sjogrens syndrome.....

KCN
on 9/23/09 2:26 am
anyone here have it?  i was diagnosed on friday.  i already have fibro so this is just an extra blow to my system. :(  my dr is helping me.  she has given me klonopin, ultram, and skelaxin (wich I cannot take...gag).  i feel i need stronger pain meds.  what meds do you recommend? 

and if you have sjogrens, what do you take for it?  i am starting plaquenil. 
Kris
twohearts
on 9/23/09 6:43 am - Waukesha, WI
I haven't been firmly diagnosed but I'm pretty sure I have it too.  Very dry eyes, mouth, nasal passages and my skin is very dry overall too.  If you go to WebMD and search the disease you will see what they recommend for it.  There isn't a cure all for it.  Some suggestions for treating the symptoms include eye drops, sf gum, moisturizers, etc.  Since I can't take anti-inflammatory drugs that one gets checked off my list.  You might be able to do those, not sure with the bypass.

Gentle hugs,
cindy
KCN
on 9/24/09 12:28 am

Pain has been my biggest issue!   I also have sleep issues.  My dry eyes, skin, and mouth I can handle....but not the pain and fatigue! 
:(  Hope to get some relief soon.  I feel like my DR. I am going to will help me...if we can find the right combo. 

FYI, b/c of the risk of lymphoma you should go and get checked if you think you have this!  It usually is not an issue till the 50's and 60's. 

 

Kris
twohearts
on 9/24/09 5:57 am - Waukesha, WI
Oh, I didn't know that.  Thanks.  I'll mention it to the doctor next time I am there. 
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