How many of us work fulltime?
I am curious as to how many of us Fibro folks work fulltime jobs? I do and I also take care of an ailing spouse after that. I am so tired sometimes, but I have to do it so we can have a roof over our heads and food on the table. Wondering if I'll crash and burn one of these days or if I will just stay uncomfortable and tired and be able to carry on til retirement?
Please tell me your stories. :)
Please tell me your stories. :)
I work full time, but not for anyone. My dad passed away in Jan of 2003 and left my brother and I his duplexes. My brother was killed by a drunk driver in April of 2007, so I have to take care of all of them. Most of the time it isn't too much work, but on the first of the month it does get a bit crazy.
I am blessed in the sense that I don't have to struggle to make ends meet. My husband has his own business as well doing, welding, so he travels for jobs, mostly out of state.
Big cyber hugs (((Two hearts))), I know it can wear on you, the constantly battling the wind.
Lilli
I am blessed in the sense that I don't have to struggle to make ends meet. My husband has his own business as well doing, welding, so he travels for jobs, mostly out of state.
Big cyber hugs (((Two hearts))), I know it can wear on you, the constantly battling the wind.
Lilli
I worked full time for 29 years and there were times I just sat and cried! I started working part time and could only do less and less hours til we moved back to NH from Florida. I gave in and self applied for Disability in April 2008 and was finally approved in May of 2009. It is such a relief and mentally I am doing so much better. I can't believe I worked as long as I did as this fibro was a long battle for me and continues to be so.
Hello all;
I am new to this forum---I have been a member of OH for a while but just now noticed that there's a whole group of us with fibromyalgia. Wow--I'd say it's nice to find so many like me but I wouldn't wish this on anyone. I worked full time for a couple of years until it got too much for me and then I went to part time, and found I could do less and less hours. Now I am at home and have been so for almost 3 years. About a year into not being able to work I applied for SS disability and am still fighting to get it approved. I am now waiting for a hearing date to be set. It has been hard the past 3 years for my husband to handle all the financial needs alone. We go winters without heat (just wrap up in blankets) and summers without airconditioning in the house except for the bedroom where it helps us to sleep. All our friends don't understand fibromyalgia and wonder why I can't work to help out. How do I explain to them that I don't wake up until about 9:00 and then it takes me until about 12:00 before I can actually get moving. There are days when I just stay in the bed. How do you find a job with hours like that? I'd do anything to help my husband now. If the SS doesn't get approved I don't know what we'll do. My husband, who never had any real financial difficulties in his life (he isn't rich, just lived within his means), is now talking bankruptcy. We live pay check to pay check and sometimes have to juggle to pay bills even then. I'm about 10 years from being able to collect retirement from SS. Right now we just take one week at a time.
Don't mean to ramble on, just know you fellow fibro folks will understand and that is a refreshing thought.
Here's hoping for better days for us all!
Bonnie
I am new to this forum---I have been a member of OH for a while but just now noticed that there's a whole group of us with fibromyalgia. Wow--I'd say it's nice to find so many like me but I wouldn't wish this on anyone. I worked full time for a couple of years until it got too much for me and then I went to part time, and found I could do less and less hours. Now I am at home and have been so for almost 3 years. About a year into not being able to work I applied for SS disability and am still fighting to get it approved. I am now waiting for a hearing date to be set. It has been hard the past 3 years for my husband to handle all the financial needs alone. We go winters without heat (just wrap up in blankets) and summers without airconditioning in the house except for the bedroom where it helps us to sleep. All our friends don't understand fibromyalgia and wonder why I can't work to help out. How do I explain to them that I don't wake up until about 9:00 and then it takes me until about 12:00 before I can actually get moving. There are days when I just stay in the bed. How do you find a job with hours like that? I'd do anything to help my husband now. If the SS doesn't get approved I don't know what we'll do. My husband, who never had any real financial difficulties in his life (he isn't rich, just lived within his means), is now talking bankruptcy. We live pay check to pay check and sometimes have to juggle to pay bills even then. I'm about 10 years from being able to collect retirement from SS. Right now we just take one week at a time.
Don't mean to ramble on, just know you fellow fibro folks will understand and that is a refreshing thought.
Here's hoping for better days for us all!
Bonnie
I work full time as a nurse in the peri-op area, mostly the recovery rooms of a busy hospital. I've taken alot of time off work past few years due to health issues, mostly pain and fatigue due to fibromyalgia.I am single and need to work to support self and for health insurance. I just turned 50 years old and don't know how I'll make it to 65 at this rate. I have lots of past due bills, alot medical and get many phone calls from collection agencies.But since I have been taking so much time off, barely covering basic bills. And I need tons of work done tomy house, with no money for supplies.I pray daily that I can work more and not be off, or lose my job for absences.I just take it one day at a time.Hoping I never need to go out on disability, cause it's hard to get approved.Good luck to all and God bless. JoAnn
I had to stop working my job 2 years ago. It was that or get fired. (It was a very phisical job lifting up to 80lbs over and over.) I am on a medical leave. I can take up to 4 years. I applied for Disability in April 2008 I was deined and I have appealed. I had the gastric bypass hoping to be able to go back to work. It seems the more weight I lose the morep ain I'm in. Thats my story.