My husband has short gut syndrome too. He had a carcinoid tumor where the small intestine joins the large intestine. The removed his ascending colon and some of his small intestine along with some lump nodes and the lining of the intestine. So I understand what you are going through. You are going to take a while to heal so be patient. I will PM you with our phone number if you have any questions he will be glad to talk to you and give you advice. He is also a RN.

I had emergency exploratory surgery on May 13, 2011 due to abdominal pain. I had a bowel obstruction and 90% of my small intestines were dead and removed. I flatlined on the OR table and now I'm on TPN.  Not to mention, my RNY was reversed.

I had RNY in 2006 at one of the best hospitals and one of the top surgeons in San Diego, CA.  I began to have major abdominal pain all throughout 2007-2011.  I'd go to ER yelling and after shooting me up with morphine and sending me to xrays, everything would be fine and would be sent home.

It was never diagnosed that I had a bowel obstruction. My surgeon and PCP believe that I always had a "kink" that would just come and go which caused the pain.  On May 13th, it was a full blown bowel obstruction and all or my intestines were tangled up. 

Now I'm dealing with short gut syndrome and moving forward.  It was a horrific experience nobody should go through.

Wow.... just replied to another post of yours.  I'm having similar issues..... could you post any new information if you find out anything?  I totally know how trying it is..... i've been taking pain meds for months, but I'd like to know why its happening in the first place.

Thanks. I've been tested twice for H. Pylori and was negative. I'm going to a teaching hospital, U of Florida - Shands. They want to do a small bowel enteroscopy, which is similar to the double balloon enteroscopy as far as I can tell. Unfortunately I have to wait until July 11th for the damned test. The doctor wants to rule everything out before he takes me into surgery for adhesions which i understand, but I really really want to feel better.

Not all ulcers are healed with PPI's. If it is caused by the bacteria HPyloir, then it needs a combination of antibiotics and PPI's.  Unfortunately it is tough to diagnose an ulcer in the remnant stomach.  There is a new scope out there called a double balloon endoscopy that can go up through the intestines and into the remnant stomach but not all surgeons or Gastro doctors do it.  You might want to check out local gastro doctors or find a teaching hospital not far from you to find someone that does it.

As far as adhesions, they don't show on any test - hernia's usually do but it is possible to have twisted intestines due to the adhesions.  The only way to find this out is by going in and having exploratory surgery.  I had this problem back in May of 2009.  I also thought I had an ulcer in the remnant but once the surgeon fixed the adhesions and untwisted the intestines, the pain was immediately gone - even in the recovery room.

Keep pushing your surgeon or find  a new one.