My husband doesn't understand how much pain I am in!

Help, my husband, no matter how many times I have tried to explain, doesn't get Fibromyalgia at all.  He has friends who have it and he seems to have compassion and empathy toward them, but he tells me to "buck up" and get over it.  Grrr! Is there any place on the internet that is for the family of fibro victims that can help them understand?  I am on the verge of slapping him on the side of the head!  Not really, but I am getting really frustrated with him.

if you go back a page or 2 on this forum, someone posted  a letter the the "normals".. it really struck me and I wish I could just hand it out to everone I know....  And I honestly believe he won't ever fully understand.... unless he has gone through it, men need physical evedence to see for them selves..... Good luck! (((hugs))) Aimee  

I sorry your HB doesn't understand the pain. My HB lived the pain with me for 26 yrs. and we had  young kids in the house at the time.  I'd sleep and sweat for days and day's in my sleep he would undress me and put on a clean gown or PJ's Cook and made sure I eat something. Most of the time he had to come and sit on the bed to make sure I was eating I would put food in my mouth and would not eat and it would still be in my mouth when he  comes back. So he stay until I was finish. He haul me to so many Dr's offices trying to fine  out what was wrong with me. And we had a Daughter that had Sickle Cell Diease.  When she fell sick I had to drag  out of bed on the day's he went to work to take care of her. It was hard when he came home he would start back with me and my daughter. The older daughter had to help with me and her sister until I went to one Dr. that kept going until he found a arthis(sp?) Dr. that found out what was wrong with me. I'd had lost so much weight when I first fell ill I thought I had somekind of MS diease.  I cry some much after they put a name to it even though there was nothing but meds to control it.  I could now take care of myself,sick daughter,  my older daughter could  be a kids again and the HB to get plenty of rest. This is as real as real can get and I would not wish this on my worst enemy. That how bad I remember the pain. The pain of having the babies didn't feel that bad you knew in a few hour it would be over. With this there is no end. It has been year since I've felt this miserable(because I'm have taking the meds.) feeling so good from the weight lost now my cell phone rings 4x aday to remind me to take the meds. Now I have to start at the begin to control  this problem again.  Tell him to listen to his friend pain just maybe. Good Luck at making him understand, If you see my house you think a crazy person live here.  Going to have to find someone to help me finish putting up the Christmas things and finish the closet then maybe I can get some rest. Kathleen 07/02/2007

 I can totally relate. My DH is getting a little beter. But there are days that he comes over for a hug and it almost makes me cry. This has been going on for 4 or 5 years.  The pain we experience is so bizarra!  I moves around, cramps, legs don't want to work... I can see how hard it is for some but we can 't do much about it!  spouses and kids might need things, but many days there i just NOTHING  Ican do. My best remedy for me is Tylenol ES, not pushing to get things done, afternoon rest, pool exercies and meds. Hope this helps some. Let's stay in touch.

 

I know how u feel. It really makes u mad when he says "where are u hurting today" after u told him all over.  I am trying to deal with this with just tylenol and its hard. The lyrica made me gain weight and trouble with my eyes. I do take effexor. The pain is horrible. I am a stay home hw and some days i just want to give up. I just got clean from pain pills so that is out of the question. But hang in there i know if i can u can,

I just read your post and had to laugh.  I actually looked up Fibromyalgia support groups and found some close to my home.  If you are serious, just look it up online.  I think I found it through WebMD.com.   In any case, if you were just venting, this is a great place to do it.  We need to support each other through this crap.  God, the pain is unreal.  But I figure if I don't keep moving it will only get worse and I don't want to turn into an old lady before my time!!!   I had a lap band placed in 9/2006 and am almost at goal.  I try to exercise daily and it helps somewhat.  I am afraid of weight gain as I am on Lyrica, but I can't handle the pain otherwise.   Feel free to keep in touch, I will listen to your venting if you will listen to mine!!