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smukkkas
on 1/19/13 12:19 pm
Topic: RE: My mom needs your help...

 

if she would be able to eat enough to maintain her sugars, and if she did get shaky if she would be able to eat enough to stable herself out again. I'm going to add this link to the ones you might want to check out, too: TREATMENT It does a nice job breaking down what exactly it is, what can cause it, how to deal with it, etc.

 

funkyphillygirl
on 1/19/13 6:07 am
Topic: RE: Type 1 diabetic insulin pump wearer needing to lose more weight!

I found that my weight loss from RNY was steady, but at times slow.  I had a fair amount of stalls throughout, and often wondered if it was because of using insulin.  The nice thing is that as you lose weight, you do need less overall insulin and that then helps the weight loss.  I've lost about 85% of my excess body weight in 16 months and that's really fine with me.  I think the slower weight loss helped me not have so much extra, baggy skin, so don't fret if it's slow.

One of the reasons I chose the OmniPod is because there is no tubing.  It's a small pod that goes directly on your skin and then a small cannula inserts underneath for the insulin feed.  I did a trial for 24 hours to see how it felt and if I had any issues sleeping with it, and it was really fine and comfortable.  There's a small bulge on your skin since you are wearing the whole pump, but nothing too terrible.  I have been told that you actually use LESS overall insulin with a pump and get MUCH better A1c's.  That was the goal of RNY surgery for me - to improve my a1c's.  They are a bit better (around 7.0), but I'd really like to get down closer to 6.0.  I think the pump will help me achieve that now that my weight is more stable. 

I'm definitely looking into the CGM after I get used to the pump.  I've heard great things about the next generation of the Revel!

Thanks for this helpful conversation....

Donna E.
on 1/19/13 5:12 am - Richmond Hill, Canada
RNY on 08/16/12
Topic: RE: Type 1 diabetic insulin pump wearer needing to lose more weight!

I am type 1 since I was 3 years of age.  I had RNY 5 months ago, and finding that the weight is slow to come off.  Did you also have this problem?  I was told that insulin causes weight gain.  Maybe that is both of our problems.  

I am thinking about getting the pump, but am not a fan of being hooked up with tubing all the time (especially at night).  I am taking 4-6 injections a day.  In your option is the pump worth the headache of the tubing?

  
                 
weaverwoman
on 1/18/13 4:50 am - TX
Topic: RE: Type 1 diabetic insulin pump wearer needing to lose more weight!

Good luck with your pump training.  I'm not familiar with the Omnipod.  I have always used a Medtronic pump.  However, I'm thinking the Omnipod should have options for temporary basal rates.  When I exercise I drop too.  I've worked with my diabetes educator to find what works best.  Usually a 50% basal rate for 1/2 hr before exercising, and 0-50% during exercise to keep from crashing.   It would make me sooooooo mad to have to treat a low blood sugar and eat all the calories (and more) that I had just burned by exercising!   Given the challenges in managing blood sugar after WLS, maybe your insurance will cover continuous glucose monitoring (CGM) also.  I use the Medtronic Revel.  It's not the most accurate sensor out there and I'll probably change to a different brand when my warranty is up.  However, it is invaluable for sensing the trends and looking at the patterns to make adjustments.

funkyphillygirl
on 1/18/13 3:45 am
Topic: RE: NIPHS~ Non-Insulinoma Pancreatogenous Hypoglycemia Syndrome AFTER RNY

I have seen a number of people post throughout this site on hypoglycemia after weight loss surgery.  I don't know if it is the same as you describe, but certainly can understand the frustration at trying to monitor an intermittent problem like this. 

Give a search in other forums - I am sure you will see postings about it.  I would agree that working with an endocrinologist, and anyone else that he/she recommends, is your best plan of action right now.

Good luck!

 

funkyphillygirl
on 1/18/13 1:23 am
Topic: RE: Type 1 diabetic insulin pump wearer needing to lose more weight!

thanks so much for these tips!  I have been a carb counter for many years, and especially since the RNY 16 months ago.  All of my mealtime insulin is driven by a different carb/unit of insulin dose, so it keeps me honest on carbs.  My diabetic body also likes it best when I keep them at a minimum.  And I know the more carbs I eat, the more insulin I will need and insulin will promote regain.  I have to keep that top of mind because it's so easy to think differently about it.  It's the "this is what my body needs and I don't metabolize normally because I've had surgery and diabetes" vs. "I want that, I like it, I deserve, just a little will be fine" kind of thinking that I am sure you all know about. 

I loved what you said about treating the lows and it's good to know a new way to do it with the pump.  It feels so self-defeating to eat carbs to deal with the low, knowing full well that a rebound is in the future too.  I have my pump training on 1/28, so I'm sure I'll learn more about how to adjust all that on the OmniPod.  One of my long-term frustrations has been exercise.  I really don't mind exercising at all, but adjusting for it is a whole other thing!  I'm not always able to plan things out to the level you need to if using multiple daily injections.  So, I wind up having to either eat before/during exercise to compensate for IOB or not exercise at all.  I don't like either of those choices, so I'm glad to know that I have some other ones with the pump too.  I'm very exercise sensitive and can plummet 120-200 points when I do.  So there's this weird dynamic of having to push my sugar up to exercise.  Again, it feels quite self-defeating.

Weaver, I was concerned about RNY for the exact thing you said - dumping and how to treat hypoglycemia in the early days.  That's what led me to this board - I was looking for info on that and couldn't find it at all.  Fortunately, like you, that has not been a concern.  We Type 1 bariatric surgery people are not easy to find.  I am a LADA (type 1.5) and they are even harder to find!!  Glad to have some other people to share experiences with - it's lonely out here sometimes. 

weaverwoman
on 1/17/13 9:42 pm - TX
Topic: RE: Type 1 diabetic insulin pump wearer needing to lose more weight!

I get it.  I'm afraid I'm a Christmas-cookie-aholic.  Not good.

One other pump benefit I've found is with hypoglycemia....if it's a gradual blood sugar drop, I can treat by using a temporary basal rate of 0% (turning pump off) for an hour to let my glucose come up on its own rather than having to eat something.  I've saved countless calories that way, and avoided triggering some overeating/overtreating episodes.  When I was taking multiple injections, the insulin was already "on board" and there was nothing I could do but treat low blood sugar by eating something.

wlscand09
on 1/17/13 12:10 pm - Tickfaw, LA
Topic: RE: Type 1 diabetic insulin pump wearer needing to lose more weight!

That's awesome! I realllllyyy love carbs, though :-( that's a big deal for me to give up but I do need to cut them way back because I could eat a loaf of bread for a snack I swear I'm a bread-a-holic!

weaverwoman
on 1/17/13 6:18 am - TX
Topic: RE: Type 1 diabetic insulin pump wearer needing to lose more weight!

Glad to see other type I and pumpers here.  I've been type I for 42 years, and on a pump for 14 years.  I had lap band in 2008, revised to RNY about 4 months ago.  I was terrified to have the RNY because of worries about trying to treat hypoglycemia and possible dumping.  Fortunately, that hasn't been a problem.

For many years I did multiple injections before going on the pump.  My insulin needs dropped significantly when I went on the pump.  I think my body was able to use the insulin more efficiently, and my control greatly improved.

That being said, my body loves it when I eat no carbs (or very little) and need very little bolus insulin.  My weight loss and blood sugar management is best then.  Insulin definitely plays a part in gaining weight.  So, you may want to try really limiting carbs, particularly refined carbs and see if as your insulin requirements go down, the weight loss follows.

 

        
1vamp
on 1/17/13 12:52 am - MI
Topic: NIPHS~ Non-Insulinoma Pancreatogenous Hypoglycemia Syndrome AFTER RNY
For the last 6-8 months Ive been going to my PCP with episodes of LOW (37-52) blood sugars. They did all the "normal" blood test and they all came back in the normal range. I called my Surgeon and was speaking to them about this and they told me I needed to go to an Endo. STAT!! I get these episodes mainly AFTER eating a meal. Which is opposite of a normal diabetic. I can eat a Greek yogurt and 20 mins later notice that my vision is not right and check my sugar and be at 50. After meeting with a WONDERFUL Endo yesterday he started me on an injection 3x daily called Octreotide, and he refered me to the Mayo Clinic. I'm wondering if there are anyothers out there with this same thing happening? It is VERY rare from what I'm being told. I know when I left the Dr's yesterday I was really REGRETTING my decision to have the WLS. Today, Ive been able to "digest" some of the information and start on a new diet plan ect.....I have these episodes on a NON-REGULAR basis. I can go 2 weeks and be good then have it happen 3x in 2 days. Thanks for any and all information...

 Amy Signor

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