update on kid with firbo

Well I thought I would update you all on my little one.
She is going in on Dec 22nd to have her tonsils removed. They are hoping that once they get the bacteria an infection ridden tonsils out she will feel a little better. They are now sending her to a rhumetologist to have her diagnosed with Fibro. He said he is pretty sure that is what it is but wants to have a specialist diagnose her with a second opinion. He said it is pretty rare to have such a little one diagnosed with fibro but it is what it is. Please keep my little one in your prayers, I do not know what I would do without her and am scared to death of her going in for surgery. My oldest daughter when she had her tonsils removed her bronchial tubes collapsed and she stopped breathing. She flatlined on the table and they had to revive her, so I am scared to death of a repeat of that. I do not know what I would do without them little blue eyes looking up at me every morning and telling me she loves me all the way to the sky. Then to think she will suffer the pain and agnony that I have had to suffer for the rest of her life with this damn horrid disease that we all suffer from. She is to little and to much of a little angel to suffer this way! I will hush, please keep her in your prayers. Through God all things are possiable.
Gentle Hugs
Kimberly

Saying prayers that your little one will sail thru her surgery and soon feel better. At least she will know what she has and has a mommy to help her thru it. You are showing her that you can live with fibro and that it doesn't have to define you as a person. That with or without it she is still a valuable and precious person. Who knows maybe there will eventually be a cure, maybe she will even discover it!! I wish I had know earlier what I had, maybe it will be easier for her just knowing what it is rather than guessing like so many of us did for years. Best wishes to you both.

Hi there,
Thanks for the kind words. Ya know I think your right that she might be better off knowing what she has. I never thought of it that way.
Thanks for the prayers, we need all we can get right now!!
Best wishes
Kimberly

Hello,  My daughter began exhibiting symptoms as early as 5.  She had muscle aches and pains and we were told it was just growing pains.  At 7 she had a grand mal seizure and then began having severe migraines.  So they diagnosed her with migraines.  She has never had another seizure, but has had many many migraines and continued to have multiple fibromyalgia symptoms.  She has the insomnia, muslce aches and pains, confusion, brain fog, muscle tightness, cramps, roving pain, lethargy, etc, etc.  So last year at age 16 it was unbearable.  She could no longer go to high school.  The high school refused to work with her because she was undiagnosed and it was probably just laziness.  Not Her.   She is the best kid in the world.  Anyway her pediatrician said it is rare for a person her age to be diagnosed with fibro but that is what he believes she has.  He sent her to a rheumatologist last January of 08 and bingo he says she has it. So now after 10+ years we have a diagnosis.  They said it seems to be hereditary.  I have it but have never been diagnosed.  Two of my cousins have it.  I believe my mom has it, but she is agoraphobic so doesn't go to the Dr.  My daughter is so glad to know what she has and that it isn't fatal.  She isn't as upset as I am that she has a life long disease.  She says you know mom there could be a cure down the road.  At least I have that hope and the hope that it will just subside.  She has a great attitude.  I think knowing is key to coping.  And if you are more positive for her and about a cure that could help.  I hope it isn't fibro and is instead just the tonsil thing.  PS- My daughter had a healing at church in June of 08 and says she feels 80% better.  If you have a church you belong to ask about some sort of healing hands on praying for your daughter.  Staci