Kwashiorkor

 This makes no sense.  It's very unusual for one of us to have fatty liver disease because the fat you eat never gets TO your liver.  We poop it out.  That's why we have such low cholesterol too.  If I was in your place, I would have my doctor consult with your DS Surgeon.  Your current doc may not understand that we don't metabolize fat like normal people.

The DS usually cures Fatty Liver Disease.

Hi Patty,

Thanks for the info...I'll be getting it all checked out and seeing the surgeon soon too.

Total opposite of what doctor is telling me...so need to get it straightened out and see why I'm losing this weight.  All other things like colon and other organs are negative for cancer or issues...which is what I was initially ruliing out at the doctors.

Cheryl

You may want to contact Dr John Rabkin at www.paclap.com or 415-668-3200 and ask for a phone consult.  You'd have to fax your liver results and blood work to him.  Dr John knows livers... he was a liver transplant surgeon before moving to SF. 

Have you thought of adding 2-4 protein shakes a day.  It would help your protein levels and we've seen others do fantastic when they add in the shakes.  I think when Lori was having her problems, she started drinking 6 shakes a day, plus her food.  

Chia seeds are great for diarrhea.

 Hi Chris...

Thanks for all your help and advice on Dr., shakes and Chia seeds!  

I'll try to get some info together and contact Dr. Rabkin...he sounds amazing.   Am also looking to find a good doctor in this area as well to help with nutritional things.

I've just started drinking some Ensure and Boost as I've had it here...1-2 per day.  I'll up that quantity and get somethng else with higher protein.

Bye for now...
Cheryl

 Ensure and Boost don't have much protein.  Use them till you can get a real protein shake.  Try GNC, they are almost everywhere.

 Yes...I see they are about half the protein of what else is available.  Thank you...I'll look into GNC and some others that habeen mentioned.

 I'm sorry to hear you are having so much trouble!  When ever I go to the Dr. I bring a print out that I got off of DS Facts.com which explains it all.  No one ever knows what a DS is and I can never explain it fully so I give them the print out that hopefully they read it.

 Thank you!  I checked out the DSFacts.com site...and see a lot of good information there.  I like your idea about taking something to the doctor that tells about the DS surgery...it just could help.

You might find better long term deals on protein powder at Lucky Vitamins online store. I buy 10# bags of whey protein isolate from them, as well as certain vites dry vites. The price of WPI has risen about 25-30 bucks since I bought my last supply. I'm not sure why the price is rising the way it is, but buying in large quantities is one way to save money. I love Vitalady, and I will still get some items from her, but I really have to watch my budget, so if I find a supplier that costs less, that's where I make my purchase.