opinions on fibro
1. How many of you have had fibro since you where a child?
I was not diagnosed until this year but I have had stress related illnesses since childhood.
2. How far back can you remember having this horrid pain and did your parents help you by taking you to the doctor?
I remeber in grammer school, 5 th or 6th grade having severe bowel pain that was presumed by a GI doc to be IBS. I also spiked fevers when stressed. These, along with other issues did prompt my mom to take me to the doctor but nothing was done except they thought I was a hypochondriac.
3. Huh?
4. How many of you have been told you caught it by having an accident or some form of trauma?
As I said, I believe I have had it for a long time BUT I have definetly recieved head trauma (horse back riding all my life, numerous concussions) before first symptoms. No blood relatives have any similar diseases.
I was not diagnosed until this year but I have had stress related illnesses since childhood.
2. How far back can you remember having this horrid pain and did your parents help you by taking you to the doctor?
I remeber in grammer school, 5 th or 6th grade having severe bowel pain that was presumed by a GI doc to be IBS. I also spiked fevers when stressed. These, along with other issues did prompt my mom to take me to the doctor but nothing was done except they thought I was a hypochondriac.
3. Huh?
4. How many of you have been told you caught it by having an accident or some form of trauma?
As I said, I believe I have had it for a long time BUT I have definetly recieved head trauma (horse back riding all my life, numerous concussions) before first symptoms. No blood relatives have any similar diseases.
I got a virus as a child, one that no one could diagnose. It lasted for a long time, doctors could not figure out what it was. Spent alot of time in hospital for tests and at the doctor.
From then on I had pain.
Flare ups from hell.
It got worse after RNY not sure why.
ETA: My mother(she passed away now) and sister both have it as well. I believe it's genetic.
From then on I had pain.
Flare ups from hell.
It got worse after RNY not sure why.
ETA: My mother(she passed away now) and sister both have it as well. I believe it's genetic.
445/425/123/1??
brachioplasty 7/11/07
Breast reduction/lift and axilla repair 9/5/07
Mons reduction and L arm brachioplasty repair 01/02/08
Tummy tuck with Anchor cut 3/12/08
Lower body lift TBA
brachioplasty 7/11/07
Breast reduction/lift and axilla repair 9/5/07
Mons reduction and L arm brachioplasty repair 01/02/08
Tummy tuck with Anchor cut 3/12/08
Lower body lift TBA
Hello friends. My name is Terry. I haven't posted to this board before, in fact, I don't post much at all. I'm mostly a lurker. Kind of shy, I guess! Anyway, here goes . . .
1) How many of you have had fibro since you were a child?
I don't know whether or not I had fibro as a child, but I do believe I had arthritis, and I know I had depression. I also had some pretty bad growing pains in my legs.
2)How far back can you remember having this horrid pain and did your parents help you by taking you to the doctor?
My earliest memory of pain was when I was in elementary school. I was a true tomboy and a very active child. My parents didn't take me to the doctor because they thought it was just growing pains. My mom told me that I had problems with my knees when I was young, but she doesn't remember what the condition was called. The condition had something to do with having holes in my kneecaps (?).
3)How many of you have had it for only a couple of years?
I was diagnosed in my 40's (I am now 50) and had what I considered a mild case. I was still working and functioning well.
4)How many of you have been told you caught it by having an accident or some form of trauma?
I have been told that fibromyalgia can be a result of repetitive injury, viruses, or severe stress. I've even been told that having a hysterectomy can bring on fibromyalgia.
I have repetitive stress injuries that resulted in 2 bulging discs in my neck, and calcific tendonitis in both of my shoulders. I had mononeucleosis when I was in high school, and pneumonia and a hysterectomy in my late 30's. Finally, in my late 40's, I had so much pain that I ended up in pain management for 2-1/2 years. I was extremely stressed from overwork (resulting in the repetitive injuries) and pain which exacerbated my fibromyalgia so bad that I ended up having to give up my career in accounting, and go on social security disability.
I believe that all of these things contributed to my developing fibromyalgia, but it was the repetitive injuries and extreme stress that changed my life completely.
Terry
edited to correct grammar and to introduce myself
1) How many of you have had fibro since you were a child?
I don't know whether or not I had fibro as a child, but I do believe I had arthritis, and I know I had depression. I also had some pretty bad growing pains in my legs.
2)How far back can you remember having this horrid pain and did your parents help you by taking you to the doctor?
My earliest memory of pain was when I was in elementary school. I was a true tomboy and a very active child. My parents didn't take me to the doctor because they thought it was just growing pains. My mom told me that I had problems with my knees when I was young, but she doesn't remember what the condition was called. The condition had something to do with having holes in my kneecaps (?).
3)How many of you have had it for only a couple of years?
I was diagnosed in my 40's (I am now 50) and had what I considered a mild case. I was still working and functioning well.
4)How many of you have been told you caught it by having an accident or some form of trauma?
I have been told that fibromyalgia can be a result of repetitive injury, viruses, or severe stress. I've even been told that having a hysterectomy can bring on fibromyalgia.
I have repetitive stress injuries that resulted in 2 bulging discs in my neck, and calcific tendonitis in both of my shoulders. I had mononeucleosis when I was in high school, and pneumonia and a hysterectomy in my late 30's. Finally, in my late 40's, I had so much pain that I ended up in pain management for 2-1/2 years. I was extremely stressed from overwork (resulting in the repetitive injuries) and pain which exacerbated my fibromyalgia so bad that I ended up having to give up my career in accounting, and go on social security disability.
I believe that all of these things contributed to my developing fibromyalgia, but it was the repetitive injuries and extreme stress that changed my life completely.
Terry
edited to correct grammar and to introduce myself
Hi Terry,
I was diagnosed with Fibro when I was in my early 20's, and I am 54years old now. Back then it was really difficult to deal with since the medical field didn't consider Fibro as a medical issue, but a psychiatric one. It runs in my family too. I have 2 sisters, uncles, aunts, uncles, and cousins. The pain level is getting worse, but the Dr's refuse to give me narcotics for the pain, because I will just get use to them, and sooner or later they won't work on me. I was taking Lyrica, but I had reactions to it after 2 months. I ended up in the ER, and they thought I had Congestive Heart Failure, because I was in so much pain with Edema. I couldn't even walk, and I was crying I was in such bad pain, and never mind scared when the Dr. told me that. It took a long time to get rid of my fluid, so now I am on Cymbal which is useless, and 300mg of Neurontin 3x's a day.
I also suffer from tendinitis everywhere, and have had 4 surgeries so far, and possible looking at my 5th on on my left shoulder. I have days where I use a cane. Days where I need help getting out of bed, dressing myself, getting in, and out of the car. Well you name it, and that's me. It's the worse thing to have for such a long period of time as myself, and then to live the rest of my life with it.
I was wondering if having WLS, and losing a lot of weight helped any? Somehow I doubt it since my sisters, and everyone else in the family are all small, and tiny people. I ended up being like my father's side of the family, what luck?
Oh, I have a L5 slip disk, osteoarthritis, and osteopenia.
All I know is that I suffer with pain on a constant daily basis, and let me tell you there have been days, I think if I could of gotten out of bed I would of taken all my med's. Stupid I know, but know one understands what pain can do to a person, and their thinking when you have a bad day, and can't take it anymore.
I am hoping to have gastric Bypass in June, so I wait till then to see.
I am glad that you are on this board. I am really new to OH, and it really has helped me so much since the small amount of time I have been here.
Thanks for your story,
Debbie
I was diagnosed with Fibro when I was in my early 20's, and I am 54years old now. Back then it was really difficult to deal with since the medical field didn't consider Fibro as a medical issue, but a psychiatric one. It runs in my family too. I have 2 sisters, uncles, aunts, uncles, and cousins. The pain level is getting worse, but the Dr's refuse to give me narcotics for the pain, because I will just get use to them, and sooner or later they won't work on me. I was taking Lyrica, but I had reactions to it after 2 months. I ended up in the ER, and they thought I had Congestive Heart Failure, because I was in so much pain with Edema. I couldn't even walk, and I was crying I was in such bad pain, and never mind scared when the Dr. told me that. It took a long time to get rid of my fluid, so now I am on Cymbal which is useless, and 300mg of Neurontin 3x's a day.
I also suffer from tendinitis everywhere, and have had 4 surgeries so far, and possible looking at my 5th on on my left shoulder. I have days where I use a cane. Days where I need help getting out of bed, dressing myself, getting in, and out of the car. Well you name it, and that's me. It's the worse thing to have for such a long period of time as myself, and then to live the rest of my life with it.
I was wondering if having WLS, and losing a lot of weight helped any? Somehow I doubt it since my sisters, and everyone else in the family are all small, and tiny people. I ended up being like my father's side of the family, what luck?
Oh, I have a L5 slip disk, osteoarthritis, and osteopenia.
All I know is that I suffer with pain on a constant daily basis, and let me tell you there have been days, I think if I could of gotten out of bed I would of taken all my med's. Stupid I know, but know one understands what pain can do to a person, and their thinking when you have a bad day, and can't take it anymore.
I am hoping to have gastric Bypass in June, so I wait till then to see.
I am glad that you are on this board. I am really new to OH, and it really has helped me so much since the small amount of time I have been here.
Thanks for your story,
Debbie
Sweet Debbie,
I completely understand everything you said. I also have pain every day and have thought that I didn't want to go on with my life because I had such a poor quality of life. It looks like we have a lot of the same conditions, only I think yours are worse than mine. I also have tendinitis in both my shoulders and my Achilles tendon, but I haven't had any surgeries. The doctors say that it's not bad enough for surgery, but bad enough to cause me chronic pain. I also have two bulging cervical discs and the doctors say the same thing. Sometimes I think that having multiple pain conditions makes the fibro much more difficult to manage.
I was diagnosed in my mid 40's and I am now 50. I have had pain all of my life though, but I was able to function well. It has taken over four years (since my condition worsened in 2005) to finally get to a point where I am functioning better. I hope you don't give up hope, Debbie. Just keep trying new things until you find the right combination.
I wish I could tell you that losing weight has helped the fibro, but it hasn't, yet. Losing weight and getting a better combination of meds has helped me to be able to start exercising on a regular basis. I am still hopeful that with losing more weight and getting more conditioned through exercise that I will get some relief. The doctor said it is going to take a while to get in better condition.
I'm so glad you shared your story, Debbie. I look forward to getting to know you and everyone on this board better.
Talk to you soon!
I completely understand everything you said. I also have pain every day and have thought that I didn't want to go on with my life because I had such a poor quality of life. It looks like we have a lot of the same conditions, only I think yours are worse than mine. I also have tendinitis in both my shoulders and my Achilles tendon, but I haven't had any surgeries. The doctors say that it's not bad enough for surgery, but bad enough to cause me chronic pain. I also have two bulging cervical discs and the doctors say the same thing. Sometimes I think that having multiple pain conditions makes the fibro much more difficult to manage.
I was diagnosed in my mid 40's and I am now 50. I have had pain all of my life though, but I was able to function well. It has taken over four years (since my condition worsened in 2005) to finally get to a point where I am functioning better. I hope you don't give up hope, Debbie. Just keep trying new things until you find the right combination.
I wish I could tell you that losing weight has helped the fibro, but it hasn't, yet. Losing weight and getting a better combination of meds has helped me to be able to start exercising on a regular basis. I am still hopeful that with losing more weight and getting more conditioned through exercise that I will get some relief. The doctor said it is going to take a while to get in better condition.
I'm so glad you shared your story, Debbie. I look forward to getting to know you and everyone on this board better.
Talk to you soon!
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