I think I "got" my answer Fri afternoon

Lisey
on 7/23/11 5:17 am - Milwaukee suburb, WI
I saw the NP Friday morning & she scheduled the biopsy for me while I was there.  I left at 8:45.  She came back right before I left to tell me that she wanted to talk to Anis (my heme guy & he is an oncologist) quick before I left to ask if he wanted to order any more imaging stuff, but asked for my cell # in case I had left before she got his answer.  I saw her talking to him on my way out.

She called me back at 5 hours later to tell me that he wanted to go ahead & order a CT scan of my neck & a PT scan right away so that he'll have all the info he needs for my f/u appt with him on Fri, Aug 4th that was scheduled to go over the results of the original CT scan of my abdomen & pelvis, along with a chest scan.  My guess is she talked to him & he decided to pull the results of the CT scan (it's in the same hospital system, he has electronic access) & chest xray, see what it said to guide him in his decision on whether to order more imaging.

He ordered the abd/pelvis CT scan b/c I had a sore spot on the right lower rib portion, which has grown a lot worse in the wk & 1/2 since I saw him.  The left side is now tender when you press on my mid/lower ribs (which is where your spleen).

So.  Isn't it that practice guidelines call for a PT scan either when you get a biopsy back or you have very strong clinical proof that it's indicated?  I'm guessing he didn't like the results of the CT scan & possibly chest scan that he had ordered . . . given the nightsweats, erractic fever (I actually had it when I was there on Fri), general fatigue, anemia of chronic disease, an ESR of 95, a CRP of 78.5, exercise-induced shortness of breath, masses that are on the supraclavicular node (which has a high rate of malignancy), and I've been losing weight again . . . I guess that's his reasoning for going ahead & ordering everything left so that we can have the cell type, stage, & discuss treatment options during the f/u.

Remember, this was the doctor that, 1.5 wks ago told me that he takes a conservative approach & rules out the most obvious first (that he thought I was iron-deficient anemic).

Yeah, I personally am 99% convinced.  It's what makes sense & everything else has been ruled out.

If I get my biopsy results early, from the surgeon, then I will post, otherwise I will post after my f/u appt on 8/5.

HW / SW / CW / GW      299 / 287160 / 140     Feb '09 / Mar '09 / Dec '13 /Aug '10          

Appendicitis/Bowel Obstruction Surgery 8/21/10
Beat Hodgkin's Lymphoma!  7/15/2011 - 1/26/2012 


Ran Half-Marathon 10/14/2012

First Pregnancy, Due 8/12/14                             I LOVE MY DS!!!
 

(deactivated member)
on 7/23/11 5:30 am - Beverly, NJ

I hate to see you going through this.  It sounds like you have a great care system set up though.  

 

Keep your head up and when you need to talk these forums are great *hugs* You can get through this.

Lisey
on 7/23/11 5:47 am - Milwaukee suburb, WI
Absolutely!  Thanks :)

HW / SW / CW / GW      299 / 287160 / 140     Feb '09 / Mar '09 / Dec '13 /Aug '10          

Appendicitis/Bowel Obstruction Surgery 8/21/10
Beat Hodgkin's Lymphoma!  7/15/2011 - 1/26/2012 


Ran Half-Marathon 10/14/2012

First Pregnancy, Due 8/12/14                             I LOVE MY DS!!!
 

(deactivated member)
on 7/23/11 6:29 am
 Thinking good thoughts for you. I hope it all turns out okay for you. Hang in there.

Lisey
on 7/23/11 6:32 am - Milwaukee suburb, WI
Thanks, Inge :)  I like your new avie!

HW / SW / CW / GW      299 / 287160 / 140     Feb '09 / Mar '09 / Dec '13 /Aug '10          

Appendicitis/Bowel Obstruction Surgery 8/21/10
Beat Hodgkin's Lymphoma!  7/15/2011 - 1/26/2012 


Ran Half-Marathon 10/14/2012

First Pregnancy, Due 8/12/14                             I LOVE MY DS!!!
 

teachmid
on 7/23/11 7:14 am - OKC, OK
I'm glad they're doing a complete work-up so quickly so you'll have answers now. I continue to have you in my thoughts and prayers.
     -Gail-
SW  257    CW  169  GW  165
  
Lisey
on 7/23/11 7:40 am - Milwaukee suburb, WI
Thanks, me too

HW / SW / CW / GW      299 / 287160 / 140     Feb '09 / Mar '09 / Dec '13 /Aug '10          

Appendicitis/Bowel Obstruction Surgery 8/21/10
Beat Hodgkin's Lymphoma!  7/15/2011 - 1/26/2012 


Ran Half-Marathon 10/14/2012

First Pregnancy, Due 8/12/14                             I LOVE MY DS!!!
 

yorkieGal
on 7/23/11 7:16 am - Clermont, FL

Thinking of you sweetie..xx

Yorkie xx

Had a band in 2005 at 280lbs, had band removed and DS done on Jan 22nd 08 at 220lbs in Spain, now 135lbs and a size 4!! Happy as a Clam!!Dontcha love the DS? It's the best tool around!!                

                   

Lisey
on 7/23/11 7:41 am - Milwaukee suburb, WI
Thanks :)

HW / SW / CW / GW      299 / 287160 / 140     Feb '09 / Mar '09 / Dec '13 /Aug '10          

Appendicitis/Bowel Obstruction Surgery 8/21/10
Beat Hodgkin's Lymphoma!  7/15/2011 - 1/26/2012 


Ran Half-Marathon 10/14/2012

First Pregnancy, Due 8/12/14                             I LOVE MY DS!!!
 

airbender
on 7/23/11 8:01 am
waiting is tough, but it seems like everything is being ordered and they are following you.  please post when you have more info.  sending out prayers to you.....
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