Update after being in the hospital for 17 days

 Hello all…

I would like to thank those who sent me messages.  I appreciate it more than you know.  This is not a whiney message, this is what my life is at the moment.  Believe me, these are the hardest decisions of my life.

My 17 days in the hospital with 2 days in between (8 the first go around, 9 the second go around) really has done a number on my life in a lot of ways.  I am so weak, my Dr’s say, I’m going to be this way for awhile.  I’ve finally gone back to work this week.  I’ve got my protein to 100g a day in supplements and trying to get more daily.  Food has “NO” appeal to me. I am getting in my shakes and yogurt … Plus, the nausea is really bad some days (it’s not due to dehydration).  Yesterday, in the first 30 minutes of seeing my boss, she kept asking me, “Are you ok?”.  I said Yes, just can’t seem to get “un-exhausted”.   Also note, I work in the healthcare field so, I have the best Dr’s around my area.

My hospital stay has left me with two big decisions in my life.  This is my journey, no one else’s so only I can make these decisions.  I am single, just have to worry about my dog (No DH or Kiddos).   I am going about this in a very logical way.  Talking to more than one surgeon on both things.  Trying to find people to speak with etc. 

My CC is 75-80.  My BMI pre-op was 53.  My BMI now is 34 (7.5mo later).  However, my body is malabsorbing a lot more (I think than the average DSr).    So, my body’s immune system has a very hard time fighting even with IV antibiotics.  Now, for my home care after the hospital, rather than being on double the amount of antibiotics for pills, I’m on triple the amount of a normal dose.   My immune system is compromised with the DS.   As well as heart issues (which I never had in my life), low heart rate (resting between 40-50) and low blood pressure.  These are due to my daily imbalance of Potassium & Magnesium.  Quite frankly, I don’t want to live with this kind of pressure.

I had complications at first, now issues.

I am putting this out there to see if anyone knows anyone who has had a full reversal, not just the kissing X nor the lengthening of the CC.  If I do this, I’m going to go back to my original configuration. 

Also, note this, I am also having to decide on a colon resection. 

These choices amount to this.  If I do not reverse the DS, then when I get a bad infection, I will be in the hospital on IV antibiotics (or Home Health) the rest of my life.  Second, if I have the colon resection with the DS, then 2 different GI Dr’s as well as a Colon Rectal Surgeon are concerned it’s going to bring more issues w/regards to my malabsorbtion (even though the surgery is on the colon).

I am awaiting my Med Records to be sent to 2 different surgeon’s about the reversal.  Until they see the Med Records, they don’t want to make any judgment calls.  When I had the phone consults, they seemed to know exactly what I was talking about. 

If anyone knows anyone, please send me a PM and I’ll give you my private email so I can speak with them directly.

I hated the DS at first, then embraced it – have worked it and lived it, then now am being forced to make a very difficult decision.   I must say, I am very blessed & lucky to have the most caring Dr’s in the world!

Thank you all for listening!

 

 

 

 

Whatever you decide to do, I'll support you however I can. You've been through a lot and have some way to go yet.  : (

--gina

 

Thank You Gina!  I appreciate you!

Sorry you've been through so much. Swinging critters for a positive outcome for you.

Wow. That's a really scarey read or someone trying to plan their DS. Did you have your surgery done in Mexico?

No, my surgery was done in Texas. 

 

just want to reach out and hug you.  i can't even imagine what your day must be like, physically, mentally, and emotionally.  hang in there girl.  stay strong, and let us know if you need anything.  {{{hugs}}}

Thank you ...

Praying for you!

Thank You...