Need help having problems eating anything
Martina!!! ****HUGS***** How marvelous to see a life sign from you. You have landed in a very problematic boat and I am so sorry :-(.
I think that you will get some help if you look up how to eat after a "total gastrectomy" online. Here are the first hits I found on Google for that:
http://www.medhelp.org/posts/Gastroenterology---Digestive-Di sorders/Diet-after-total-gastrectomy/show/235744
http://www.cancercompass.com/message-board/message/all,5472, 0.htm
http://www.cancerforums.net/threads/3336-Nutrition-after-Tot al-Gastrectomy
http://csn.cancer.org/node/177808
http://cancer.osu.edu/PatientEd/Materials/PDFDocs/nut-diet/n ut-other/post-gas.pdf
I hope this helps some.
I think that you will get some help if you look up how to eat after a "total gastrectomy" online. Here are the first hits I found on Google for that:
http://www.medhelp.org/posts/Gastroenterology---Digestive-Di sorders/Diet-after-total-gastrectomy/show/235744
http://www.cancercompass.com/message-board/message/all,5472, 0.htm
http://www.cancerforums.net/threads/3336-Nutrition-after-Tot al-Gastrectomy
http://csn.cancer.org/node/177808
http://cancer.osu.edu/PatientEd/Materials/PDFDocs/nut-diet/n ut-other/post-gas.pdf
I hope this helps some.
Martina, it's good to see you back here again. So sorry you have had such a hard time.
I think EN gave you same great advice. Your nutritional needs will be more related to being a total gastrectomy patient. In addition to reading up on that yourself, maybe a gastroenterologist with experience with total gastrectomy patients could help, or maybe a different nutritionist - again, someone with specific experience with people who have lost their entire stomachs. There are others out there without a stomach, you are not the only one. Granted, most of them lost their stomach for a different reason, usually cancer, but still, their nutritional issues and post-op eating problems would be similar to yours.
I suspect part of the problem is the extensive trauma to your digestive system, and all the complications you are still recovering from. Your body is still going their a massive adjustment. The recovery of your ability to eat will likely be very slow and gradual, but time IS on your side.
I can't begin to imagine what you are going through, both physically and emotionally. I'm glad you have the TPN going, and hope your eating problems will improve.
Larra
I think EN gave you same great advice. Your nutritional needs will be more related to being a total gastrectomy patient. In addition to reading up on that yourself, maybe a gastroenterologist with experience with total gastrectomy patients could help, or maybe a different nutritionist - again, someone with specific experience with people who have lost their entire stomachs. There are others out there without a stomach, you are not the only one. Granted, most of them lost their stomach for a different reason, usually cancer, but still, their nutritional issues and post-op eating problems would be similar to yours.
I suspect part of the problem is the extensive trauma to your digestive system, and all the complications you are still recovering from. Your body is still going their a massive adjustment. The recovery of your ability to eat will likely be very slow and gradual, but time IS on your side.
I can't begin to imagine what you are going through, both physically and emotionally. I'm glad you have the TPN going, and hope your eating problems will improve.
Larra
is Jewels. Love her very much!
