Have you had neuro problems since WLS - or seizures?

M M
on 9/18/09 10:46 pm, edited 10/8/09 10:55 am

Eighty one.

Edited 9/26, I've received several more entries since this post, I'm up to 89.
Edited 10/8, 93.


EPicture 21

shoutjoy
on 9/19/09 9:25 pm - Culpeper, VA
Intersting.  This is a first I have heard of it and I've been actively on these boards for nine years.  WOW!  Where did you get your info?


Clueless about weight loss and weight loss surgery of any kind.

    

        
M M
on 9/19/09 9:37 pm
M M
on 9/19/09 9:38 pm
It's mine.

I started having seizures, and immediately thought it was connected to the RNY.

I asked folks to sign a informal registry if they have been dealing with it also.
amrighty
on 9/25/09 7:29 pm - India
Hi,
I live in Bombay India. I wish I had read what you had to say before I went into surgery. I had a band & later replaced it with an RNY that never worked........ I started to gain weight from the first day I stepped out of hospital. It has been over 10 months & I have searched every nook & cranny for information but cant seem to get any answere. I see your posts often & that you are very actively involved in this, so I wanted to ask if you know of anyone who has had such an experience. I have sent my Xrays to the US & the top notch docs say that I dont need a third revision. I eat way too much........... much more than I did before the surgery.
Hope you get better.
myt.
cutepuppy
on 9/21/09 11:22 am - Manhattan Beach, CA
What is happening here?  I am shocked.  It's hard to see a "hero' having such a serious complication.  But,. I know you....it won't go without a thorough investigation.  Your strong will and determination serve you so well.  I am sorry you have this to deal with, and thankful at the same time that you use whatever you have to the benefit of others. 

Walking with you on this journey, Mary
"For I know the plans I have for you, declares the Lord, plans to prosper you and not to harm you, plans to give you hope and a future."


Connie_S
on 9/27/09 10:47 pm - Morganton, NC
I am 3 months post-op, but my program information said deficiencies in some of the minerals and vitamins could lead to permanent neurological damage and seizures.  I'll have to look at the booklet when I get home, but I think zinc and copper were 2 of the culprits.  Good luck!  connie
p.s: If you always do what you've always done, you'll always get what you always got...      
M M
on 9/28/09 4:57 am
I would love to know if that were the trigger, you know?  I have always assumed I had a deficiency and the docs missed it.
Connie_S
on 9/28/09 5:01 am - Morganton, NC
I know.  I will check the education materials I have from my program when I get home tonight and let you know.  I should be able to post tonight, but my dad is in the hospital, so it could be tomorrow.  But I will get back to you.  Take care!  connie
p.s: If you always do what you've always done, you'll always get what you always got...      
Connie_S
on 9/28/09 11:13 pm, edited 9/28/09 11:14 pm - Morganton, NC
Well, I couldn't find any information about seizures in my program packet.  So, I must have come across that in some of the research I did when I was choosing whether or not to have the surgery and I can't find it now.  But I did find a snippet about B12 that I have included here, that may or may not be helpful to you:

Cobalamin (B12) Vitamin B12 deficiency is one of the more common and potentially serious concerns after all types of WLS. The greatest risk is following RNY[i] due to the near complete loss of the stomach, withies of deficiency linked to with DS[ii] and AGB[iii]. B12 absorption is impaired after RNY because the very small stomach pouch does not allow for full B12 separation by hydrolysis. Furthermore, mixing of Intrinsic Factor with crystalline B12 more distally in the small intestine demonstrates intrasubject variability. With DS, the partial gastrectomy appears to be enough to account for deficiency risk.[iv] It is not understood why patients with AGB would develop deficiency, but significant weight loss together with restricted food intake may be enough to account for this. B12 from food or a multivitamin are inadequate to prevent the development of a deficiency[v]. Most surgical practices, therefore, suggest additional B12 in the range of 350 to 1000 micrograms either as an injection or sublingual preparation.    Two-thirds of practitioners routinely evaluate B12 status in WLS patients[vi]. Although some studies have indicated that serum B12 may miss up to 50 percent of deficiencies, it is the most common lab test[vii]. Elevated homocysteine levels and/or methylmalonic acid levels are also reported after all types of WLS, and offer more sensitive B12 test results.    Any patient who presents with signs of neuropathy should be screened with sensitive testing, regardless of self-reported supplementation or recent normal serum results..
If I were you, I would also touch base with Michelle from Vitalady.com.  She had a distal RNY years ago and has a wealth of knowledge which she willingly shares.   Her email is: [email protected].  Good luck!!  connie
p.s: If you always do what you've always done, you'll always get what you always got...      
Most Active
×