Just checking in How is everyone

MainePam
on 10/8/09 10:03 pm - Bucksport, ME
Just checking in how is everyone? There is sure a fall chill in the air. In the back of my mind winter coming I hate the chilled to the bone feeling but we will survive.We are all tough we live with fibro and I really believe NOT everyone could !!!
Bonnibj
on 10/9/09 4:44 am - Augusta, GA
Hope you are doing okay, Pam.    I love the fall.   I love the colors and knowing about all the festivities to come.  

I always have a miserable time with hot weather (at least before the surgery).  Don't quite know how I will handle the cold weather now that I have had surgery and lost weight.  I have noticed that my feet get miserably cold the last few weeks. 

With this being another lean year (financially), I'm sure we won't be cutting the heat on too much.   We like the cooler house, just hope we don't get miserably cold! (In Ga. we don't have too many really cold days).   I told my husband that this year we may just get a "Charlie Brown" tree for Christmas!

No matter what, I love the spirit and fellowship of the holiday season, so we will manage.  

Hope everyone's doing great.
Bonnie  
         Love My Danes        
MainePam
on 10/12/09 7:51 am - Bucksport, ME
Yes Bonnie i think a lot of us will have a lean year for Christmas. But I think that is the way it is meant to be. To make things there more meaningful.
Hislady
on 10/9/09 8:27 am - Vancouver, WA
We're enjoying a sunny but cool fall with al the gorgeous leaves turning color. I'm especilly enjoying it because I got the brace off of my broken leg last week and started PT this week. I'm getting stronger every day and my therapist says she's gonna have me able to move better than before I broke my leg so that would be a blessing. She knows and respects that I have fibro and makes sure I don't try too push too hard and suffer later. So hopefully my winter will be more mobile.
Toadlily
on 10/10/09 2:20 am
snowy here. :+)

http://toadlily-gamer.blogspot.com/2009/10/snowy.html

I am sad, and could use some advice.  I suffer from fibromyalgia yes, but I first got CFS in 1998 (Finally diagnosed then, but started getting ill in 1995'ish). Anyway, some days, I am so fatigued (Usually after doing too much the day before), walking to the kitchen is hard (about 30 steps oO), standing up long enough to wash dishes is hard. Things like lifting my hands far enough up to look in kitchen cabinets is too hard. Holding a phone up for longer then 30 seconds?, well, yeah , you get the idea. I lost 2/5 of my blood supply one time after a surgery when they had sent me home. It kinda feels like that. Barely able to talk.. walk etc.. I was fading out with 911 on the phone. Anyway. Probabaly more info then you needed to h ear. :+)

After about 26+ hours of this on Thursday evening, with no relief, and no medications can help with this, I simply have to have some relief. The only thing that helps is carbs. (I am on a low carb diet). Raising my blood sugar is the only distraction and relief I can get. In fact, when I went to the cardiologist for surgery pre-req last Wednesday (Hence the collapse after. I had to drive 2 hours, and it was a grueling day), he found my BP was 128/30 on my right side, and 100/60 on my  left. He got concerned so we are doing both a nuclear and echo test next week. K, sorry again for trailing off.

Anyway, as I said, only raising my blood sugar is the only way I have found relief. So yeah, I went and had a caramel apple. the whole thing. O, yeah. and it was coverred in milk chocolate. Yes it helped tremendously, but crap. This is so much the reason why I cannot keep on diets. My illness has destroyed my willpower and confidence I can lose weight anymore. And when I feel so fatigued for so long, I just have to have relief. Even the low carb diet leaves me so weak, but I have tried so many other diets (Calorie restriction etc) that also just fail because of this.

Anyway, I just need advice or tips. I can usually make it through the day without carbs, and do so, because carbs during the day for me triggers me badly to desperately want more carbs within 2 hours. I need to prepare something in advance so I don't go for the chocolate caremel stuff (I have this stuff around, because I make chocolates for family. Guess I might have to stop that :() I can prepare low carb deserts?, and do, but even with those, I stall in losing weight.

Does anyone have any good tips/ideas for those situations where I have to get relief from debilitating fatigue?

Halp! =p :+)
 ~ toad

http://toadlily-gamer.blogspot.com/



     
MainePam
on 10/12/09 7:58 am - Bucksport, ME
I have such problems with low blood sugars and I usually have 4-5 glucose tabs on and off all day. It is crazy !! I try to make a good fill in for things I am hungry for. I have gained like 10 lbs with in the past 2 months and I am not eating any different.Its always a constant battle even after surgery.
Hislady
on 10/10/09 6:08 am - Vancouver, WA
I hear you about having temptations around and I've just had to really limit what I have on hand. Family always expect goodies from me but I've just had to tone it down. I'm telling everyone this Christmas not to expect much (I broke my leg so good excuse there, altho I wouldn't recommend it to anyone else!)I'm just going to make some healthy type breads which I can't eat.
Anyway for suggestions how about different flavored merangues, make them ahead in little "kiss" shapes. I think they keep pretty well. Also instead of the carmel apple maybe just apple slices with a low fat or low sugar caramel dip? Just take things that you normally see as comfort food and figure out how to make it lower in calories or use healthier carbs in snacks like baby food fruits in cake or cookies instead of some of the oil. There is also a cake made with diet soda from weigh****chers, try googling it. I sure understand the tiredness because I'm trying to regain strength after being in bed for 6 weeks and it's so hard, I just want to sleep all the time and any little work and I'm exhausted. Best of luck to you!
Toadlily
on 10/10/09 7:30 am
thanks for the tips! yes, meringues are perfect. and I will try and make them with splenda/truvia.  There's also a low carb flourless chocolate cake I can make (3 minutes in teh microwave). But having stuff there ready to go is my best alternative.

thank you, and best of luck in your recovery!

~ toad

p.s. yes. no goodies for anyone this year around teh holidays. :+)
 ~ toad

http://toadlily-gamer.blogspot.com/



     
MainePam
on 10/12/09 7:55 am - Bucksport, ME
It is soi hard to reain strength lost. You can't do too much yet you have to do enough.
Good ideas for eating "good" things.
Let us know how you doing!!!
laglass1996
on 10/11/09 3:38 am
Thanks sounds so good! The only thing I hate about the lap band is that cake gets stuck :(
It doesn't help that I'm addicted to all the new cake baking shows (Ace of cakes, Amazing wedding cakes...) Oh well.
 

 "Don't sweat the petty things- and don't pet the sweaty things."


 

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