new fibro patient...

KCN
on 9/2/09 3:16 am
Hi!  I am looking for a dr. to treat my  (some what) newly diagnosed fibro.  I live in Alabama. I am soooo tired of going to a dr. only to be blown off.  I have tried Lyrica and it does nothing for me. I am at the point that I want to go to a pain clinic to get some relief, but I don't really know what to do.  I went to a fibro "specialist" this week, but she wants to run all these tests and it is going to take months.  (she won't treat until all tests are back) I am in pain and I am discouraged that I will ever feel better again! :(  Help if you can. Thanks! 
Kris
twohearts
on 9/2/09 6:40 am - Waukesha, WI
I'd try the pain clinic route.  I think managing the pain is all we can do.  I am allergic to most of them so I can't get relief, but you can.  Go for it.  There is no magic cure for fibro, just lots of wasted dr visits if you ask me.
Hislady
on 9/2/09 2:33 pm - Vancouver, WA
I agree, there is no reason to suffer the pain while undergoing all the tests and actually the only reliable fibro test is to check for trigger points and that only takes a matter of a few minutes. Plus a pain clinic is going to be more apt to give you drugs to help with the pain. Good luck!
MainePam
on 9/2/09 10:28 pm - Bucksport, ME
Kris, welcome to the board.
Hope you can get some pain releif.
Keep us posted.
Kristy
on 9/3/09 9:33 am - ID
HI,
Why would a fibro specialist want to run tests?  You can't diagnose Fibro with tests other than what the other members mentioned.  Tell your PCP or pain clinic doctor, (try to get into one of those) and tell them you want not need medicine.  I use Fentanyl patch and Norco as a breakthrough med.  This combo is good for me.  You can't live with just taking Lyrica.  These people don't understand how the pain is for us.  If we find a med that works, but doesn't take all the "flu" like symptoms away, they won't bump our meds up.  A pain clinic will though.  Let us know what you are able to achieve with the docs.  Best wishes to you.
Kristy
suzette N.
on 9/4/09 1:47 am - nashville, TN

You might as well start looking for a pain dr. now. I never answer posts here but I guess Im in a talkative mood. I started with my primary dr. He sent me to 3 different Rheumotologists for mths at a time each. It was my third Rheumy *****commended the pain clinic.

 

Ive been going there for the last 15 mths. I pretty much know what helps me now(NOT MUCH OF ANYTHING). Lyrica almost killed me. I went psyhco. I was getting worse and worse everyday until the day I decided to end it all. My sister called and told me to not take another step and call the dr. right then. Otherwise I wouldnt be here. Lyrica also put me into congestive heart failure.

 

Be very careful with the meds. Some are very powerful and most people get no relief. My massage therapist helps alot with the back and neck pain. Good luck. I would welcome you to the board but I wouldnt wish this disease on anyone.

    
JustLookingToo
on 9/6/09 4:12 pm - AL
Send me a PM if you are anywhere near Mobile, AL. My husband has been seeing the most wonderful doctor in Mobile. He's the no nonsense type, very frugal, and only runs all those extra tests if he absolutely has to. He will sit with you for over an hour and discuss each and every symptom, and he will draw out a plan to treat each of those symptoms. He's one of the smartest people I've ever been around.

My husband is actually being treated for Lyme's Disease, but I know that this doctor also treats Fibro. Dr's like this one don't come around often. My husband has been to all kinds of "specialists", but if you don't have "textbook" symptoms, they are not usually much help. After four months of treatment, my husband has had a real breakthrough in his symptoms. He has a new lease on life. He had given up because he did not feel like doing anything but laying on the sofa, and he's actually going Bass fishing in the morning (after spending the last few days mowing grass and cleaning up the yard). It's amazing the difference in him. This Dr.'s waiting room is full of people with encouraging stories. 
KCN
on 9/14/09 10:18 pm
Thanks ya'll! 

I am currently looking for a pain clinic. It seems that everyone I call states that they do not treat fibro.  I am soooo frustrated.  I will update soon.  I JUST WANT SOME RELIEF!!!!!!!!  (I am sure you all know what that is like) =(
Kris
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