double diabetic

Julia HasHerLifeNow
on 1/3/12 8:05 pm
VSG on 10/09/12
Lacey, I am a recently diagnosed type II, and am also going the surgery route to impact on the diabetes. From my reasearch it seems that theduodenal switch is the surgery that resolves 98% of all type 2... I am getting a VSG because my surgeon thinks it is a better ratio of risk vs benefit in my case, but overall the best success is with the DS.

View more of my photos at ObesityHelp.com 5ft0; highest weight 222; surgery weight 208; current weight 120

     

    

Julia HasHerLifeNow
on 1/4/12 12:11 am
VSG on 10/09/12
http://www.lenoxhillhospital.org/press_releases.aspx?id=2106

Interesting data from Dr Roslin which favours DS and VSG fir blood sugar regulation due to the preservation of the pyloric valve. There are lots of other studies also pointing in the same direction.

View more of my photos at ObesityHelp.com 5ft0; highest weight 222; surgery weight 208; current weight 120

     

    

Lacey S.
on 1/4/12 12:44 pm - OR
 thank you, i will certainly bring this up when talking to the surgeon.  It's all a lot to take it.  Not only do I want to reverse the type 2, but I need to stay healthy with the type 1, so if something like preseving the pyloric valve would prevent problems for me later it is definitly worth considering.  
Julia HasHerLifeNow
on 1/4/12 3:44 pm
VSG on 10/09/12
The one most important thing I learned on here is that the DS is a complex surgery and in order to get decent advice about it you actually have to see a surgical team that knows it and performs it. Otherwise those surgeons who don't do the DS will do their best to steer you away from it. You need to go armed with lots of undeniable scientific info, you need to stand your ground and you need to pick a vetted DS surgeon. Dsfacts.com is a great source of info also. The pouch isn't a pouch with the DS, its a sleeve. It can be made any size but yes, from what I read, its larger than a stand alone VSG sleeve. Because DSers need the extra capacity due to the malabsorption. I haven't had surgery yet either so none of this is experience based but I have been researching a lot to help me decide. There are also lots of lightweights, BMI 32-38 range who have done the DS and they didn't get too thin. Also if you google intestinal or diabetic surgery, they have lots of articles on the malabsorptive portion of the DS only for those who are thin diabetics. The weil centre in Cornell is doing this as a study and Dr Baltazar in Spain has also done it.
With the RnY I would think more than twice because also there are some meds you would not be able to take due to possible ulcers. Also quality of life issues with the pouch... Ugh... And the dumping and reactive hypoglycemia.... Thats really scary. There are some posts on it here and it really sounds horrible. This said, some do well with the RnY. I guess its a lottery to some extent, but the number of revisions and unhappy RnYers on the forums here is certainly higher than the unhappy DSers!
Good luck in your quest! Consult a good DS surgeon. Its key to getting the right info.

View more of my photos at ObesityHelp.com 5ft0; highest weight 222; surgery weight 208; current weight 120

     

    

Psyche
on 1/4/12 4:48 am
My Type 2 went into remission after the DS. (I will never say cure... Murphy's Law and all.) The success rates were one of reasons I went chose that surgery.
SW 280 / GW 150 / CW 128.8

Reconstructive surgery, under construction!

Lower Body Lift - 12/14/2011 - Atlanta VA Medical Center
Brachioplasty & Mastopexy w/Augmentation - 03/14/2012 - Dr Marisa Lawrence

Lacey S.
on 1/5/12 11:32 am - OR
 yes, I am sure there's always a chance of it returning.  I think even with cancer patients they have to go at least 5 years before they are considered 'cured' and often times it still comes back.  good luck...I hope you stay in remission for life :)
funkyphillygirl
on 1/4/12 6:03 am
Just another point of clarification - those of us with LADA/Type 1.5/Double Diabetes cannot achieve "cure" from ANY type of bariatric surgery.  We have features of both types of diabetes.  So, the more classic Type 2 symptoms can be improved with WLS.  However, the Type 1 - insulin dependent diabetes is not changed.  It's possible that we need less insulin because our body weight decreases, but we are still diabetics that need insulin.

If your diabetes "goes away" after surgery, you are not a LADA/Type 1.5. 

I'm jealous of all you straight Type 2's - gotta say!  :-)  But, still very happy with my surgery and the improvements I'm saying
Lacey S.
on 1/4/12 12:37 pm - OR
 Would a person still be considered a type 1.5 if the type 2 was reversed?   As far as I know type 2 is insulin resistance and if that can go away with weight loss.  So, IF that happened would someone then be considered just a type 1?  or are you 1.5 for life?  It doesn't really matter, I was just curious. You seem to know way more about it than I do...
I hear ya though....all this would be so much simpler if I just had type 2 to deal with!  Ugh.
funkyphillygirl
on 1/4/12 1:03 pm
That's a good question, and one for an endocrinologist.  But I think you'd still be Type 1.5 because, as I understand it, you don't change types over the course of the disease (unless you were misdiagnosed in the first place).  There's a lot at work behind the scenes and this article might help to explain it:
http://en.wikipedia.org/wiki/Latent_autoimmune_diabetes

There are several tests that can lead to and clarify the diagnosis, including GAD and islet cell antibody tests.  Have you had these done?  Mine conflicted with each other and we used the c-peptide as a sort of "tie breaker".  By the way, I did not have these done until 2010 when I was 24 years into all of this.  Various doctors always thought I might have been LADA, but never did the tests until I was considering surgery.  It was important to have clarity on the type I had so that I could adjust my expectation of what surgery could and could NOT do for me.

I've had very positive outcomes from the surgery in terms of my medication, but I still need metformin to address my insulin resistance.  It works quite well now on half the dose I took prior to surgery.  My insulin needs have also decreased (even before any significant weight loss) and am getting much better control from it as well.  FYI, diagnosed at age 29, lost significant weight at diagnosis but did not respond well to oral medications.  I was at my lowest body weight as an adult within a year of diagnosis and went on insulin.  I've been insulin dependent for 24 years and diabetic for 25 years - now 54 years old and just under 4 months out from surgery.

Lacey S.
on 1/5/12 11:44 am - OR
 Honestly, I don't remember what kind of tests I have had done.  I see the endo tomorrow so I'll try to remember and ask if he has any of my old records.  I just know they confirmed the type 1 when I was a kid and then again for my pump when I was 25.  
I think my problem was when I was in high school my parents died and I was really stressed out.  So to control the blood sugars the dr just said to keep increasing the insulin.  Well, that just made me hungry so I ate more and learned to take even more insulin to cover it.  Well, now I'm trying everything to lose weight and it doesn't come off...so I ask the dr what to do and she says I take too much insulin.  Well, I don't think my health issues will improve if I cut back, have higher sugars, and go into ketoacidosis...so uh no not gonna take that route.  Most drs. just look at me and think I'm a typical type 2 so they don't run any tests.  My endo is cool and understanding though so we'll see what he says about all this.  
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