People who have had complications from surgery please post your story
Just wanted to mention many insurance companies will pay for Prilosec when prescribed over 40 mg daily. I take 40 mg in the am, 40 mg in the pm just as you said and I have no issues with reflux. The OP really needs to try it especially since she hasn't yet-she better or she'll continue eroding her esophagus which is setting up a world of hurt if left untreated.
I'm sorry you are going through this. I know Gagner likes to help with difficult cases. He likes challenges... surgical ones especially. I would also trust Rabkin for his opinion. I have experience with Gagner and know he has helped other DSers with problems from other DS surgeons. He generally can find problems where others doctors don't see the issue. Not saying your surgeon or surgery is at fault. But if I were in your shoes I think I would consult one of those surgeons for an opinion. Hang in there.