sick and damn tired!!!

nancy1996
on 12/19/08 1:13 pm - Macomb, IL
Dear Kimberly,

I understand your plight.  I too suffer from fibromyalgia and it really sucks.  I have found it can go in cycles.  I will have a week or so when my pain isn't too bad.  Those are days I am really grateful.  I am taking cymbalta, lyrica, wellbutrin and hydrocodone.  The pain is always present and some days are better than others.  I just about spit out my water when I read what your shrink said.  Yell at  him/her and tell him he's a quack!  Ask him if you were to take a ball bat to his arms or legs would he want you to talk him through his pain?  Same difference.    
My husband has learned to stay clear of me when I am really hurting.  He's a cuddler, and there are times I want to screem at him for just putting his arm over me at night in bed.  He lovingly understands when I do.  Just understand, they feel helpless.  Most men don't want to see their honey hurting so bad.
I am an assessor and that takes me out measuring properties of every size and shape.  I practically have to force myself to go to work some days.  Thank goodness I don't have to be at the office at a certain time.  I usually get there between 9 and 10 a.m.  Those are my good days.  My bad days I may make it in after lunch if I make it there at all.   I am an elected official and that has its advantages.
We just had our dog put to sleep and when he was alive, he would step on the tops of my feet when he wanted out.  It wasn't too bad at first, but as my "condition" worsened, he had to learn real quick not to do that anymore.  It was bad enough that I would have to get out of my chair to open the door let alone have my feet feel like they were being stomped on by an elephant.
I hope your symptoms ease up for you soon.  It's hell to live in a bubble where you can't stand to be touched.  I'll say a prayer for you tonight.
Gentle Hugs back.
Nancy       
Nancy L
cinnamongirl
on 12/19/08 5:07 pm - Easton, PA

Kimberly,
I just happened to be visiting this site and discovered this message board. I'm a 5yr post-op , so I don't visit as much as I use to .When I read some of the posts about fibro , I immediately felt a kinship or that there was someone else out there that understands what my daily life is like. I found other people that "know what it's like to live through a FLARE UP or just deal with this disease on a daily basis. I'm not alone and I'm not crazy for feeling the way that I do most of the time.
I was diagnosed with this illness as a 2 yr post op and all of my "thin goals" went out the window that day. You see , I was obese all of my life and didn't remember what it felt like to run or skate or just see life through "healthy eyes." My goals included running the NYC Marathon , climbing steep hills, swimming daily, learning to roller blade and just become physically better .......then it happened. My dreams went out the window with this disease and I HATE IT SO MUCH !!!!!!!!!!!!!!!! I've been cheated from finally being able to "enjoy life in a non obese body !"

As an artist I often would paint for hours or as long as I was in the zone so to speak while I was working. Now I can only work for a few hours before my body starts to tire and begin to ache. I too want to cry , vent , kick , scream and just put an end to this suffering (then I'll go into remission for a little while and life is bearable). My family see's what I go through but unless you actually have this disease , you can't understand what we live with.  Thanks for sharing !

sablegsd
on 1/1/09 1:02 pm - Coleridge, NE
I too am so sick of hurting all the time.  The only help I get with my fibro is 3 flexaril muscle relaxers a day.   I have gained so much weight  from depression and lack of activity and also worry about my husbands various illnesses and surgeries I am considering surgery.  I also just found out my thyroid is not working properly and started a pill for that, and of course now diabetis is looming and I am taking glipizide for that.  I have stopped all my mental meds except Ativan, trying to give my liver a break since enzymes were up last time.  A plus is since quitting the lithium for bi-polar, my hand tremors have gone away. :)

I am glad I have found a place where people understand my feelings and fears.
"Dogs are not our whole lives, but they make our lives whole."
Roger Caras
BIRDYLADY
on 1/1/09 8:12 pm - GA
Oh yes we understand perfectly...
are you considering WLS?
I had the RNY I have lost a bit of weight now but HURT more then before!!
I take good meds for ut but damn it is getting OLD fast!!!
Kimberly"be nice to me or I will sic my ninja monkeys on you"
   
 
Susan H.
on 1/2/09 1:58 am - Columbus, OH
I have been dealing with fibro and chronic fatigue 25 year years at least and have been off work on long term disability for almost 2 years now. I hung in as long as I possibly could. It sucks! I just try to take it one day at a time.
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