. Back then alot off Dr. did not believe in Fibro. So there was not much out there for pain relief. I got so bad in 1999 I had to close my shop and retire at the age of 39. The best pain reliefs for me is heat, I go to the tanning beds in the winter. The cold is the worst time for me. I was on a lot of pills and yes I felt like I was stone.
Try celebrex I just stared them and I take them in the morning, they do not give you a foggy head, my memory has came back and I can walk a little more & now ride a bike . The lyrica help me sleep at night ,which is something I do not do. You can take both,but I got a rash from the Lyrica.
I hope this helps you                       

                                              DD

onikenbai
on 10/3/10 4:25 pm - Canada
Having had fibro since I was a child, I have never had the option not to work.  No matter how much pain I will ever be in, or how much fibro fog I have, I always have to suck it up and trudge to work or end up homeless.  I've managed to make it work but it hasn't been easy.  I take advantage of the somewhat flexible hours my workplace has.  Some days I can barely make the 8 hours and I end up leaving a little shy, while some days I manage to power through and go a full 10-11 hours, which is what I really should be working.  I have also been known to fall asleep in my cube (unintentionally). As long as I don't charge the client for it or start snoring, most people just leave me there.

Definitely take your lunch break every day.  Nap, take a walk, go on a mental vacation, whatever.  Just don't work through lunch as you will burn out by 2pm.  Personally, the hours between 2-4:30 are my worst.  I push my lunch into that window so I spend the least amount of time working during that period.  I perk up around dinner so I try to do most of my work then.  I save my dumbest tasks like opening mail for the time when I'm least likely to have quality thoughts.

I really find that if I have sugar or carbs for lunch my energy plummets in the afternoon.  Steer clear from the evil loop of eating carbs to give you energy to keep you awake, causing more sleepiness.  That one could just be me though.

In the end, it takes me about 50hrs a week to do a 40hr work week.  Yes it sucks rocks but what choice do we have when there are bills to be paid?
    
dorthe H.
on 10/3/10 10:10 pm - farmington, MN
good morning:  i had totally forgotten i'd posted here - it's been a long, long six months.  we are still working on meds - trying to find a dosage that works for me.  allowing less brain fog and pain control at the same time is a challenge.  i'll say again that i hope to be back to work this month.  but i've been thinking that since march and it still hasn't happened.
right now i'm on max dosage of lyrica and cymbalta, along with neurontin, flexeril, and tylenol.  my memory is still iffy but for the most part the pain is controlled.
   i think you're right about the afternoon hours.  that's the time i normally find myself napping if at all possible.  i also think you're correct about carbs.  i still avoid sugar for the most part but carbs really do me in.  my energy plummets, too, so i'm working on a healthier version of lunch. 
   sounds as though you've got a handle on what works for you, as best you can.  wish i could offer some wisdom or help but i have nothing.  guess we'll all struggle 'together'.  take care
DORTHE
     AGING IS INEVITABLE
              GROWING UP IS OPTIONAL!   
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