Question for Type I diabetics

moving-on
on 9/11/11 1:04 am - Rimrock, AZ
I am 11 mos out.  I have been on a insulin pump for 10 years.  For the first 10 mos I didnt have to bolus or take insulin for anything I ate.  Now at 11 mos out, my sugars have started to really fluctuate, I have noticed that I need to bolus for my meals.  I was wondering if it is because my system is no longer malabsorbing ???
Has anyone had any experience with this?  My weight loss has been horrible slow and now with needing more insulin it is even going to harder to lose the weight.  (I have that insulin makes us fat, I hate that I even am diabetic, wahhh, wahhh)
I would love some suggestions that anyone has to offer.  I would like to lose another 10 lbs before my 1 yr out mark.

Thanks in advance everyone,
Debbie
Moving on to better health        
deltadawn9
on 10/10/11 9:51 am
I am a type I 8.5 months post op with 98 lb loss. I am using less and less insulin as my weight drops. I am down to using 11 units total a day and only bolus usually about 1-1,5 units for a meal. Prior to surgery I was using 150 units a day in my pump. My A1 C is 5.8. I think that the insulin resistance I had with being obese is pretty much gone so now I am just dealing with the type 1. How much insulin are you still using? I think weight loss for us may be slower making exercise even more important. The other thing might be to write down everything and measure as our pouch gets bigger so does our portion size.
            
funkyphillygirl
on 10/10/11 1:33 pm, edited 10/10/11 1:34 pm
I am 4 weeks post op from RNY - Type 1.5 diabetes for 25 years.  3 orals are gone, 1 injectable gone and much less insulin over all.  However, I am still struggling to get my blood sugar stable while exercising an hour a day.  I usually drop 100-140 points when I do exercise for an hour, so have to do it after eating and not taking any Novolog.  But, the kicker is that I seem to get a second drop about 12 hours later (usually very early morning) from the exercise.  With my doctor's guiance, I've reduced Lantus dramatically and am now trying to use it in the AM (vs. at night).  Still spiking some highs, so feel like I don't have enough basal coverage.

Is there anyone out there who experiences issues with exercise like this? 

Congrats on your great HbA1c!!  That's exactly why I did this - hoping for #s like that soon.
moving-on
on 10/12/11 8:33 am - Rimrock, AZ
Wow, Thanks for the replies. I actually have had my blood sugars level out. Things are better. My weight loss not so. Makes me sad, but yet I am happy where I am at. Will still try to get to maybe 135. I do exercise. I have been walking about 2 miles a day. I did start late on my exercising, did start until maybe 6 mos out. My log my food everyday. I am averaging 1100-1200 calories a day. Ok by my surgeon. He is ok with my weight loss.
My insulin levels went from 90-100 units a day to now 25. I do not bolus for meals, if I do my sugar drops horribly.
Deltadawn, I am jealous, you are doing great. Your weight loss is better than mine and your insulin levels are just great. Good job. I have been trying hard not to compare my loss to others as it will just depress me. I am doing everything my surgeon recommends and eating very healthy. So, will try and be happy for what I have and keep trying.
funkyphillygirl, when we exercise it does will play with our levels. you may want to try and have some protein before you exercise to see if that would help with the lows. Good luck to you.
Thanks to the both of you for responding to me. I thought I was all alone in this world and no one liked me
Moving on to better health        
funkyphillygirl
on 10/12/11 2:12 pm
I know what you mean when you say you feel "all alone out here" with this.  I troll this forum daily to see if there is any activity.  I researched my butt off for 9 years trying to find info on the impact of this surgery with Type 1.5's!  Virtually nothing.  Sometimes it's strange to try and manage all this in a vacuum.  Our issues are a bit different.  I once had someone say that it must be a lot of work trying to be a pancreas, along with everything else we are.  And that made a lot of sense to me.

Thanks for the suggestion.  I never exercise without eating first.  I usually try to time my exercise to the 2nd hour after a meal when I know I'll be spiking up.  It does help.  It's the second drop at 5-6 a.m. that is kicking my butt right now.  I have to treat with a simple carb and then I live in fear a bit of dumping.  But, so far, I haven't experienced that (thank God!).  I know I'll find the sweet spot of the right basal dose, but it's going to take a little doing.  Just switched to Lantus in the AM this week to see if that helped.  Jury is still out on that one.  At least my endocrinologist is fabulous and actually texts with me about this.  I am lucky to have him!

I think you are doing GREAT!!  It's so easy to get focused on the weight loss comparison game.  The biggest benefit is your blood sugar improvement on about 25% of what you used before!  Congrats - that is a HUGE goal that you've accomplished!!  Terry (aka funkyphillygirl)
tknight334
on 4/25/12 2:41 am
RNY on 03/26/12
I am type 1 and had the rny and now have to be on tpn to get my nutrition I am really scared that I messed up I did this for my diabetes.  My doctor is good but when I eat I get sick feeling and really uncomfortable.  I can not drink either. I am really scared. did any of the other type 1s experience this???
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