Making myself Clear

I guess ppl thought at 3 years out I am just now getting labs drawn lol.  Of course not.  I am a strict protein vitamin taking DS Diva. My labs are done every 4-6 months. 

Just in past 9 months I have been running on the lower end of normals and even Dr. Greenbaum said I was fine.  I kept telling all the doctors something is wrong and crisis would not be good.  And here we are. 

I do not understand why the doctors get so intimidated when they do not understand what your malabsorption and dietary needs are and you do the homework for them and even print it out for them.  Plus I had Dr. Greenbaum send my op report with explanation and they still do not listen.  They keep treating me as a gastric bypass pt. 

I pray that this hematologist is as smart about DS malabsorption as he says he is.  But I just want some of you that have privately messaged me to know YES I GET LABS DRAWN ON A REGULAR BASIS.  I have done very well but got sick and slacked off a little over past 2 months but still was getting in at least 2 protien shakes a day and this should not have happened. 

Carla

I hate it when doctors will not listen to their patients!

I know, I feel like giving up, but I want to live.  I will kick and scream till they address my issues.  I take so many vitamins that its rediculous but its what I have to do and its ok with me.  I have labs done routinely and when I bring a low level to their attention they look at me as if I were nuts and tell me I will be fine.

I AM NOT FINE.

Carla.

I understand completely that doctor's don't know about this surgery.  None of my doctor's ever heard of it and they all put "gastric bypass" in my charts even when I tell them and show them a diagram of the DS.

But I don't understand why you let doctor's who don't understand your surgery dictate what you do or don't do.  All the vets here are willing to look at your labs and advise you and Michelle (VitaLady) is too.

So I don't see why you let yourself get in so much trouble when you knew you had resources right here all along.

~Becky

I'm only 6 months out. I'm already tired of Dr's saying " You had Gastric Bypass" I say "No, the DS Switch" then I even had the comment when I was trying to find a new gastro Dr.  "Well, it's the same thing."  I said "Oh no, this guy is not going to be my Dr"

It's hard to find Dr's but don't give up. 

I have a Hematologist appt next week.  I am almost dreading it because I know I am going to have to explain everything to him.  My PCP, Cardiologist, GI and this Dr all know each other.  I hope he will become part of my team and truly listen to me.  

I saw it mentioned in another thread that with RNY they bypass 15% of your intestine whereas with the DS they bypass 60%.  Hopefully your Docs are able to grasp that if nothing else!! ;-)

My apologies from your other thread.  The words "had" and "bad" look the same when you're not wearing glasses.

LOL Val I knew you miss read that.  You have always been an inspriation to me lol.  Love ya, your forgiven .

Hey girl! 

I was wondering where my DS sister had gone.   I have really missed you. What is going on with you? If you want to talk call me anytime. I never would have made through those first 6-8 months without you. If you need me I am always here.

luv you,

Tiff

OMG Tiff, I missed you too. 

Send me personal message with  your phone number because I lost my dang phone and 75% of my contacts. 

Carla.

P.S. we gotta lot of catching up to do lol.