Desperate for help, docs wont help me!!

Danielle H.
on 1/6/09 2:07 am - Puget Sound, WA
VSG on 04/06/07 with

Hello, My name is Danielle and I was wondering if you folks might be able to help me. I had a VSG in April of 2007 and got pregnant 6 months later. The pregnancy went fine besides loosing a ton more weight and hardly being able to keep food down for most of the time.  3 months post partum I have developed numbness and tingling in my hands and feet and sometimes I have really bad pain in my spine with zappy feelings in my back. My muscles feel weak sometimes and twitch a lot.  I feel overwhelmed with depression and sometimes have full blown panic attacks. I am afraid I am dying.  The soles of my feet and my hands turn bright red and feel so numb sometimes.  I lost the tastebuds on half of my tongue (They grew back in a week) and get white patches inside my right cheek (Like I bit my cheek while chewing).  I get a rash on my arms when I carry something. Not like a raised bumpy rash, but a rash like under my skin,blotchy red. It goes away in a few minutes. I wake up at night in a panic and have a hard time going back to sleep. I get dizzy when I first stand up and I get constipated a lot.(sorry, TMI) Also my hands and feet get cold a lot. I am losing hair like crazy. I have dry skin and chapped lips chronically. My hands shake a lot too. Sorry this is so scatterbrained sounding, that is just how my brain is lately. I have three children, only one was born post VSG. I read that weight loss surgery can sometimes bring Fibromyalgia on in patients. Did I doom myself? Or does this sound like something else?

The only thing I have been told is I may be deficient in some vitamins. I admit I have eaten not good since surgery and I havenot take a vitamin regularly since surgery. Any feedback is so appreciated!!!

Thank you! 

I have had MRI's on mt brain and neck. I have seen a neuro and Chiropractor.  MRI's were normal, only one small cyst that doc was not concerned about.

mac1
on 1/6/09 2:26 am - Christiansburg, VA
Your symptoms don't really sound like fibro to me.  With fibro, you normally ache all over (kind of feel like you have the flu).  You do sometimes have depression with fibro and trouble concentrating (fibro fog), but your symptoms sound more like a vitamin deficiancy.  Can you get your doctor to do bloodwork? 

 

 
HW 265/CW 127/GW 130  4/1/10

HW 265/CW 141/GW 125  6/22/11

Extended TT 2/10/10

(deactivated member)
on 1/6/09 2:49 am - Humboldt, CA

DANIELLE!
EGADS! girl, get yourself to a PCP, get some bloodwork done. This is NOT a "what do you think, guys" message board kinda' issue. Don't orphan those pretty babies of yours. Haven't eaten well and not taking viatamins?? What, you wanted to get skinny but not healthy?!
COME ON! You are smarter than that.
Your depression must really have you down, sweetie. I'm so so sorry to hear you aren't doing well. I like to assume when people aren't on the board it's becuase they are too busy with new life...
Sounds like you've definitely been busy, but needing support.
I hope you will call your PCP TODAY and get in to see them SOON!
You've got to take better care of yourself than this.
Let me know how it goes.
xoxo
MC

Danielle H.
on 1/6/09 3:13 am - Puget Sound, WA
VSG on 04/06/07 with

Oh Mary! I started crying as soon as Isaw your picture. I wish I could just hug you. I am sooooo scared!!  I have been to my doc, and they did do bloodwork, they told me that I could use some iron and vitamin b. So I am now taking iron and vitamin d tablets and I feel no better!!!  I am just so scared I am dying.

A lady at church said maybe I had Multiple sclerosis or Fibro and I am a wreck ever since. I never thought of it.  Could I have brought this on myself?!?!?

What are you doing in this forum? Please tell me ou are just here offering your awesome encouragement to others?

(deactivated member)
on 1/6/09 12:49 pm - Humboldt, CA
Sweetie girl!
When they re-did the OH website it changed how I see stuff...I had gone up into the "MY OH" place to change my signature line and when I go there it shows pics/activity of people on my friends list and I saw your post and I thought "OMG! What's going on with Danielley??" Then I read your post. It's scary! I can see why you are freaked out! 
You have to advocate for yourself! I know how hard it is to do when you are depressed too, but you love your family too much to just be freaking out. You need to tell your Doctor that you aren't feeling any better and to find someone to make you so! And if he doesn't think it's any big deal than you need to find a better doctor. There is NO excuse for a doctor to dismiss your concerns and symptoms.
Oh, I wish I was there in WA for you. Those are some serious symptoms you wrote up. I'm low on iron myself and taking it doesn't make me feel any different--but hopefully my number will go up.
Have you got insurance??  I can't remember.

Shucks, Danielle, I really wish I could do something for you. I need you to know I care very much that you follow through on making your fears known to your doctor.
Let me know how it goes, okay??
Mary Claire

Kathleen T.
on 1/6/09 12:35 pm
Have they ruled out post postum (sp?) depression along with vitamins deficient.
"A Man's heart plans his way, But the Lord directs his steps. 
Proverb 16:9
May not be where I want to be but I glad to be where I'm at.
Working at getting the rest of the way.

12/10/2012 I'll be having LBL, BL/BA, thigh & arm lift, eyelid
Body by Dr. Sauceda    booked to 12/9--12/22
(deactivated member)
on 1/6/09 12:53 pm - Humboldt, CA
Seriously, the tingling and stuff could all be vitamin deficiency...Did your Doc check them ALL??
The constipation is likely due to the iron supplementation (I have it too, unless I take Miralax about three times a week since I'm on iron supplements too).

It is IMPERATIVE that you take your vitamins. I don't care if you ask your husband to feed them to you before he goes to work YOU NEED TO TAKE THEM.
xoxo
MC

Hislady
on 1/6/09 2:57 pm - Vancouver, WA

For heavens sake please don't take something a lady at church told you as medical advise. Neither she nor us can give that type of a diagnosis, I also posted on the WA board but I really don't see you having either of these diseases but you MUST get to a PCP and push to find out what is going on. I doubt very much if it is as serious as MS probably a chemical imbalance of some sort in your system.

Danielle H.
on 1/6/09 3:39 pm - Puget Sound, WA
VSG on 04/06/07 with

Tonight I went to see the "Vitamin Lady" from the OH site here. She is near where I live in Puyallup. Although she is not a doc, she also agreed that what I was experiencing was most likely some sort of vitamin deficiency.  I am going to see a rhumatologist. I have all my bloodwork results here with me and as best I can tell I am deficient in D, Iron and b-12, but it looks like only a little bit. I dont see how a little bit deficient could cause all this ruckus in my body.  Of all I am experiencing the depression is the worst. I have never felt so unable to live, it is like a doom that has settledd in my head and I want to lay down on the floor and just cry until I die.  I have never ever felt this way before. I cannot even smile for my kids, this is very scary.

Thank you all for the support. I really appreciate it now.

AphY Girl
on 1/6/09 10:24 pm

B-12 is a killer... I'd suggest your doctor give you a prescription for the shot.  I don't absorb iron or B-12... B-12 can cause MANY problems, even ones that you have stated (numbness) it has very simular symptoms to MS.

Take care of yourself!

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