I'm a little ticked off!

I was in the chat room.  We were talking about pain meds, someone asked why I was on them.  I told them CFIDS/FM.  One lovely person said she had MS.  She said it was more painful the CFIDS/FM and that she would be in a wheelchair sooner.  OH REALLY?  She had MS for a whole year. 

I didn't tell her than I have already been in a wheelchair and had been ill for 14 1/2 years.  At least MS has a clearer prognosis and treatment plan.

I don't mean to suggest, for a second, that MS isn't debilitating and awful.  But, what a put down!

Of course, this is a very difficult day for me and I feel rotten.  Sorry to be such a pill.  But, I needed to get this off my chest.

Thanks for your support.

Exactly why I don't go to chat room often. gee we could have a fibro wls chat some time.
I do not ever like to 'try to know some one else's pain) that is impossible to do.
Many people that do not have much info on Fibro think it is still a "made up disease" .We know different don't we !!!!!!
We love ya and understand each other 0)

Sorry you are having a bad day, we're all entitled to them don't worry. Pain is such a subjective thing, we all react differently. I know a gal with MS who rarely complained and I've known people who pulled a muscle that complain like it was broken. I have  pretty high tolerance for pain but only short term pain, when it comes to the never ending pain of fibro I get very frustrated. I have also found if I can do some meditation or just drift off and relax it helps the pain. It's not totally gone by any means but the more stressed and tense I become the worse the pain is. I guess I'm just trying to say what is nothing to one person is debilitating to another. You know you can always come here, we loves ya!

Thank you so much! 

Unfortunately some peoples comment**** us harder when we are in pain.Any other time it might not have bothered you. When I am having a more painful flairup I get way TOO testy. I try to hum a psalm and chill...smile and nod!!!! I know no-one else can feel exactlly our pain but...would we really want them too?I don't wish that on anyone.I had wls thinking it would eleviate alot of my symptoms.Obviously I was WAY wrong. I look better while I am in pain..lol.Try to stop and smell the roses.I have put my life into a little better order now,I prioritise things and see small things as blessings.I will be thinking of you and wishing you the best.

Thank you so very much!  You gave me some fabulous ideas.  You are very wise.  I really am so very thankful for the life I have.  I don't know anyone that I would trade with.

As a read your message, I was reminded again how important it is to realize that there is so much help in spirituality.  My faith truly is the core of my existence.  I am so isolated and I am not able to go to church much.  I really miss interacting with people with the same beliefs.

It all boils down to absolutely, positively demanding that my brain and soul seek out the good things in life.  When I become self-centered, I lose proper perspective.  I forget the many tender mercies that have been bestowed on me.

Thank you for reminding me who I am and that the goal is to become my better self.

You have touched my heart.  Thank you for your support.

I notice quite a few of us are women of faith, maybe God uses this awful disease to help us grow and learn. Ok the selfish me whines why???? but when I think about it I have learned so much about myself and others thru this disease that in an odd way it has been a blessing. I just have to remember God won't give me anything that He won't get me thru. I'm so thankful for my faith and church!

I have been struggling with the disease for 15 years now.  I have good days and bad days.  These past few months have been terrible.  I went back to the doctor and he prescribed more antidepressants!! I am so weary of being dismissed by doctors.  He gave me the new drug Savella, which is an antidepressant.  Any suggestions for pain relief other than antidepressants?

Be careful with Savella I was soo sick for 2 months from it. I got all the side affects after being on it for a few months. Check the paper work It is scary. I got heart problems high blood pressure and all kinds of stuff. I stopped it now. yes I walk like I am 80 hurt most of the tie. But I am just going to live with the dang thing have since 1998. I even have had docs tell me no such thing as Fibro..Oh really them what do I have and how will you treat it I asked He answered well with same meds what a joke. Baclafin for muscles is given to folks with MS and I take that it helps alot. And I fight the wheel chair thought all the time. I just won't give in to it. Pain is an every day thing and sleep is a joke I did get a sleep number bed and love it! I actually can lay down with out pain most night but I still have trouble sleeping. Honestly I am thinking of getting a medical card for marijaunna and trying it at least it is natural and I might slepp some. If it works for cancer pain It might work better for me than all these drugs I am sick of taking and switching all the time. And yes we look healthy which is the worst of it all. People can be so mean calling us lazy and it is all in our heads. Cymbalta commercials make me mad. I have not worked since 1998 I was 38 then. I was lost for years. i was a work aholic now I try to think of little things to do to stay active. good days and bad as we all know. Complain to a doc they just change your meds Yawn I am off most and am staying off.

I don't think anyone should judge how much pain you are in or what disease is worse. MS is a horrible disease. I am a nurse and have taken care of people with advance MS and many patients with fibromyalgia. Since I also have fibro I can relate more to them. I've missed alot of time from work due to pain, and I also have a high pain tolerance. I'm up quick after surgeries with little pain, but agree that chronic pain is different and can stress you out till your are irritible and jumpy with everyone. I get like that at work and feel bad that I did. Many people at work  I still believe don't think I feel as bad as I do, because I don't "look sick!" , you know the standard response from people about people with fibro. Everyone expected when I lost weight the pain would basically be gone. I feel like am constantly trying to explain myself more now that I weigh less and still have pain. Since I can't take my Motrin any longer I can feel the pain more. The only NSAIDS I can take is celebrex which does nothing for me. Lord only knows how I'll be able to work 16 more years to retirement. Since I'm sole supporter and have no back up money looks like many more years. The only thing I can do is take it one day at a time. This site helps to be able to vent and talk to people who know how you feel. Hope everyone is having a good day today.   JoAnn