fibro flare and WLS trouble

Hi, I'm 2.5 years out and until this year I was doing fairly well. Now strange things in the last six months.  I feel as if I'm falling apart.  I've had fibro for 5 years but now no medication works.  When I lay down to sleep I twitch all night and jerk, I've formed MRI diagnosed tendonitis in my arms, my legs cramp, and if I take as much as a tylenol I jerk and twitch. My stomach has been hurting and the CTSCAN said I had two very small hernias near my belly button and two doctors says it's nothing but I can push them back in.  I think I"m going crazy.  I went this year from working as a womens minister, visiting hospitals and prisons, playing my guitar and singing to almost nothing.  I have an appointment for an endoscopy and a colonoscopy over the next three weeks.  I'm scared of the colonoscopy since I'm afraid I will cramp bad when I do the prep. I'm 54 years old and feel like my life is over at this point. It is four am and I'm up since when I rest I muscle twitch and jerk.  Thanks for listening.  Kathleen

It sounds as if you have a bad case of restless leg (and body) syndrome but I suppose they have already looked into that. Have you had a sleep study done? What I really wanted to tell you is that they are using different kids of colon cleansers than in the past. I have really terrible IBS -their 'lemon drink' did a good job job of prepping me for the colonoscopy but there was no cramping at all. I was very surprised as this was not at all like me. Good luck, Christine

Sounds like the jerking and twitching are from something other than fibro, but I can't guess what. I recently had a colonoscopy and it was a breeze. The "go lightly" I took for prep did indeed make me go but I didn't have any cramping with it, just a very good cleansing! I also had no after effects from the colonoscopy itself. I hope you have an easy time of it also!!! I would keep pushing your docs to figure out what is causing the twitching tho because like I said before that doesn't really sound like fibro. Some docs just chalk everything they can't figure out up to the fibro, it's an easy scapegoat! I do hope they can get you more comfortable, keep us posted on your progress.

Before I got Dx with Fibro, I remember twitching like that.  I think it is the nerves since they are super sensitive to touch, I think this is there way of crying out that something is wrong. Remember feeling like you have the flu and every nerve in your body hurts?  Well.....that's it. Sometimes, I still have them, only in my arms but that could also be the meds wearing off.  But either way, it is fibro related I believe.  I am still on the patch and Norco and at the end of the 2nd into the third day, I can start feeling the over sensitive nerves.  That is what Fibro is.  It isn't a muscle disorder, it is overly sensitive nerves that make those areas, which are the fiberious areas the 4 quads. (hips, left, right, shoulder, left, right).  I am can say more but it is a big mess, but starts with the nerves. 

I had the jerking in bed years ago. I thought it was something with the nerves.Are you depressed or starting menapause??? I can remember feeling like that I am now 62. Seems like with me though my medicines have to be changed so many years. I sure hate to change med's too. You never know how you will react to any med's or combo of them. Good luck and let us know how your doing !!!

pam

I have the twitching and jerking also.  I was diagnosed with Periodic Limb Movement Disorder. They can find out if you have it by doing a sleep study.  I also have muscle jerks when i am awake at times. Sometimes my stomach muscles contract. That makes my whole body jerk. There are medications that can be used to treat this illness. I take gabapentin. It is a medicine that is similar to Lyrica.

I was diagnosed with teneditis and brusasitis. I never had much faith in that diagnosis.  I have weird pains which are over my elbow joints and down my legs and arms. I have just decided not to try to find out why. I have been to differnt specialist to try to figure it out. They didn't give me any helpful information.

Good luck to you.  I hope that you find an answer and relief.