I greatly respect your pcp for acknowledging that this was something he didn't know how to deal with. Many would have just given you inadequate advice, instead he made a good suggestion about seeking help elsewhere.

Standard vitamins, and even ADEKs, just aren't enough for us. You need to be taking dry A, D, and K separately. ADEKs sound perfect, but contain so little of each component as to be almost useless. If anything they get people into trouble because you think you are supplementing appropriate, but aren't. Also, they don't allow you to adjust each component separately, based on your labs.

B12 deficiency is ususual with the DS as this is not a fat soluble vitamin. Still, it sometimes happens, and you should be able to use the usual otc stuff to correct this.

Beyond this it gets complex, so I'm going to send you a pm with more info.

Larra

Try and find a doctor that will administer injections to get you out of deficit. It maytake more than one. Once you stabilize you will need to take DRY vitamin ADEK supplements and more than you would think you would need.

You need to find a DS doctor right away as you probably have other issues going on. Calcium PTH among them.

Thank you! ð?'?ð?'?ð?'?

I get ya for sure! If our patient/doctor relationship wasn't what it is, I would "Fire Him!" He doesn't see it as abandoning me. He just sees it as agreeing to "not agree!!" For example, our hospital (_____ Hospital). Yes, My Doctor is Dr ____ (same name as Hospital) from a long list of Dr ______!!! (Small town-One Hospital) Anyway, our hospital lab reports Vitamin D as having a range of 30-60. My lab results say that my D is >60. I explain that I need to know the "actual" result. (I didn't tell him that want my D to be at the very least 80 or better yet in the range of 80-100.) He said that is ABSOLUTELY not necessary. He said, "At a result of >60, You need to cut back on D." He doesn't know... that I take 50,000 a day and an extra 50,000 on M/W/Th for a total of 500,000 a week. He would have a cow!!! I asked him to state in his order for the labs that he wants the actual results for Vit D. He said that he didn't know if they would do that... I told him how I had called the lab and was told that if the doctor ordered it they would do it. He didn't write that request on the order which I noticed when I checked out. I asked for someone to ask him to note the request on his order. The nurse took the order and wrote it in herself and initialed it. I get the labs done later this month....who knows ???? In hindsight, I should have ... As the Vets always say.... just smile, nod and do what I need to do. He is TOTALLY FREAKED OUT at the amount of labs that I want. ( I show him about 8 examples of lab requests used by other doctors. They even have the doctor's names on them!!!) He's so afraid that "he" will be held accountable. He said that he wouldn't lie and say that I was deficient when I wasn't. I of course go "on and on" about why I'm not deficient and how I need the labs to monitor how I'm doing. How the labs are a preventative measure. He's afraid that I'll get bills for $1000s of dollars for labs that are not approved. He has reluctantly ordered the labs for years. I don't know why he feels he should take a stand NOW!! ?sad face!

BTW: My surgeon is at Johns Hopkins and is an amazing cutter. (I'm 10+ years out) His staff follow-up is horrible! In his support group, I was told to take Flintstone Vitamins!!!! Really!!!!!!!!! When I went to the NUT, I was treated as a Gastric Bypass patient - RNY. Low fat...count calories...on and on. You know what that means........ yes, I should try again since it's been over 10 years. It's my understanding that they don't do the DS much if at all anymore. It's 3 hours away, but I may go that route and try again!

Well, At this point I'm just rambling. Without DS sites like this one and the 6 sites that I follow on Facebook, I would be lost!!!

I do have one doctor in my small town that has been suggested by someone that I trust. I'm going to meet with her. I'm also going to.... in a nice way tell my doctor that if he can't support me on my journey, I'll need to find another doctor. He's 68 years old, maybe he just isn't able to meet my medical needs any more. By writing all this down for you, I find it very cathartic. It has given me perspective on this issue that is very emotionally painful and consuming. Thank you for helping me in a way that I didn't know I needed! A way that you didn't know would help me. Advise to "Just Fire Him" fell on deaf ears with me. Now, I feel free to make some emotionally comfortable decisions, and It's a "Good Thing" Thank you for opening this door for me. Sometimes, just a kind word or sharing thoughts of compassion mean so much. Thank you for helping me!!! ð?'?ð?'?ð?'?

I had a duodenal switch back in 97 or 98. I have become severely deficient in Vitamin A which effected my vision and even though I am deeply tanned from a florida vacation i am very low in vitamin D as well My primary care dr asked me to reach out to ask for help how to treat as he has no experience with this. my dr was in virginia does anyone get vitamin infusions/ Please i don't know where to begin to get helpand I don't want the night blindness to return