Recent Posts
Topic: RE: reversed my RNY
Did the surgeon that did your Ryn also do the reversal? And does insurance pay for the reversal? I had mine in January too and my health is worst than ever. I want mine reversed and don't want my surgeon to give me his stupid pep talk anymore....I see him in a week and want him to agree with me this time. Thanks for the info and I hope you are feeling better soon.
Marie.
Marie.
Topic: RE: Think I am done
I've been waiting to share with someone that has been going through the pain/suffering that i have been. I'm just sorry we have to share the complications of RYN together. I have reached my end as well with the rollercoaster ride I've been on since I had the surgery. It wll be a year in January and let me just say I look horrible, feel horrible and don't have the motivation, energy, personality I once had. Solid foods are unbearable, I feel everything is stuck inside my chest, getting my protein levels are a joke, especially when I barely can keep anything down. The worst part for me is my husband and kids see me wasting away and constantly worry over me. I went from a size 24 to a size 0 or 2 in less than a year. Can you imagine how frail I look? I see my surgeon after Thanksgiving and actually want to beg him to reverse my surgery, but I'm not holding my breath on that topic. I did all the research and thought I was prepared for the RYN, but I guess my body had different ideas. I just want you to know that I feel your pain and hope you find some comfort in knowing you have others to share it with. I really wish you peace and health.
Marie.
Marie.
Topic: RE: Think I am done
Julie,
No need for thanks :) It is nice to have people to talk to, and the reality is, people who have problems don't usually go to support group, problems gaining or losing weight- yes, but people don't usually talk about devastating health issues that come afterwards, for whatever reason, at least in my experience. Take care, and fight for YOU :)
Jules
No need for thanks :) It is nice to have people to talk to, and the reality is, people who have problems don't usually go to support group, problems gaining or losing weight- yes, but people don't usually talk about devastating health issues that come afterwards, for whatever reason, at least in my experience. Take care, and fight for YOU :)
Jules
Topic: RE: Major Complications Almost 6 years-Chronic Nausea, vomiting, pain, severe deficiencies-less than 1%
Quick Update
Have an appointment with neurology at UCLA today. Hoping to see if anything is going on like nerve damage from abdominable surgeries but my vagus nerve is still in contact as far as i know. Will give update tomorrow as I will be tired when I get home later.
Have a good Thanksgiving all.
Have an appointment with neurology at UCLA today. Hoping to see if anything is going on like nerve damage from abdominable surgeries but my vagus nerve is still in contact as far as i know. Will give update tomorrow as I will be tired when I get home later.
Have a good Thanksgiving all.
Topic: RE: Incision Leak???????
I have this too, visited the doc today and he says the same thing, it is "liquid fats mixed with blood clots" from its way out the body. It is a part of healing.
Topic: RE: Think I am done
Jules Thank you so much for writing me it feels so good to have someone to talk to .. I am so very sorry for what your are going through . I have been going to different Dr.s in Las Vegas for about 4 years now getting pushed to one Dr. to another . then they sent me to a gastric Dr. I have been seeing him for some time now . Hes the one who found my ulcers .I do have to say that Iam really grateful for him after all these years he is the only one who has tried to help me . he sent me to a blood Dr for my iron. my damage is also permanent it really feels like body is deteriorating and over the years it just has gotten worst . Last week when I went to the Dr's. and getting told that they (the Dr.s) cant do anything for me any more . I just was so shocked . I try to be so positive but when Iam in so much pain its really hard to be positive .
again thank you so much for writing me back its nice to have someone to talk to.
Julie
again thank you so much for writing me back its nice to have someone to talk to.
Julie
Topic: RE: Think I am done
Julie,
First, I'm very sorry that you are so ill and having so many problems. I too have been suffering for about three years and for me the damage is permanent, but it's complicated and every case is different, so I don't say that to discourage you or scare you more than I am sure you already are. Please check out my page so you can get a feel for what I have gone through, not sure if it is the same as what symptoms you have had. I think the best advice is to get somewhere that really knows their stuff, like Cleveland Clinic (That's where I have been going), and I realize that this may mean driving hours or getting on a plane, but I really wish I had done it sooner. I'm not going to speak for all people, but here is something I have learned through this experience...I think a LOT of people who have these surgeries start putting their surgeon on a giant golden tower, only slightly right of God, I don't think I was quite that far gone, but close to it. It was a little more complicated for me because I worked with the doctor, so the level of trust was even greater than the normal person. I think that some patients start this hero worship thing, and I do still believe in the surgery, but some people need to wake up, it is just a tool, believe in yourselves. It is the patient that does the work, the patient who goes through the ups and downs. The surgeon does a job, gets paid, and they may have a "passion" for it, but it is also a lucrative business. I'm sure I sound like sour grapes, but I have just really become disgusted with hero worship lately and when you are the patient who is so ill, it doesn't help. You have to get the BEST care, the most skilled, no matter what. You have been at this for so long. Please feel better. It looks like the closest city to you is probably Vegas, and you should do your own research, but I can give you the benefit of mine...Mayo Clinic is #1 in the nation for Digestive Disorders, and Cleveland Clinic is #2. It really was a fluke that I ended up at Cleveland, and they have been a Godsend. They helped me more in 5 days than I had progressed here in 2 years, but when you are caught up in it, there is so much faith and trust, you can get really blinded and start believing these doctors when they tell you nothing is wrong, or they can't find it. Have faith, you will have to put your trust out there again, a little at a time, but trust YOU because you know that you are not crazy. Take care, and get well!
Jules
First, I'm very sorry that you are so ill and having so many problems. I too have been suffering for about three years and for me the damage is permanent, but it's complicated and every case is different, so I don't say that to discourage you or scare you more than I am sure you already are. Please check out my page so you can get a feel for what I have gone through, not sure if it is the same as what symptoms you have had. I think the best advice is to get somewhere that really knows their stuff, like Cleveland Clinic (That's where I have been going), and I realize that this may mean driving hours or getting on a plane, but I really wish I had done it sooner. I'm not going to speak for all people, but here is something I have learned through this experience...I think a LOT of people who have these surgeries start putting their surgeon on a giant golden tower, only slightly right of God, I don't think I was quite that far gone, but close to it. It was a little more complicated for me because I worked with the doctor, so the level of trust was even greater than the normal person. I think that some patients start this hero worship thing, and I do still believe in the surgery, but some people need to wake up, it is just a tool, believe in yourselves. It is the patient that does the work, the patient who goes through the ups and downs. The surgeon does a job, gets paid, and they may have a "passion" for it, but it is also a lucrative business. I'm sure I sound like sour grapes, but I have just really become disgusted with hero worship lately and when you are the patient who is so ill, it doesn't help. You have to get the BEST care, the most skilled, no matter what. You have been at this for so long. Please feel better. It looks like the closest city to you is probably Vegas, and you should do your own research, but I can give you the benefit of mine...Mayo Clinic is #1 in the nation for Digestive Disorders, and Cleveland Clinic is #2. It really was a fluke that I ended up at Cleveland, and they have been a Godsend. They helped me more in 5 days than I had progressed here in 2 years, but when you are caught up in it, there is so much faith and trust, you can get really blinded and start believing these doctors when they tell you nothing is wrong, or they can't find it. Have faith, you will have to put your trust out there again, a little at a time, but trust YOU because you know that you are not crazy. Take care, and get well!
Jules
Topic: RE: Roux-N-Y & Colectomy
I might be of some help. Minute, but some. I know what a colectomy is and you still need to nourish. I assume your small bowel is still intact? That's the one that does the absorbing of nutrients. The colon had a purpose, but if it's gone, well, it's gone. We move on and work with what you DO have.
Michelle
RNY, distal, 10/5/94
P.S. My year + long absence has NOTHING to do with my WLS, or my type of WLS. See my profile.
Topic: RE: reverse gastric bypass
I am in the hospital at BGH as we speak. I also want to reverse my bypass, have been sick with pain, nausea, dry heaves. Been in the hospital for Malnutrition, have a G-Tube now and also a PICC for fluid. Does anyone know of any surgeons that preform this surgery in Western NY. Dr. Alan Posner was the surgeon who gave me the bypass. Great doctor, but not sure if he knows how to reverse it or if I would be a first for him.
Topic: Roux-N-Y & Colectomy
Hello everyone!
In spring of 2005 I have my surgery. 2008, I was dx with "mega Colon", and had to have my large intestines removed. I successfully maintained my weight until the mega colon which was a birth defect BTW. I am reaching out to anyone who might have had a similar experience. I was at goal, 155-160. and now I am about 200 from 311. I started at. each day id a struggle for my to try to maintain under the cir****tances. How do I eat for Gastric surgery & Having no colon, eat that way (high fiber) and such? Its all so confusing and I am overwhelmed. I am very upset. I was in in so much pain b4 the colectomy, but Sometimes I feel It thew me off track for weight loss. Live in an area that caters to the lap band so I have been to so many Doctors, and I always walk away feeling discouraged. IDK...Any one care to share?
In spring of 2005 I have my surgery. 2008, I was dx with "mega Colon", and had to have my large intestines removed. I successfully maintained my weight until the mega colon which was a birth defect BTW. I am reaching out to anyone who might have had a similar experience. I was at goal, 155-160. and now I am about 200 from 311. I started at. each day id a struggle for my to try to maintain under the cir****tances. How do I eat for Gastric surgery & Having no colon, eat that way (high fiber) and such? Its all so confusing and I am overwhelmed. I am very upset. I was in in so much pain b4 the colectomy, but Sometimes I feel It thew me off track for weight loss. Live in an area that caters to the lap band so I have been to so many Doctors, and I always walk away feeling discouraged. IDK...Any one care to share?