New to this site, I think!! Never too sure about much>)
Im preop for the vertical sleeve surgery. It is possible Ive been here before, but the fibro fog is soo bad when it rains or is cold or just about anyday!!LOL I answered a post from Max's Mom and she told me about this forum.
I just read the first 2-3 posts and I have to tell what happened to me. The cymbalta made me vomit uncontrolably for days and days so no-more cymbalta for me. Then the Caring drs I have decided that Lyrica was the way to go and I almost died. I had been on the lyrica for several days when I started hallucunating most of the time. I was also feeling awful on it!! The day I almost died, I was soooo depressed that I saw my face in this huge Oak tree in the middle of the winter across the street,and I couldnt understand why it was soo old and cold like me. I couldnt stop apologizing to everyone I spoke to. Anyway, even my handsome hubby couldnt understand what was happening.
After he left for work that day, I went to work figuring out which of the 32 prescriptions it would take to end this suffering. I started counting out the pills and in my DEMENTED mind, I had the forsight to call My best friend (who happens to be my sister)to tell her how sorry I was because I wouldnt be available to talk to her later.(IM laughing thinking about it but it was very real and very dangerous that day. So I called her and she said."do not take another step. Get off with me and call your dr right now. Do NOT go to the kitchen{meds are there} Call right now and I did and Im still here. I wish this was the end of the lyrica story, but a week later I felt horrible!! I was at the rheumys for reg appt and I told him something was very wrong. It turned out that the reaction with the lyrica not only made me lose my mind, but caused me to go into congestive heart failure. Im now going for another echo-cardiogram next week before the cardiologist will approve my wt loss surgery
Just be careful and Im sooo thankful it is helping some. I do hate the commercials for lyrica because they always use older women(even tho Im one of them) and they are strolling around New Orleans or teaching art classes etc and with fibro, IT just isnt like that. Maybe it is for those that cymbalta and lyrica have helped. Maybe some of you could let me know if you can now do those things.
Thanks for listening and I will now shut up and read more posts.
suzette
s
s
I just read the first 2-3 posts and I have to tell what happened to me. The cymbalta made me vomit uncontrolably for days and days so no-more cymbalta for me. Then the Caring drs I have decided that Lyrica was the way to go and I almost died. I had been on the lyrica for several days when I started hallucunating most of the time. I was also feeling awful on it!! The day I almost died, I was soooo depressed that I saw my face in this huge Oak tree in the middle of the winter across the street,and I couldnt understand why it was soo old and cold like me. I couldnt stop apologizing to everyone I spoke to. Anyway, even my handsome hubby couldnt understand what was happening.
After he left for work that day, I went to work figuring out which of the 32 prescriptions it would take to end this suffering. I started counting out the pills and in my DEMENTED mind, I had the forsight to call My best friend (who happens to be my sister)to tell her how sorry I was because I wouldnt be available to talk to her later.(IM laughing thinking about it but it was very real and very dangerous that day. So I called her and she said."do not take another step. Get off with me and call your dr right now. Do NOT go to the kitchen{meds are there} Call right now and I did and Im still here. I wish this was the end of the lyrica story, but a week later I felt horrible!! I was at the rheumys for reg appt and I told him something was very wrong. It turned out that the reaction with the lyrica not only made me lose my mind, but caused me to go into congestive heart failure. Im now going for another echo-cardiogram next week before the cardiologist will approve my wt loss surgery
Just be careful and Im sooo thankful it is helping some. I do hate the commercials for lyrica because they always use older women(even tho Im one of them) and they are strolling around New Orleans or teaching art classes etc and with fibro, IT just isnt like that. Maybe it is for those that cymbalta and lyrica have helped. Maybe some of you could let me know if you can now do those things.
Thanks for listening and I will now shut up and read more posts.
suzette
s
s
Hi Suzette...
Welcome to the fibro board. You will meet LOTS of really great people here!!
I have tried lyrica and it did absolutly NOTHING for me. I think I have been on every single med there is....LOL>.......
I am not taking Opana and WOW it helps!! I wish there was something that I could take that would make it ALL go away that was not a narcotic. I hate taking the pain pills but there is just not any way that I will ever be able to get off them.
I take Opana ER
Opana instant
darvocet swapped out with percocet.
They all three work very good.
I hope your feeling better by now I know how it feels to have bad reactions to the meds. I do that all the time,.
Welcome to the fibro board. You will meet LOTS of really great people here!!
I have tried lyrica and it did absolutly NOTHING for me. I think I have been on every single med there is....LOL>.......
I am not taking Opana and WOW it helps!! I wish there was something that I could take that would make it ALL go away that was not a narcotic. I hate taking the pain pills but there is just not any way that I will ever be able to get off them.
I take Opana ER
Opana instant
darvocet swapped out with percocet.
They all three work very good.
I hope your feeling better by now I know how it feels to have bad reactions to the meds. I do that all the time,.
Kimberly"be nice to me or I will sic my ninja monkeys on you"
Wow hon you really have a sensitivity to those meds don't you?! I'm sure glad your sis talked you straight and you are here to tell the tale. When I tried Lyrica and Cymbalta the inserts said suicidal feelings were a possibility with both of them so I made hubby swear to me that he'd keep a close watch on me. We had a dear friend that killed herself after starting some phsychotic meds one time and I've been extra leary and careful ever since. The Lyrica helped but made me gain too much weight and I sure don't need that. So far the Cymbalta has been working and I'll just take what I can get as lonmg as I can get it. Come and visit often we love new folks here.
Hi Suzette,
I can relate to your story. I was on Lyrica for a month at 75mgs. Didn't help much so she went to 150mg, well that's when my problems began. First my feet were full of edema, then it started to move up, and finally all the way to my knees. I was in so much pain I was crying, and had to be rushed to the ER. It was there they told me I was going into Congestive Heart Failure. I balled my eyes out I was so scared. Here I am 54 years old, and going into CHF!. She was concerned also that the fluid would break through my skin that's how swollen I was. Needless to say I no longer take Lyrica, but now take Lasix 60 mg, along with Potassium. It took months for me to get back to normal. All I remember is the pain, and walking was out of the question, without help from a cane or someone helping me.
I am on Cymbalta, but I don't feel it's helping me at all, and my Dr' doesn't want to give me anything else since my pain will eventually get worse, and when that time comes, and it's coming, he wants it to work. I have more bad days than good now, and I am so frustrated since I find myself needing more help just to do small things around the house, and getting in, and out of my car. Sometimes getting dressed. I still have days where I can put sneakers on, so I have slippers that Velcro over for my different size feet never being the same since I had edema.
Trust me I have had days too, where I was in so much pain I wanted to take all my med's, but then I felt selfish, and couldn't do that to my family, so here I am still battling pain.
I tell people all the time if you don't walk in my shoes you can't understand the pain.
I am waiting for a surgery date, but I know that even losing weight won't help Fibromyalgia. I have 2 skinny sisters who have it, and they have a lot of pain too. For other medical reasons I am having surgery for, plus I am not ready to kick the bucket yet.
Keep in touch, and best of luck
Debbie
I can relate to your story. I was on Lyrica for a month at 75mgs. Didn't help much so she went to 150mg, well that's when my problems began. First my feet were full of edema, then it started to move up, and finally all the way to my knees. I was in so much pain I was crying, and had to be rushed to the ER. It was there they told me I was going into Congestive Heart Failure. I balled my eyes out I was so scared. Here I am 54 years old, and going into CHF!. She was concerned also that the fluid would break through my skin that's how swollen I was. Needless to say I no longer take Lyrica, but now take Lasix 60 mg, along with Potassium. It took months for me to get back to normal. All I remember is the pain, and walking was out of the question, without help from a cane or someone helping me.
I am on Cymbalta, but I don't feel it's helping me at all, and my Dr' doesn't want to give me anything else since my pain will eventually get worse, and when that time comes, and it's coming, he wants it to work. I have more bad days than good now, and I am so frustrated since I find myself needing more help just to do small things around the house, and getting in, and out of my car. Sometimes getting dressed. I still have days where I can put sneakers on, so I have slippers that Velcro over for my different size feet never being the same since I had edema.
Trust me I have had days too, where I was in so much pain I wanted to take all my med's, but then I felt selfish, and couldn't do that to my family, so here I am still battling pain.
I tell people all the time if you don't walk in my shoes you can't understand the pain.
I am waiting for a surgery date, but I know that even losing weight won't help Fibromyalgia. I have 2 skinny sisters who have it, and they have a lot of pain too. For other medical reasons I am having surgery for, plus I am not ready to kick the bucket yet.
Keep in touch, and best of luck
Debbie
Suzette,
yes we are all different and we all have a combination of med's and they all work so different.
I had severe suicide feelings a month ago, which is NOT ME and thank God I talked to my family. the only different thing was that i had been on Trazadone for 2 months and that I had a lot of stress. So my doc said she didn't think the trazadone would do that but we stopped it any way.So faR SO GOOD. It scares me to think I was so convinced that suicide was the thing to do and had convinced myself so much. It scares me because that is the opposite of what i feel and tell the teens i work with.
My point is we really never know what med's are going to do and need to have family, friend, some one that you can trust tell them your on something new so they can watch you.
It is all scary stuff!!!
yes we are all different and we all have a combination of med's and they all work so different.
I had severe suicide feelings a month ago, which is NOT ME and thank God I talked to my family. the only different thing was that i had been on Trazadone for 2 months and that I had a lot of stress. So my doc said she didn't think the trazadone would do that but we stopped it any way.So faR SO GOOD. It scares me to think I was so convinced that suicide was the thing to do and had convinced myself so much. It scares me because that is the opposite of what i feel and tell the teens i work with.
My point is we really never know what med's are going to do and need to have family, friend, some one that you can trust tell them your on something new so they can watch you.
It is all scary stuff!!!
You know Pam, what I have discovered is soooo many of us have bad reactions to the Meds they give us to help..It has to be part of the disease. Wonder if there have been research on that. I will always be here for you when you need a friend. Just email me(I try to chk my mail most mornings and I will call you back if you want to leave me your #.
It is scary when we feel worthless and that our families and friends and husbands would be better off without us. When the pain takes over and we dont know what to do.
suzette
[email protected]
It is scary when we feel worthless and that our families and friends and husbands would be better off without us. When the pain takes over and we dont know what to do.
suzette
[email protected]
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