What doc do you see for Fibro?

penthilisea
on 2/14/09 10:11 pm - Milford, NJ
Rheumatologiast? Neurologist?
I ask because my aunt, an RN, suggested an Immunologist.
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Mal: "Well, my days of taking you seriously are certainly coming to a middle." "Everything was beautiful and nothing hurt" Kurt Vonnegut Jr.

BIRDYLADY
on 2/14/09 10:43 pm - GA
First you see a rheumatologist and get diagnosed and then you see a pain specialist......
Kimberly"be nice to me or I will sic my ninja monkeys on you"
   
 
Hislady
on 2/15/09 7:36 am - Vancouver, WA
Yep what Birdlady said, I started with my PCP and he is pretty up to date medically so I haven't needed to see a rheumatologist but if I were starting the journey for treatment I would start there and then if they feel you need more help managing it they may send you to a pain clinic. I'm starting a pain clinic again for back issues but I'm sure they will address the fibro too. Never heard of anyone going to an immunologist for fibro don't really think that is a specialty of theirs. Maybe different where you and she live.
penthilisea
on 2/15/09 8:01 am - Milford, NJ
I started my journey at a Rheumotologist, however he was extremely callous about pain management. SO now I am working with a regular general practicioner, however it;s a constant struggle to educate and inform and not be looked at as a drug seeker. I am also sans insurance and unemployed, so thats tough too. My doctors office keeps trying to force anti inflammatories on me, and i am so worried about ulcers, plus the meds don't help at ALL.
The other thing that came up was an a negative interaction between Cymbalta and Ultracet, which the regular doc tried to prescribe me. The pharmacy wouldn't fill it because it had an issue, but the doc KNEW I took Cymbalta, so either she didn't even look for interactions or she didn't care.


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Mal: "Well, my days of taking you seriously are certainly coming to a middle." "Everything was beautiful and nothing hurt" Kurt Vonnegut Jr.

(deactivated member)
on 2/17/09 4:43 pm - AZ

I was diagnosed a long time ago by a Rheumatologist. Than I also saw a Neurologist. But those can be expensive co-pays that I can't afford on disability and they really did nothing for me. I see my pain specialist every 2 months. I also go to my Fibro doctor that just specializes in Fibro. He does all the OMT (Osteopathic Manipulation Technique) work on my trigger points. I go every 2 weeks and he is of great help. He is a professor at Midwestern University in Glendale, AZ. I use to go every 2 months but I was worse with pain. But my insurance considers him a Family Practice doctor and not a Specialist even tho he is and my co pay is only $5.00. My PCP is also a Fibro Specialist but he gets the $5.00 copay also. I have a medicare advantage plan thru Secure Horizons HMO complete plan 3 and works out good for me this year. When you have a medicare advantage plans you can change 2 times per years.  Any Doctor of Osteopathy College will have Professors that have their own practice. I really think they understand us patients good and they do research all the time. There is also the main campus of Midwestern University in Chicago. If anyone has any question please PM me and I will be happy to answer any questions.

Dawn

penthilisea
on 2/18/09 2:09 am - Milford, NJ
My PCP is a joke. Next is a pain management doctor, if I can ever get an appointment.
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Mal: "Well, my days of taking you seriously are certainly coming to a middle." "Everything was beautiful and nothing hurt" Kurt Vonnegut Jr.

jenner76
on 2/19/09 12:08 pm - MI
I am 33 and have pain for quite some time.  They have always shrugged it off to me being overweight.  I had lapband Jan 2008 and I have losgt 83 pounds and what do you know I still get pain...imagine that...lol.  Anyway to answer your question.  I was diagnosed this past summer.  I am a CMA and my husband a Physical Therapist so between the both of us we have been in the medical field for over 12 years.  PCP's now days generally don't like to handle too many specialized issues...that is where the specialists come into play.  You sometimes have to be your own advocate.  I referred myself to a Rheumatologist.  They are board certified and they are the ones that have usually advocated for us Fibro sufferers in terms of studies and treatments.  The correct exam for a complete diagnosis usually takes one and half hours to two hours.  As well as having a good history from charts, etc.  I work for a Asthma/Allergy doctor and I am suspecting maybe the reason your aunt reccommended a immunologist is because it is similiar to an auto immune disease...not really sure about that...but that would not be the one to go to.  The pain clinic happens last if the pain is so unbearable and no other treatments have been too successful.  After having a true fibro diagnosis your pcp can refer you to a pain clinic.  If you are having pain in your neck and arms and headaches then you should also get a work up from a neurologist.  I have a neurologist but along with having fibro I have cervical issues as well and degenerative disc disease as well as lesions on the brain...so sometimes I don't know if the pain in my arms and legs are caused from my fibro or the other....lol.  They started me on Lyrica but I ended up having a reaction to it and then switched me to cymbalta which for the most part seems to help slightly and then I take my xanaflex 4mg every night.  Well I hope you find the answers and the relief you deserve.  Good luck!!!

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