Checking in and update

Karil G.
on 9/18/09 4:04 am - IL
Hello Everyone,

just checking int o say "hello".   My paperwork has been submitted, and I am just waiting to hear if my surgery has been approved.

While i am getting ready for a possible surgery date, i will be seeing a pain doctor next week.  I am hopeful that i can get some relief.   The Rheumotologist has not been able to help me, let alone, really diagnose me.
Just wanted to say hey, and thank everyone for their great support, and awesome posts!
Hugs
karil
Kristy
on 9/18/09 6:36 am - ID
Hi Karil,
I just got diagnosed about 2 yrs ago.  Since not everyone has the same symptoms, like the same trigger points, the best way to diagnose it, is if you have a "flu" like ache all over your body, even you hair hurts, just like when you have the flu.  And the 4 quads of your body hurt, your hips, left & right, your arms at the shoulders left & right.  They feel like you have strained every muscle in them and you can't lift them.  You feel of course, so weak and tired, you really can't move, let alone walk.  Any doctor can diagnose this condition.  Rheumy doctors can and will, but I just dx by my pcp and then got into a pain clinic for the pain management and that dr agreed it was Fibro.   A blood test won't detect it, so all the years I was complaining about my issues, before it came on full blown.  They thought there was nothing to find.  Well, really there isn't until the "Flu" like symptoms start.  That is when we know we have it.  My legs were weak and my muscles felt like they deteriating.  I use the Fentanyl patch 50mcg and Norco as a break through med. Congrats for the possible surgery date. 
Hislady
on 9/18/09 9:06 am - Vancouver, WA
Best of luck with the pain doc, I hope he'll be able to give you some pain relief!
twohearts
on 9/19/09 11:08 am - Waukesha, WI
I'm happy for you that you will get your surgery soon.  Rest up now so that you have extra reserves for after the surgery.  Pain clinic sounds like the right path to go down.  My experience with the rhumatologists is that they have a hard time defining what to call our situation.  Usually fibro and a cross over with some other auto immune thing, but until you get some other symptoms or bloodwork comes back with special problems, they don't know what to do to help.  Pain management clinic at least can deal with that.  I haven't been there yet, but plan to go soon.
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