iron infusions

sometimes_blonde
on 7/13/13 5:25 am - Omaha, NE
I'm four and a half years post surgery, and have always had good lab levels, but after a long hospitalization for septicemia and a major infection (not DS related) my ferritin etc is tanked, I'm anemic, and the doctors are recommending iron infusions. I haven't paid nearly enough attention to all the posts on the subject, and frankly I'm just too exhausted to spend time searching the board right now. Could I get a little advice about the subject before meeting with hemotology Tuesday morning? What has worked best for the vets, what questions do I need to ask, etc? Sorry to just pop in with a problem, but I don't know who else to ask.
1MoreChance
on 7/13/13 5:22 pm - AL
I started to ask if that's what was going on with you when you posted about how tired you were on fb. I hate that you're having such a hard time.

I found a couple of threads for you. Maybe it will help some
.
http://m.obesityhelp.com/forums/ds/4485613/Which-iron-infusion-is-best-Venofer-dextran-ferrlecit-infed/

 http://www.obesityhelp.com/forums/DS/4322920/Feraheme-IV-iro n-injections-not-quotinfusionsquot-full/ 

Hope this helps,
Ronnie

Ronnie HW~205/SW~191/CW~119/GW~120-115

Amy W.
on 7/13/13 11:59 pm - Buckeye, AZ
The iron infusions aren't bad at all. Do you not want to do them because of financial worries?

5" 7' -  HW: 328 Current: I stay around 155 :) 
"...Because when you stop and look around, this life is pretty amazing."


 
 
 
 
 
  

teachmid
on 7/14/13 2:09 am - OKC, OK
Had my first infusions last year.....quick and easy. My Ferritan went up from 4 to 170
     -Gail-
SW  257    CW  169  GW  165
  
Amy W.
on 7/14/13 3:47 am - Buckeye, AZ
Did you just use the word "quick"? lol How long was yours?! I had five sessions (one every 48 hours), and each session was over 2 hours!

5" 7' -  HW: 328 Current: I stay around 155 :) 
"...Because when you stop and look around, this life is pretty amazing."


 
 
 
 
 
  

teachmid
on 7/14/13 8:18 am - OKC, OK
I had 2 infusions a week apart. I was in the infusion center about 45 minutes each time. Quick!!
     -Gail-
SW  257    CW  169  GW  165
  
sometimes_blonde
on 7/16/13 1:51 am - Omaha, NE
Thank you all for the advice. Met with my PCP today, and the infusion center is supposed to call me to schedule by the end of the week.
KellyJTn
on 7/16/13 4:10 pm - Oak Ridge, TN

I have always been very anemic, so post-op I have had to get an iron infusion once per year. They give me fereheme iron. It's a very quick and simple process. I get the IV put in, they slowly push the iron in, and I sit in a recliner for an hour getting a simple saline solution while they watch me to make sure I don't get sick. I've never felt bad at all afterwards and my energy levels are up in a few days. My insurance also pays for it 100%. 

 ~Kelly ~   
SW 364/CW 164/GW 150             
 

         

sometimes_blonde
on 7/17/13 8:09 am - Omaha, NE
They have decided to do Ferraheme weekly for 8 weeks. They said I am too low to do one big infusion. They also said 15 mintes, plus waiting time. I'm so looking forward to this. I'm really tired of being tired all the time.
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