I Know my fibro sisters will understand

Today my niece ( on crutches) my hus and me riding a cart at walmart went shopping. My hus hurt his shoulder just pulled a muscle last night. I HURT every where my bone to bone arm, neck and shoulders and my Fibro. My hus complained all through the store ooooooooooooooo I don't know if I can pick that up.....
I finally said gee I wish I just had 1 thing hurting I could deal with that instead of .........................................
People just don't imagine that we hurt as bad as we do. i swear if they had what we did they'd  be sitting in the corner groaning 24/7.

I really feel your "pain" too because I have this wonderful disease. There are times when I really try not to complain because there's just not enough hours in the day to explain what hurts , so when things get really bad and I do complain my family acts like I'm speaking another language. They treat it as if though "oh well it's just another day for mom " and they just go on with their lives. No "hey mom can we give you a hand , can we get anything for you , would you like a heating pad or anything to make me feel like anyone understands ?" Then I step back for a minute and realize that unless you suffer from this disease , no one can truly understand what we go through or what living with constant pain is like. I thank God none of them have to know either .

Hi, late getting back here but since the last few month I've gotten a yeast infection I haven't had Ione in years.  And I had all kinds of problems trying to get rid of it. We traded one thing for another thing.

Oh we all hear ya! It seems like everytime I get to a point where meds pretty well keep most of the pain down it only lasts a few weeks and then it starts all over again. My PCP (who used to be good about upping my doses) is getting more hesitant to give me more or a different drug. Seems like he wants me to rely more on life style changes, well I already do all that, stretching and mild exercise. I may have to go back to the expensive pain specialist cause since I broke my leg last summer it seems like my fibro is just out of control. I know we all get so tired of hurting and I just pray someday there'll be a cure. All I can say is we are so much stronger and tougher than anyone else realizes!

I totally understand.  Today is a very bad day for me.  And as much as the family tries to understand, I know they don't.  I know that I'm stubborn too and keep my feeling to myself too much, until I can't take it anymore and breakdown.  I don't ask for help, when I know I should.  I try not to complain about the pain.  I haven't been officially diagnosed yet, so I'm not on any medication.  I'm hoping to get relief when I go back to the doc.

I was on Lyrica for almost 2 yrs ($130 or so a month)I  was put on Savella(30 a month) about 3 months ago and it works like a charm.

http://www.savella.com/SavellaMedicationGuide.pdf
http://www.savella.com/

So sorry you are feeling so bad.   Seems this time of year is when things really start flairing up for me too.  I guess it is the cold and damp weather.  I know we need the rain, but it really makes me ache.  

I have gotten to where I just don't say anything to my husband.  He is so nice and tries to understand but I don't want to seem like a constant whiner.  Sometimes it takes me 3 warm baths a night to get to where I can sleep.  

My PCP has been changed and I have to wait until the 24th to see him for the first time.   My last PCP had pretty much given up on me and the last time I was there, she said that she had sent me to all the specialists she could think of and that there was little else she could do unless it was the normal PCP stuff.

Most of the specialists have passed me on to someone else.  My rheumatologist is the end of the line and he tries to help, but just hasn't gotten the combination right yet.   I go to a pain specialist who says he can only do so much and that when I get a really bad flair I should see the rheumatologist.

I feel like I am in a never ending circle, going round and round and round and never getting anywhere.

Hope you get to feeling better soon.    I'm looking forward to my warm bath tonight (already).

Bonnie

My rheumatologist have left town and I hate the thought of trying to fine someone else. The last person I talk to that have
Frib. was talking about how they have try several rheumatologist in the area and they have not gotten any relief from the pain.  And they pass them on with out any results and the thought of trying to let my PCP play with the meds scare me.  I just got a new med from my PCP today that is call Savella.  I have try several other new meds with no good luck.  He informed me I'm his first patient to try this med.

I was given Savella too and it's working great 4 me. I was on Lyrica for 2 yrs and then when the FDA approved Savella in January a heart doctor I had gone to told me about it! It cost alot less than the Lyrica per month. I hope it works 4 u 2! good luck!

Hi Pam,

I'm so sorry you are not getting the emotional support from your family. It's like geez, are we not allowed to have a bad day?  That is the time for you just to excuse yourself and vacate the room. It's not that they don't love and care for us, it's just that when our pain is so bad we just can't take it any longer, they try to manipulate us further to meet their own agendas.

Take Care

Lilli