Help, my cousin is dying!

Ignore the bullies for some reason some people think because they are on the internet they can be brass.  Originally when I was looking into the DS I ran across someone who was self involved and had several minions who followed.  Most individual who act like this are not educated and far from professional the best thing you can do is dismiss them as they are not worth your effort and pay attention to those on here who actually do know what they are talking about and desire to help.  Just because someone had the procedure and has read on it does not make them a great teacher.  Some can communicate well and get concepts across that will help others do not and it would be so nice if they would simply keep to them selves as you did not ask for their assistance in the first place and no one wants to listen to them talk to begin with.  To behave like this they must have poor self esteem and more psy issues then any one on this board could assist with.  Good luck Sarah will be in my prayers tonight and remember to focus simply get the help you need for your fiend and the rest of the crap that is not helpful let go in one ear and out the other.  Thanks God the morans of the world do not have much impact other then posting a neg comment on a forum. 

My cousin/best friend and I had our surgeries a week apart five and a half years ago with Dr. Christian Oakley in Boise, Id. My cousin has struggled from day one. First, there were healing problems and infection, then slow weight loss and now severe malnutrition and vitamin deficiencies. She holds a lot of blame for where she is at because life cir****tances prevented her from being able to stay up on her supplements. That being said, she finally realized the severity of her condition a few months ago. Her first response was to visit Dr. Oakley, who proceeded to belittle and chastise her, saying there was nothing he could do for her until her social cir****tances changed! She has tried so many doctors since. Finally, with the help of my sister (who is an 8.5 year DS vst, vitamin nazi, and research guru), they were able to find a doctor that wants to help save her life. The problem is, he is only a GP.  She vomits everytime she eats because her stomach is rejecting the food (a side effect of severe malnutrition). She cannot undergo TN because of the extent of liver damage she has. She just went to a G I specialist yesterday and was told that her stomach can in no way support a feeding tube. Basically, her only option at this point is an intestinal revision so she can absorb what little she can eat. Her protein level is at 38. We have been told if it hits 36, it will be irriversible. We have also been told that if she doesn't get help very soon, she has less than two months before she will die. She has no insurance at this moment, though it will be effective in a couple of weeks. She cannot go back to Dr. Oakley for revision and there are no other skilled DS surgeons near us. She also has a history of MRS (6-10 outbreaks in the last year). She always struggles to heal after surgical procedures, so will almost defiantly have trouble this time to. We don't know what to do. She is only 32 years old and has three children that need her. We aren't ready to give her up yet, but don't know what to do. If you have any thoughts or suggestions please share them with me. Please don't lecture about the importance of vitamins, we are well aware of that and honestly can't handle it right now. Prayers are greatly welcome. Her name is Sarah.

My cousin/best friend and I had our surgeries a week apart five and a half years ago with Dr. Christian Oakley in Boise, Id. My cousin has struggled from day one. First, there were healing problems and infection, then slow weight loss and now severe malnutrition and vitamin deficiencies. She holds a lot of blame for where she is at because life cir****tances prevented her from being able to stay up on her supplements. That being said, she finally realized the severity of her condition a few months ago. Her first response was to visit Dr. Oakley, who proceeded to belittle and chastise her, saying there was nothing he could do for her until her social cir****tances changed! She has tried so many doctors since. Finally, with the help of my sister (who is an 8.5 year DS vst, vitamin nazi, and research guru), they were able to find a doctor that wants to help save her life. The problem is, he is only a GP.  She vomits everytime she eats because her stomach is rejecting the food (a side effect of severe malnutrition). She cannot undergo TN because of the extent of liver damage she has. She just went to a G I specialist yesterday and was told that her stomach can in no way support a feeding tube. Basically, her only option at this point is an intestinal revision so she can absorb what little she can eat. Her protein level is at 38. We have been told if it hits 36, it will be irriversible. We have also been told that if she doesn't get help very soon, she has less than two months before she will die. She has no insurance at this moment, though it will be effective in a couple of weeks. She cannot go back to Dr. Oakley for revision and there are no other skilled DS surgeons near us. She also has a history of MRS (6-10 outbreaks in the last year). She always struggles to heal after surgical procedures, so will almost defiantly have trouble this time to. We don't know what to do. She is only 32 years old and has three children that need her. We aren't ready to give her up yet, but don't know what to do. If you have any thoughts or suggestions please share them with me. Please don't lecture about the importance of vitamins, we are well aware of that and honestly can't handle it right now. Prayers are greatly welcome. Her name is Sarah.

My cousin/best friend and I had our surgeries a week apart five and a half years ago with Dr. Christian Oakley in Boise, Id. My cousin has struggled from day one. First, there were healing problems and infection, then slow weight loss and now severe malnutrition and vitamin deficiencies. She holds a lot of blame for where she is at because life cir****tances prevented her from being able to stay up on her supplements. That being said, she finally realized the severity of her condition a few months ago. Her first response was to visit Dr. Oakley, who proceeded to belittle and chastise her, saying there was nothing he could do for her until her social cir****tances changed! She has tried so many doctors since. Finally, with the help of my sister (who is an 8.5 year DS vst, vitamin nazi, and research guru), they were able to find a doctor that wants to help save her life. The problem is, he is only a GP.  She vomits everytime she eats because her stomach is rejecting the food (a side effect of severe malnutrition). She cannot undergo TN because of the extent of liver damage she has. She just went to a G I specialist yesterday and was told that her stomach can in no way support a feeding tube. Basically, her only option at this point is an intestinal revision so she can absorb what little she can eat. Her protein level is at 38. We have been told if it hits 36, it will be irriversible. We have also been told that if she doesn't get help very soon, she has less than two months before she will die. She has no insurance at this moment, though it will be effective in a couple of weeks. She cannot go back to Dr. Oakley for revision and there are no other skilled DS surgeons near us. She also has a history of MRS (6-10 outbreaks in the last year). She always struggles to heal after surgical procedures, so will almost defiantly have trouble this time to. We don't know what to do. She is only 32 years old and has three children that need her. We aren't ready to give her up yet, but don't know what to do. If you have any thoughts or suggestions please share them with me. Please don't lecture about the importance of vitamins, we are well aware of that and honestly can't handle it right now. Prayers are greatly welcome. Her name is Sarah.