New Fibro diagnosis...I have tons of questions!
Hello everyone,
I am 3 years post of RNY and I was recently diagnosed with Fibro. They are still doing further testing at this point because many of my symptoms also point to Lupus. I am a 37yo that did quite well with the RNY, and maintained the weight loss for over two years without much problem. Then, within the last 6 months or so, I have put on over 60lbs! I am following a strict "diet" of two protein shakes, a lean protein dinner with a veggie and a fruit and a fruit for snack at night. There is no reason that I should be gaining this weight, and I am so depressed because of it! These are my questions:
1) Were any of you diagnosed post op?
2) Is there any link to fibro and RNY?
3) Did any of you gain weight after starting the fibro symptoms?
4) What do you use for pain control/sleep problems?
5) What do I do about this weight gain...I feel so much shame I am afraid to contact my Bariatric surgeon.
Any advice and info would be greatly appreciated!
D
I am 3 years post of RNY and I was recently diagnosed with Fibro. They are still doing further testing at this point because many of my symptoms also point to Lupus. I am a 37yo that did quite well with the RNY, and maintained the weight loss for over two years without much problem. Then, within the last 6 months or so, I have put on over 60lbs! I am following a strict "diet" of two protein shakes, a lean protein dinner with a veggie and a fruit and a fruit for snack at night. There is no reason that I should be gaining this weight, and I am so depressed because of it! These are my questions:
1) Were any of you diagnosed post op?
2) Is there any link to fibro and RNY?
3) Did any of you gain weight after starting the fibro symptoms?
4) What do you use for pain control/sleep problems?
5) What do I do about this weight gain...I feel so much shame I am afraid to contact my Bariatric surgeon.
Any advice and info would be greatly appreciated!
D
I am awaiting lap band surgery at this point so I can't relate with that yet - but I have had Fibro for several years. I am going to give you some good advice on pain control and sleep problems. I tried everything and unfortunately any help from the Dr's that I could get - insurance would not cover. Then one day I was advised to see a Reflexologist. It took several weeks of going on a regular basis and he put me on some natural vitamins, minerals, cherry juice for pain, and several other things. He also did the reflexology through my feet which I will admit brought tears to my eyes the first few trips but he told me if I would bear with it and do exactly what he told me to , he would get me better. IT WORKED! I still have some pain at times but it is nothing like when I was first diagnosed. I do anything and everything I want to do with minimal problems from the Fibro. I would highly recommend it to anyone who is suffering from Fibro. If you can find a male reflexologist - even better! Their hands are stronger and you will get better results.
As far as sleep, I am using a CPAP machine and that has improved my quality of sleep tremendously. You might consider talking to your Dr. about having a sleep study done. I sure hope you get to feeling better and can get back to where you want to be. If you can get the Fibro under control - that will be help alot.
As far as sleep, I am using a CPAP machine and that has improved my quality of sleep tremendously. You might consider talking to your Dr. about having a sleep study done. I sure hope you get to feeling better and can get back to where you want to be. If you can get the Fibro under control - that will be help alot.
Hi, I too had RNY three and a half years and lost 90 lbs and kept it off so far. Perhaps you could try going back to basics, to lose the extra weight you have put on. Depression will also add weight to you because you (the person) are not active and you are in a different state of mind. Now to answer your questions.
1. I just got diagnosed 1.5 years ago so it was post op.
2. There is no connection between Fibro and gastric bypass, not from the RNY per se, but possibly due to a trauma (mental/physical), surgury, the way a person handles stress, maybe from when you were a child. So for me it would be 2 deaths two months apart, uterine tumors needed a partial hysterectomy, but I noticed it when my step father died he was the second death.
3. I haven't gained any weight from just getting fibro symptoms.
4. I use the Duragesic/Fentayl patch 25mcg for pain and Norco as a break through pain med. I used to use Ambien but if you read my other posts I had a bad experience with it. So I now take two Tylenol PM and half of an Ativan 1MG. It works very well, I still get up once or twice but nothing like before.
5. Go back to basics. Try the liquid diet for a week, soft foods, portion control etc. But most of all, not one of these things won't matter unless you reflect on why and what you are eating, when, (night time is okay, as long as it isn't bad food like cheesecake)
If you need any other help I would be more than happy to help you. I will give you honest, straight from experience answers. Thanks, I hope this helps you.
Some of your weight gain could be from the meds you are taking, so check those too.
1. I just got diagnosed 1.5 years ago so it was post op.
2. There is no connection between Fibro and gastric bypass, not from the RNY per se, but possibly due to a trauma (mental/physical), surgury, the way a person handles stress, maybe from when you were a child. So for me it would be 2 deaths two months apart, uterine tumors needed a partial hysterectomy, but I noticed it when my step father died he was the second death.
3. I haven't gained any weight from just getting fibro symptoms.
4. I use the Duragesic/Fentayl patch 25mcg for pain and Norco as a break through pain med. I used to use Ambien but if you read my other posts I had a bad experience with it. So I now take two Tylenol PM and half of an Ativan 1MG. It works very well, I still get up once or twice but nothing like before.
5. Go back to basics. Try the liquid diet for a week, soft foods, portion control etc. But most of all, not one of these things won't matter unless you reflect on why and what you are eating, when, (night time is okay, as long as it isn't bad food like cheesecake)
If you need any other help I would be more than happy to help you. I will give you honest, straight from experience answers. Thanks, I hope this helps you.
Some of your weight gain could be from the meds you are taking, so check those too.
Congrats on the weight loss and for keeping it off! I have gone back to the basics more times than I can count...lol. For example: This week, I have been on only liquids/broths/protein shakes etc. I sip them slowly, and have not had anything solid for three days. I don't eat at least 4 hours prior to bed either. Well, I have GAINED two pounds so far. I don't even know how that is possible! I have noticed that I seem to be retaining a lot of water lately too, and I'm worried that maybe my kidneys aren't doing a great job getting rid of the excess fluids. I had this symptoms pre-op as well, but it went away with the weight loss. I am very embarrassed by my weight gain, and I don't know how I am going to call my surgeon to speak to him about this, but I know that I have to. It's getting rediculous!
The only medication that I think may be contributing to the weight gain would be Trazodone. I don't dare go off though because it's the first medication that has worked for me for sleep. Without it, I literally don't sleep. It's horrible! I hope and pray that the Drs figure this out soon. It's very emotionally trying to see myself get bigger and bigger even when I'm being "good".
Thank you for the reply!
D
The only medication that I think may be contributing to the weight gain would be Trazodone. I don't dare go off though because it's the first medication that has worked for me for sleep. Without it, I literally don't sleep. It's horrible! I hope and pray that the Drs figure this out soon. It's very emotionally trying to see myself get bigger and bigger even when I'm being "good".
Thank you for the reply!
D
Not sleeping can cause the wt gain or make it difficult to lose.
Are you doing any form of exercise? Water exercise in a warm pool is very helpful for some with fibro. It works for me as long as the water is very warm. I get chilled easily and then get foot cramps. Not good in the deep end.
I currently work out 3-4 times a week, doing 30-60 minutes on the ellipitcal and then some strenght training. The key to exercise with fibro is to start very slowly and find something that doesn't increase the pain.
I've had fibro for probably 30 years. Some days are good, some not so good. I try to focus on getting a good night's sleep. That seems to be key to me. I also try to avoid aspertame. It's evil and I know it. But sometimes, I just have to have a diet soda and if I haven't brought one from home with Splenda, I will buy one with aspertame. Then I suffer.
For meds, I take flexeril, trazadone, & cymbalta all at bedtime. Works fairly well for me. I don't like the cymbalta but it does help me get out of bed in the morning.
Thank you for your reply! I have been doing wonderful with sleep since being on the Trazodone, but my Dr. wants me to come off of it because she feels that I will become dependant on it. This doesn't make any sense to me since the medication is a psychiatric medication, and can be used long term. Without the trazodone, I was literally getting no sleep (1-2 hours a night). With it, I am able to get at least 6 every night. HUGE improvement!
As far as the exercise, I am currently doing 20 minutes of stationary bike a day, and I add three walks a week to that as well. My walks vary in length depending on my pain that day. I walk anywhere from 20 minutes to an hour an a half. I am not as fast as I use to be, but I am still active, and I don't feel that with this amount of exercise, I should be gaining weight.
I would love to be swimming, but I don't have a pool, and my babies are too young to take to a public pool. I just hope that my Drs have some answers SOON. I feel so badly about my weight!
Take care,
D
As far as the exercise, I am currently doing 20 minutes of stationary bike a day, and I add three walks a week to that as well. My walks vary in length depending on my pain that day. I walk anywhere from 20 minutes to an hour an a half. I am not as fast as I use to be, but I am still active, and I don't feel that with this amount of exercise, I should be gaining weight.
I would love to be swimming, but I don't have a pool, and my babies are too young to take to a public pool. I just hope that my Drs have some answers SOON. I feel so badly about my weight!
Take care,
D
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