My endocrinologist called-I'm so disappointed and confused
I was referred to a rheumatoligist, not an endocrinologist. She suggested I NOT increase the calcium (I get between 1600-2000 mg a day) because as you intimated, it would not be much better absorbed, and it may overtax my kidneys (I have a history of calcium stones and crystals.) So I upped the D3-- from maybe 7000 IU to 50k IU daily and will re-test. With that and doubling my iron, I can just barely poop these days. GAH!
They would not do a dexascan on me because I was "too young." I will get one anyway soon from my PCP.
I would look for a top notch rheumatologist, and seek another opinion.
Hope you and your bones are okay. We pixie-hairdo-ed D- deficient types gotta look out for one another!
-S.
"Oh sweet and sour Jesus, that is GOOD!" - Stephen Colbert Lap RNY 7/07-- Lap Gallbladder 5/08--
Emergency Bowel Repair 6/08 -Dr. Meilahn, Temple U. Upper and Lower Bleph/Lower Face Lift 12/08
Fraxel Repair 2/09-- Lower Bleph Re-Do 5/09 -Dr. Pontell, Media PA Mastopexy/Massive
Brachioplasty/ Extended Abdominoplasty (plus Mons Lift and Upper Leg lift) / Hernia Repair
6/24/09 ---Butt Lift and Lateral Thighplasty Scheduled 7/6/10 - Dr. Ivor Kaplan VA Beach
Total Cost: $33,500 Start wt: 368 RNY wt: 300 Goal wt: 150 Current wt: 148.2 BMI: 24.7
You should be able to get a Dexascan if your doctor enters the diagnosis code for "hyperparathyroidism." He's upped my D3 to 150,000 a day. I think I'm going to try tanning a couple of days a week too, even though the jury is out as to whether it works or not.
Let's keep up with each about this, okay?
Duodenal Switch 08/09/06 - Dr. Paul Kemmeter, Grand Rapids, Michigan
HW: 282 - 5'4"
SW: 268
GW: 135
CW: 125
Cystic Fibrosis patients have fat malabsorbtion similar to ours. You may want to mention this to your Endo. This may help him/her understand fat based D is a waste. ADEKs were originally developed for CF patients.
Next, start researching calcium apatite. It is more useful to us than calcium citrate. Problem is it's very hard to find in the US. I have been unable to find a reliable source and I've looked off and on for quite a while. If you can find some, please let me know.
In addition to being available from Metagenics (see, their website here) this product, which is calcium from cow bones, is also available from Now Foods online here. You could also use their store locator to find a store near you.
I chose to stick with Citracal. But, if you're interested it trying this product, I have an unopened bottle of the NOW product I could post to you.
Get the FACTS about the Duodenal Switch at www.DSFACTS.com
Vitalady says:
D3 is the best supplemental way to get vit D, without damaging your skin.
- the whole potential for toxicity is still more of a "thought" than a reality. What is a good level now was way into "toxic" 3 yrs ago. I doubt I'll ever see one of us with truely "toxic" levels, since that can't be defined for any more than a few weeks. Also, is that toxic as in how much taken? Or how much resides in the blood? Define: toxic. So, with toxicity actually being more of a fear than a reality, it's safer to take the D3 and head for a score of 100 on D 25. It's top on some ranges, mid-range on others.
I am dealing with some of the same issues. I saw a rheumatologist----she was not much help. She suggested the yearly infusion RECLAST, but was uncertain if we would absorb it. I am a little reluctant to try this as I'm not sure about possible side effects. I've managed to get my vit. d up to 100 with Vitalady's dry d---50,000 a day. Parathyroid is back down and finally got ferritin where it should be. I have also started taking strontium every day....Michelle also carries this. Next step is going to be trying to find an endo who is knowledgeble about wls. to see what their thought are on Boniva, etc...I'm in northern ohio---so maybe I can let you know if i am able to find someone.
Also Metagenics carries the calcium apatite.
Marilyn in ohio
ds i*****
235/140
Duodenal Switch 08/09/06 - Dr. Paul Kemmeter, Grand Rapids, Michigan
HW: 282 - 5'4"
SW: 268
GW: 135
CW: 125
Larra