Feeling like a FAILURE!

laineer
on 6/15/07 3:19 am - Fort Worth, TX
I have been to 4 docs now in Tx and New Orleans and all of them say there is no problem detected from egds. A colonoscopy found polyps but benign.. I started having pain in June 06. My surgery was open rny NON transected. I now have constipation for several days followed by severe explosive diahhrea ..some that can be up to 25 times in one day. It leaves me exhausted. So far all of the docs say no problems...and I believe they just don't want to touch anyone who needs a revision. I can eat massive amounts of food at one sitting and I am hungry all of the time. For 4 years I lost 100+ lbs and managed to keep all of my weight off and couldnt eat more than 2 to 3 small bites until one night in June that I had severe doubling over pain for at least 2 hrs. I should have gone to the ER but I had just moved to another area and my surgeon was out of town and I felt like going to the ER wouldnt help unless I had a bariatric person to evaluate me. So I beared through the pain and called my original surgeon and went for a checkup in Tyler. He said nothing was wrong based on the upper gi and I didn't find out until just recently by ordering a copy of the upper gi report from the hospital that a hernia was noted on the report and my surgeon didnt even mention it. At that point I asked him if I was transected and he said NO...The way he originally explained my surgical procedure was that it would be. I was furious...I asked him why he did not transect and he just said I wasnt doing them at the time because I didnt feel it was safe...then I asked him if he transected NOW and he said yes...so that was a BIG DEAL to me. I believe that being non transected from what I have read can result in the pouch merging with the old stomach...this is what one doc told me...that little strictures can allow food to flow through. In an upper gi that I had here I saw on the camera as my stomach was pressed in with a flat paddle some fluids flowing and I wasn't sure what that meant. Again, I am not trying to self diagnose but it just doesn't seem normal what I am going through. I have had 3 egds and 2 of the docs said the pouch is slightly enlarged and there is no sld but why after the initial pains came suddenly be able to eat more. Now I have gained 40 lbs back. I threw away all of the clothes that were over a size six and now I am wearing between a 12 and 14. I feel awful. I'm hungry all of the time and it's as if I never had the surgery. I try to eat normal and I do protein shakes. Im just so tired of not knowing why I can eat much more ONLY AFTER THE INITIAL PAIN...I FEEL LIKE MY POUCH IS BROKEN.  I am really confused and angry. I continued to have several episodes of severe pain and in November of 06 began going to docs to determine the problem. I didnt want my previous surgeon to touch me again because I was so mad about the nontransection and his inability to tell me about the hernia that was noted on the upper gi report.  Who the H in Tx will touch a revision and is egd a good measure of detecting problems. Some have said I have a hernia but said it was no big deal. I am so frustrated. I know something is wrong or I wouldn't be able to eat 3 flour tortillas (that isn't something I do all of the time...I did that to test the amounts of food I was able to eat...but I shouldn't be able to if my pouch size is oK and things are normal. For 4 years I was able to maintain my size 6. Now it's not only about the size..it's about my health. The constant diahhrea and pain keeps me exhausted and dehydrated. Sometimes I have green and black bms too.  Help, I am angry with my self and the doctors, my boyfriend...who says he understands but really doesn't. Just needing some guidance...especially on types of tests that can detect adhesions or other issues. Thanks to all of you who have responded. I am posting on the Texas forum also in hope of finding someone who has experienced this and also to find a good doc for revisions if necessary.
ramwelch
on 6/19/07 10:48 pm - somewhere, CT
Hi Lainier, I am sorry to hear you are suffering so much. About all I can do to help you is suggest you look into the bariatric surgeon page here at OH and check Texas, I just did and there are a number of Surgeons that offer Revision listed as  their specialty. I am pre-op so have no personal experience to help with and I am going to get the vertical sleeve gastrectomy (if my ins. co. approves my appeal) so I generally hang out in that forum. I wish there were more I could offer........Best wishes........Marc
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