Something's wrong with me repost (edited for clarity)
Tarragon
on 1/16/12 4:52 am
on 1/16/12 4:52 am
I totally messed this up the first time I tried posting and had people thinking I'm only eating once a day, so I've re-written it for clarity.
I don't know if this is related to DS or not (I don't think it is, I've never heard of any other DS patient having this problem.)
First, my details.
I weighed 420 lbs., max. I currently weigh 170 with a BMI of 22.4. You should be able to download my labs at this link (EDITED to include ranges):
http://dl.dropbox.com/u/2998337/LAB%20RESULTS%20Jan%202012%20with%20ranges.xls
I had surgery in April of 2010. Most of the first year afterwards, I felt great! Then about a year after surgery, in the spring of 2011, I started to feel less and less energetic. I wasn't as interested in going out and doing things, and felt generally run-down. I chalked this up to the stress of losing well over half my body weight. However, it keeps getting worse. Since it started in the spring and grew gradually worse during the summer, that most likely rules out seasonal affective disorder.
I have been using caffeine (which I used to avoid) and have recently started taking Adderall again (partly for my ADD, but also to help me get up in the morning.) Last night I sent to sleep about 11:00. This morning I woke up and took about 150 mg of caffeine and 20 mg Adderall at 7:30, drank about 64 ounces of water. That amount of caffeine and Adderall should be enough to keep me wired to the ceiling for 12 to 18 hours no matter what.
It was around 9:00 AM I had a breakfast with about 100 grams of protein (EDIT: 200 grams was a typo) and about 15 grams of carbs (cheese, protein drink and a small amount of popcorn.) I don't usually eat that much protein for one meal, but I have been trying to increase my protein intake to see if it helps. It hasn't. (I eat three meals per day.)
By 11:30 in the morning, I was intensely drowsy and took a nap until about 1:30.
I had another 150 mg of caffeine when I got up, but now it's 3:00 and I should be running around like a monkey on crank, but instead I still don't feel like going out and doing the fun things I had planned for today. I would just as soon go back to sleep. (EDIT: I had lunch after 3:00PM and went back to sleep around 6:00PM.)
I have seen my doctor for this, with the test results in my lab results (he tested iron, B12, hepatic function, thyroid, etc.) Nothing was very far out of whack.
I have a sleep study planned for later this month, but I'm already using a self-adjusting CPAP that should be keeping me from having sleep apnea--the sleep study will make sure though.
I also took Cipro for 30 days because of a suspected prostate infection last month. I was careful to avoid taking the supplements that block Cipro absorption during that time. We thought I had a prostate infection because of a burning sensation when I have to urinate, when starting and during the first few seconds of urination. The Cipro did not help this, but if my fatigue was due to infection it might have helped it, but the result was nothing. (Incidentally, the burning urination might be due to my increased caffeine use.)
In case my sleep study doesn't show any uncontrolled apnea, does anyone have any further suggestions as to what to have the doctor check for?
I am also undergoing psych testing and evaluation (four hours testing, one hour results, split into two two-hour appointments and one one-hour evaluation appoinement. That should show if there's a psychological component going on.
Typical day for me mealwise:
Breakfast, 7 oz chicken breast
Mayo
Carb-free seasoning such as Louisana Hot Sauce
Lunch: 16 oz cheese such as cheddar or colby
Supper:
Mixed vegetable quiche and pizza
Chocolate for dessert
I am below my minimum goal and still losing, so I am trying to up the carbs a bit at supper.
Things that have been checked so far:
Iron
Thyroid
B12
All other vitamins, hepatic and metabolics as shown in my test results linked above
Things that will be checked soon:
Psucholodical evaluation
Sleep study
I don't know if this is related to DS or not (I don't think it is, I've never heard of any other DS patient having this problem.)
First, my details.
I weighed 420 lbs., max. I currently weigh 170 with a BMI of 22.4. You should be able to download my labs at this link (EDITED to include ranges):
http://dl.dropbox.com/u/2998337/LAB%20RESULTS%20Jan%202012%20with%20ranges.xls
I had surgery in April of 2010. Most of the first year afterwards, I felt great! Then about a year after surgery, in the spring of 2011, I started to feel less and less energetic. I wasn't as interested in going out and doing things, and felt generally run-down. I chalked this up to the stress of losing well over half my body weight. However, it keeps getting worse. Since it started in the spring and grew gradually worse during the summer, that most likely rules out seasonal affective disorder.
I have been using caffeine (which I used to avoid) and have recently started taking Adderall again (partly for my ADD, but also to help me get up in the morning.) Last night I sent to sleep about 11:00. This morning I woke up and took about 150 mg of caffeine and 20 mg Adderall at 7:30, drank about 64 ounces of water. That amount of caffeine and Adderall should be enough to keep me wired to the ceiling for 12 to 18 hours no matter what.
It was around 9:00 AM I had a breakfast with about 100 grams of protein (EDIT: 200 grams was a typo) and about 15 grams of carbs (cheese, protein drink and a small amount of popcorn.) I don't usually eat that much protein for one meal, but I have been trying to increase my protein intake to see if it helps. It hasn't. (I eat three meals per day.)
By 11:30 in the morning, I was intensely drowsy and took a nap until about 1:30.
I had another 150 mg of caffeine when I got up, but now it's 3:00 and I should be running around like a monkey on crank, but instead I still don't feel like going out and doing the fun things I had planned for today. I would just as soon go back to sleep. (EDIT: I had lunch after 3:00PM and went back to sleep around 6:00PM.)
I have seen my doctor for this, with the test results in my lab results (he tested iron, B12, hepatic function, thyroid, etc.) Nothing was very far out of whack.
I have a sleep study planned for later this month, but I'm already using a self-adjusting CPAP that should be keeping me from having sleep apnea--the sleep study will make sure though.
I also took Cipro for 30 days because of a suspected prostate infection last month. I was careful to avoid taking the supplements that block Cipro absorption during that time. We thought I had a prostate infection because of a burning sensation when I have to urinate, when starting and during the first few seconds of urination. The Cipro did not help this, but if my fatigue was due to infection it might have helped it, but the result was nothing. (Incidentally, the burning urination might be due to my increased caffeine use.)
In case my sleep study doesn't show any uncontrolled apnea, does anyone have any further suggestions as to what to have the doctor check for?
I am also undergoing psych testing and evaluation (four hours testing, one hour results, split into two two-hour appointments and one one-hour evaluation appoinement. That should show if there's a psychological component going on.
Typical day for me mealwise:
Breakfast, 7 oz chicken breast
Mayo
Carb-free seasoning such as Louisana Hot Sauce
Lunch: 16 oz cheese such as cheddar or colby
Supper:
Mixed vegetable quiche and pizza
Chocolate for dessert
I am below my minimum goal and still losing, so I am trying to up the carbs a bit at supper.
Things that have been checked so far:
Iron
Thyroid
B12
All other vitamins, hepatic and metabolics as shown in my test results linked above
Things that will be checked soon:
Psucholodical evaluation
Sleep study
Obviously, I'm no doctor. But, alot of your symptoms seem similar to ones I was feeling right before I was diagnosed with clinical depression. Just wondering if it could be triggered by the mourning of your loss (as much weight as another person). I know you're happier thin and I'm only at the beginning of this journey, but I have a feeling I will miss some of the old me. Maybe subconscously that is what is happening?
Just something to consider.
Tarragon
on 1/16/12 8:03 am
on 1/16/12 8:03 am
Thank you for your input, I think you're right to wonder if there's an emotional cause. It's hard to tell whether the lack of energy is physical or emotional. i know when I am depressed, I feel a lack of physical energy, lack of enthusiasm and want to sleep more.
I can't tell whether my emotions are bringing me down and making me tired, or if my tiredness is causing my lack of enthusiasm for life. The four hours of psych testing should shed some light on the situation.
I can't tell whether my emotions are bringing me down and making me tired, or if my tiredness is causing my lack of enthusiasm for life. The four hours of psych testing should shed some light on the situation.
Yes, I know it's not fun. That lack of enthusiasm is a pretty sure sign though. I'm sure the psych Dr. will ask the right questions. I remember 10years ago when I was diagnosed. My Dr. started going through a list of questions and by the third one I was balling my eyes out. If it's not, I hope you still find an answer soon. This is the life you've been waiting to lead. You did the work now it's time to get out there and enjoy it.
You are describing my depression symptoms to a T.
You are smart to get labs, sleep study, and the rest double checked first.
Don't hesitate to take an antidepressant, and to switch to a different one if the first doesn't do the trick. There are so many good meds out there today, there's no excuse to suffer.
Get talking to a good therapist, too. I've finally added that component in after more than a decade of just meds, and am surprised at the success.
You are smart to get labs, sleep study, and the rest double checked first.
Don't hesitate to take an antidepressant, and to switch to a different one if the first doesn't do the trick. There are so many good meds out there today, there's no excuse to suffer.
Get talking to a good therapist, too. I've finally added that component in after more than a decade of just meds, and am surprised at the success.
I. am. not. a. doctor.
HW 250ish SW 219 CW 110 LW 100