opinions on fibro

BIRDYLADY
on 2/20/09 8:59 pm - GA
Hi there fibromites.....
I got a question for all of you that have Fibromyalgia...;....
My answers are below........Join in

How many of you have had fibro since you where a child? I have been suffering from Fibro since I was around 4-5 years old. I remember my step dad wrapping me in hot towels to try and ease the pain. He tried so hard to help and my mom always went against him to try and make it worse.
How far back can you remember having this horrid pain and did your parents help you by taking you to the doctor? I was taken to the doc when I was little on rare occasions. They where told I had growing pains, juvenile arthritis the beginning forms of MS, rheumatoid arthritis and this was all at the age of 4-10. Then it became it was the beginning of my body trying to cope with being bi-polar and coping with being tortured by my mother. Once they caught on to her she stopped taking me to get help so I was left to suffer.

How many of you have had it for only a couple of years? I do not believe you can "catch" it. I believe you are either born with it or your misdiagnosed.....That is only my opinion so please do not get mad at me for saying that. I mean no harm....

How many of you have been told you caught it by having an accident or some form of trauma? I was told that recently by a rheumatologist. I do not agree with him because I remember suffering from it as a child. I do not believe it is trauma induced...

OK that's my answers anyone want to join in??/? Please remember the answers above are my OPINIONS only. I am not judging any of you or trying to tell you you do not hurt they are just my opinions based on my past.....
Kimberly"be nice to me or I will sic my ninja monkeys on you"
   
 
Hislady
on 2/21/09 1:55 pm - Vancouver, WA
Oh goody I get to answer first!!!
1. I don't recall having any particular pains as a child maybe cause I was a rough and tumble tom boy type and got enough exercise that it didn't bother me then.
2.My earliest recollections of it were in high school when I just seemed to take longer than most to get over aches and pains. Parents didn't take me to docs for it but I didn't really complain about it cause I thought everybody must feel like this.
3.I'll combine 3 and 4 because I think it may be possible to have it be induced by a severe enough trauma because any trauma causes your whole system to go berserk. I don't think most cases are caused by that and I think you probably need to have a pre disposition to getting it. Some folks may be like I was and just figure that everybody feels that way until a trauma to the system makes it more noticable.
 And for what ever reason we have it, it stinks! I guess God only gives it to those of us who are tough enough to handle it!
BIRDYLADY
on 2/21/09 7:02 pm - GA
You are so right!! he only gives it to us hardy folks huh.....LOL....
I think you might be right on #3 that most people who notice it later in life must have a predisposition to getting it. I think that makes alot of sense.
I was a tom boy when I was little but I was also a whiner.....LOL....still am if you ask my daddy!!!
anyhooo thanks for joining in! 
talk to you later on
Kimberly"be nice to me or I will sic my ninja monkeys on you"
   
 
PappiDSco
on 2/22/09 7:31 am - Cramerton, NC
I haven't been diagnosed, but I did always have pain somewhere as a kid.  I was never taken to the dr because it was always called growing pains by my folks.  I hurt particularly after significant exercise and that was blamed on my weight.Seems like now that I have an appointment I'm more anxious than ever.  I've read many posts from many different sites and it all seems to fit.  We'll see I guess...as long as I get some relief from this constant hurt.
MainePam
on 2/22/09 7:30 am - Bucksport, ME
I do remember being tired ALL the time. I rode my bike played badmitton for hours, roller skated for hours so maybe that helped.
I think trauma or stress can make it flare and be worse.
(deactivated member)
on 2/22/09 3:58 pm, edited 2/24/09 3:30 pm - AZ
I would have to say I just getting Fibro ,maybe when I was about 8 to 10 years old. I had those same growing pains and I still have them at age 47. I ache all over and it is in the same spot on each side of my body. My Hematologist said I must of had in in Elementary School. When I was in high school I missed alot of school to all this pains I was having. My sister at the time was a RN and just said I was a baby and whiner plus a hypochondriac. She still calls be a hypochondriac till this day. My high school did not want to graduate me because I hardly went to school but I managed to keep up with my school work and pass everything. So back than they did not have a leg to stand it. When I started my first job after high school I missed alot of work and was suspended all the time and some jobs that I did  go I  would go into a fibro fog and thought I was drugged out of it, but I did not take anything for the pain.. I had alot of migraines growing up and when I had my first job at a local hospital as a nurse's aide. The doctors say working midnights and it thur my body out of sync. I had to go on day shift and rarely had migraines maybe 2 to 3 times per year. Compared to almost every night. I have fibro big time now and have tried to go back to work several times for various friends in my field  as a Coding Specialist and I could not cut it. I was given tons of chances and I blow it each time. It sound like I was on drugs but was not on them at the time. I think something else plays a part into it I was raped 2 times at camp when I 13 years old. It was a night mare for me. I kept crying to my parents I wanted to come home and I was out of state and they said that they paid good money for me to go to this good christian camp. I never told them what happened because I think it was my fault. But it was not I was 13 and the boy was 16 years old. I was scared to death for the week. I was to embarrassed to tell any one. I block this whole rape out till I was about 22 years old and than really had a nervous break down. I had a tons of therapy for over 20 years but those same issue about men are coming up for me because men are asking me out and flirting with me and acting like gentlemen. I get really scared of them and don't know how to act. I think they all just want sex again. When I came back from camp I hated all men including my Dad and brother. I was so ashamed of my self but did not know why I was acting mean toward them in this way. I know I will have to go back to therapy again because I will be nearing my goal weight in a few months. I just don't know what to do. I think I had fibro as a kid than I had a few trauma and assaults to my body as a 13 year old. I hope there is hope for me someday because I would like to have a boyfriend and get married some day. What do you guys think ?
Thanks,
Dawn 
BIRDYLADY
on 2/22/09 7:00 pm - GA
Dawn,
Sweety I am so sorry you had to go through that!!! Plus have noone to help you deal and cope with the burden of it!!
I do think there is hope for you!! I think there is hope for all of us fibro people! You have to understand and believe that there is a man out there that will not hurt you. Once I let go of my fear I met the man of my dreams. I went from being abused at home to being abused in my first marriage. I thought it was normal cause hell I got it at home too.I stood up one day and said enough is enough. a year later I found my husband Dan and the rest is history. You will find that man you just got to have faith and open up a little. Trust me the man for you will NEVER hurt you. My husband will tear up in a second if he thinks he hurt me. You have to figure now this is a big STRONG burly macho soldier man!! That turns to jello if he thinks he hurt me. His heart is pure gold and I could not ask for a better man!! That same kind of man is out there for you but you have to let go of all the bad stuff first. I did that by seeing my shrink. I LOVE my shrink......LOL>......he is amazing!!!!
anyhooo I got to get my kids up for school. PM me lets talk ok??
Kimberly"be nice to me or I will sic my ninja monkeys on you"
   
 
Mrs. Scarlet
on 2/24/09 10:01 am - KS

 Hello!  I think I have had it my entire life, and the fond memories start with horrible headaches.  my parent took me to MANY doctors and specialists....but I was not diagnosed until I was 17.  I was SO happy that they had a NAME for what I had!!  I had one tell my mother and I that I needed to see a therapist because it was all in my head. (Screw them, I knew It wasn't in my head..lol)

I had a bad car wreck when I was 16 that made things a lot worse...but that car wreck was the best thing that could have happened to me as far as a diagnosis. It made the doctors dig deeper and it was actually an orthodontist that first suspected I had it. Once we knew what it was, we (my family and I) could learn how to deal with it.   I DO think I have had this for a very long time, but I also think it got a lot worse because of the car wreck.  

alchemist405
on 2/25/09 3:35 pm
I have had fibro forever, along with depression.  My parents started to worry about me long before I did.  Back in those days (I am 51 now) there was no such thing as "fibromyalgia" or "depression."  I started to get very concerned when I was 18 and in my first year of college.  They discovered my thyroid was out of whack and after taking care of that, I went from somebody who could eat anything (all day long and keep up with the football players in college) to somebody who had to be more careful about what I ate.  Oh, and most importantly, by the way, the thyroid surgery did NOTHING to help with my "fatigue" - such a mild word, when all out exhaustion is a much better description.  Today, I would say I go from terrible days to days when I can tolerate the pain and fatigue.  It is a very tough row to hoe.  Just once in my life I wish I could wake up feeling rested and alive - and normal.
lindaS.
on 3/18/09 9:09 am
I would like to make comment on the last sentence here. This is How I feel ALL the time, and didn't realize that other people felt the same way!! I suppose, having dealt with Depression for many years didn't help either! I pretty much have that under control, I think, but I guess it doesn't help having Arthritis, Tendonitis and Burstitis in my left are either. The Upside to it all is, I have had the Gastric Bypass, one year and five months ago, and have now lost 157 pounds! Not much longer and I will be OFF my Diabets med's and that will be a Happy Day! Looking to have a Final Goal of 180 pounds and am hoping to achieve that in the next nine months! Anyhow, Good luck to you in everything, thanks for letting me reply here!
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