While I am at it, I am a little sad over....................
the fact that I have lost 90 lbs with the RNY 3.5 yrs ago thinking I would have more energy and be able to get around and start hiking and just being very active. Then I had tumors removed and other parts, only to develop Fibro a year later. Although, I have probably been getting this over my whole life span thinking back now. I remember symptoms doctors couldn't explain. But I am not really sad, I am disappointed to be in this state of limited activity, rest, a little house work, rest, can't do to much or I am paying for it the next day, with some freaky nerves feelings in my arms and neck, back to the flu feeling. I am so glad I lost the weight, but how can I shake the disappointment I am feeling regarding the fibro inconvenience. thank you for your support. Kristy
I totally understand where you are coming from. I struggle with it everyday and with migraines and it is hard to stay motivated when being in so much pain. I try to pace things out, but sometimes I overdo it and the regret it the next day. I have had to learn that everything does not have to be spotless, just clean. That is hard to get used to as well. But not hurting is worth it:) i wish you the best of luck!
thank you to everyone for your support. I love this forum. Everyone is so nice and helpful. I have good days and bad days just like the rest of you. But I hope I am not making a big deal out of the Fibro thing. I am usually pretty positive, but when I think about the weight loss, it just makes me sad, well disappointed. Thanks again to everyone.
Kristy
Kristy
Just like with any other dibilitating illness the only way to deal with it is one day at a time. I was more devasted, yet relieved, to be diagnosed with fibro than when I was diagnosed with breast cancer. The cancer could be treated but the fibro is forever and won't get better just worse. For myself I just have to take advantage of my good days, rest on my bad and keep in close contact with all my docs regarding pain. It is a horrible disease and I wouldn't wi**** on my worst enemy. Best of luck.
Kristy - I'm new to the Fibro board and just want to let you know that I feel so deeply for you. And, I know what you mean about having lost a lot of weight and still being tired. Been there, still doing that.... I wish there was some way I could snap my fingers and make you feel better. Just know I'm sending happy thoughts your way!
Ginger
Ginger
Kristy,
I'd definitely explore the optioons with your doc as far as med and you may want to see a pain specialist. I've been to a very nice man here in Dayton and he is very good and caring and I really appreciate his help. I also have spinal stenosis and my back hurts most of the time and on days when my fibro acts up I want to just scream. Then I feel and landed on my tailbone and he got me in right away and scheduled a nerve block so the nerve would have a chance to heal. So, maybe you can find a pain doc in your area that may be able to help some.I know when I don't hurt I can get so much more done. But, get a call into your doc and see about meds I'm sure he can help you out. Take care and let me know if I can help or if you really need a shoulder to cry on!
Ginger
I'd definitely explore the optioons with your doc as far as med and you may want to see a pain specialist. I've been to a very nice man here in Dayton and he is very good and caring and I really appreciate his help. I also have spinal stenosis and my back hurts most of the time and on days when my fibro acts up I want to just scream. Then I feel and landed on my tailbone and he got me in right away and scheduled a nerve block so the nerve would have a chance to heal. So, maybe you can find a pain doc in your area that may be able to help some.I know when I don't hurt I can get so much more done. But, get a call into your doc and see about meds I'm sure he can help you out. Take care and let me know if I can help or if you really need a shoulder to cry on!
Ginger
Hi Ginger,
I am in a pain clinic now and I am waiting for a call to start a Fibro class. I don't know what to expect from the class. I guess I am just disappointed that I can't do everything I was hoping to post op. Maybe this is just something I have to learn to accept. I haven't really accepted the Fibro anyway. I just got diagnosed with it and have had it about 1.5 years now. So I am new to fibro but not it's side effects. Thanks a bunch. I am a positive person and feel good most days, I like my med combo but I can't be in denial about having this condition. Kristy
I am in a pain clinic now and I am waiting for a call to start a Fibro class. I don't know what to expect from the class. I guess I am just disappointed that I can't do everything I was hoping to post op. Maybe this is just something I have to learn to accept. I haven't really accepted the Fibro anyway. I just got diagnosed with it and have had it about 1.5 years now. So I am new to fibro but not it's side effects. Thanks a bunch. I am a positive person and feel good most days, I like my med combo but I can't be in denial about having this condition. Kristy