Recent Posts

RieBello2
on 6/17/11 1:02 am - Mount Clemens, MI
Topic: RE: 2.5 years since I had my RNY REVERSED
I'm on that downward spiral! I want mine reversed as well-my weight is 105lbs and I feel just awful every freaking day....no energy, no appetite, and I feel depressed. I can't even look at myself in the mirror at times, I don't want to see my bones sticking out at me. I see my doctor next week and just want to end before i lose my mind. Thanks for sharing and I hope the best for you.
                                                                          Marie
reversedgrace08
on 6/16/11 12:20 pm
Topic: 2.5 years since I had my RNY REVERSED
reversing my RNY was THE BEST thing I could have done. It has stopped the downward spiral my health and even restored some of my ailments.
yes I gained my weight back, but i also gained my life back. now i have the possibility of being here to see my children marry and graduate from high school and maybe one day grandchildren to love. if i didnt have the reversal it is very likely i wouldnt be here now to type these words that i hope will help somone see they are not alone.

here is a study showing just SOME of the possible complications from bariatric surgery.
http://www.neurology.org/cgi/content/abstract/68/21/1843



if anyone would like to talk you are more than welcome to email me at [email protected].

Grace
(deactivated member)
on 6/16/11 2:41 am
Topic: RE: Complications after BPS/DS
Hey Sandra, sorry to hear about your troubles.

What jumped out at me immediately was your surgeon.  I've never seen his name before as someone performing the DS surgery.  It's a very complicated procedure and as a result those of us old timers are really on the lookout for newbies.

If you haven't done so already, I would suggest coming over to the DS board.  We are very knowledgeable about this surgery, and supplementation, and a very important place for support for DSers.

wishing you luck.

Sharon
DivaJojo
on 6/15/11 1:59 am - Atlanta, GA
Topic: RE: Re-Sleeve or DS? Need Help!

I also heard the "never trust a fart" advice, but have only experienced that once . . . perhaps because I was so paranoid about it that I never took any chances.  I can tell you that early on when I was compliant with primarily protein, cutting carbs way down, etc., my normal routine was to have one main elimination (bowel movement) in the morning, then I would urinate several times during the day and maybe a couple at night.  Didn't have major issues with gas unless I indulged in carbs or sweets.

Now, I'm getting back on track after a 2 year free for all of eating all the wrong things (food is still my coping mechanism, but I'm conquering that each day now).  During the two years I was usually bloated and gassy.  Could have several, not-so-solid, extremely smelly eliminations during the day and terrible, terrible, terrrrrrrrrrrible gas.

In the just over three weeks that I have been back on track, my body has gone right back to a morning elimination (smelly, but not NEARLY as bad), several bathroom trips to pay the water bill and so far I have passed gas once each day, later in the evening (again, not pleasant, but not the crime against nature that it was before).

This is just from my experience, but I hope it helps.

Diva Jojo:   SW:  440lbs -- CW:  274lbs  --  GW:  240lbs

    
sandrasoren
on 6/12/11 2:54 pm
Topic: Complications after BPS/DS
 Hey all,

I just wanted to share some of the complications that I experienced after having my BPD/DS procedure in January.  

Complication #1- I had the procedure and woke up in recovery fine, got up and walking a few hours after surgery.  I started having chest pain and they took some labs and did an EKG but everything came back normal, two hours later I woke up in a panic because I was having trouble seeing and didn't feel well.  They took labs again and found that I had internal bleeding (my hematocrit had dropped significantly).  I went back under the knife, and they repaired numerous micro-bleeds throughout my abdomen, gave me 6 pints of blood and 1 bag of plasma.  I obviously did survive, and started back on the path to recovery.

Complication #2- I was still having some issues with recovery a couple weeks after surgery and "sprung a leak" of clear fluid.  I ended up with a softball sized seroma.  It took a couple more weeks for this to completely drain with the aid of a "wick"

Complication #3- 3 months out from surgery I got a partial hernia.  I have not gone back under the knife for this one, as they believe with restricting my amount of weight lifted for almost a month would allow the muscles time to heal.  Considering the inital surgery I was willing to give it a shot.  Thus far it seems to have resolved itself. 

Complication #4- 2 months after surgery I started having some skin issues (rash-like) going o see a dermatologist soon, but thus far they have been throwing steroid creams and lotions at it even anti-fungals and nothing has worked.  :(

Above all I wanted people who are going to get the surgery to realize, there is a chance of complications with any surgery.  You have to weigh those options when deciding, but my life is so much more improved even with the complications that I had.  I would most definitely do this surgery all over again if given the choice, and I hope others that have complications can keep positive.  Good luck to you all in your journey!
~Sandra

SW-237     CW-120      GW-130         HT-5' 0.5"
DS - 1/18/11

    
Amz
on 6/12/11 7:40 am - CA
Topic: RE: Major Complications
Oh my gosh Gus!!

I'm so sorry to hear all of your health problems, but am so relieved they were diagnosed and you are somewhat on the mend.

All my best to you and your family!!

Amy
Amz

HW 273/ PSW 253/ SW 250/ CW 211/ 1st GOAL 200/ 2nd GOAL 180
  
serious
on 6/9/11 8:20 am
Topic: RE: Can Vitamin Deficiencies Affect Weight Loss after WLS?

Hi Sheryl,

     Find a doctor who specializes in bio-identical hormone replacement.  You want someone who has you do  a saliva test. They look at all your hormones, and replace based on what you're deficient in... Usually it's the anti-aging doctors who do this. I see one in my area who is a chiropractor. She has me send  the saliva samples to the lab, we look at the results together, and she replaces them accordingly. She also does more specific tests for my thyroid and blood work. My vitamin D was very low.
     After these simple tests and replacing what needed to be replaced, I feel like a million dollars. I'm not saying this is your problem, but sounds like you've tried everything else, and at least it's worth a shot.

Good Luck.

Renfairewench
on 6/7/11 7:58 am
Topic: RE: RNY to DS revison and complications
Oh man Trudy...what a horrible thing you have gone through.

Fistulas suck..they are a nightmare for patient and surgeon alike. I thought for sure that I would wake up without a stomach, but I had a promise from the surgeon that he would not reverse my intestinal configuration if that happened. I did not want my DS taken down. I did have more of my stomach removed, and that was fine, but I have no pylorus now and the thing that I can't seem to adjust too despite having a pouch from my former gastric bypass, is that I rarely ever feel full. I mean, I feel like I could just eat and eat and eat. Thankfully I do eat mostly protein and fat, but I feel like I can eat so freaking much.  I struggle to keep my weight around 160-165. I do go poop about 10-12 times in a 24 hour period, but I have notied that when I eat less fat I go less often. That might be what is in my future. I might have to lessen my fat intake.

I'm sorry that you have had such horrible and life threatening complications. I do hope that you will be able to feel better. I'm sure you are working on your vitamin regime.

Maddie
 

                   HW (pre RNY) 430 HW (pre DS) 302 / SW 288 /
                          Lowest weight 157 / CW 161
GW 150
                "I'm just one stomach flu away from my goal weight"
                                       
Trudy O.
on 6/7/11 7:23 am - TN
Topic: RE: RNY to DS revison and complications
I understand exactly what you have been through.  I developed a leak and infection after my revision.  I was in the hospital for 2 months.  Complication there were- collapse lungs, blood clot in lungs, pneumonia, DVT and infection from PICC line, c diff.  I didn't eat the 2 months I was there.

Since then I have had multiple surgeries for scar tissue blockage, feeding tubes inserted, supposedly reversal surgery.  I didn't get better from any of these surgeries, I was having 15 bms a day.  I was on and off of TPN and tube feedings.  On one admission to Vanderbilt I was seen by different surgeons (mine was not in Nashville) and they told me that I had fistulas to my colon (this was december 08).  I called my surgeon and spoke to him and he said that I did not have any he was just in my abdomen doing surgery.  Last after the reversal surgery and still no improvement I asked for a second opinion.  They did test that once again showed fistulas in my stomach.  I was referred to Mayo Clinic where I had a total gastrectomy.  Immediately I did not have anymore diarhrrea My recovery was complicated by my incision opening and requiring a wound vac to heal.  I was underweight before surgery and now I have gained 50lbs (not happy).  All of that and I still feel like crap.  I have to have weekly B12 shots and frequent iron infusions.  It has now been 3 1/2 years since the revision.

Trudy



SW 280  CW 170 GW 180

Sheryl_Williams
on 6/6/11 6:37 am
Topic: Can Vitamin Deficiencies Affect Weight Loss after WLS?

I am just about beside myself.  I had the RNY in February of 2008 after having taken the six-month class and lost 10% of my weight to qualify.  I weighed 306 when I started, and got to 276 at my last class.  I was one of the few *****ached their goal weight, even though we all had the surgery.  I was the star pupil, TOTALLY motivated and EXCITED about the new me!  I was already excited at having lost the 30 pounds, and couldn't wait to lose the other 100, as my goal was about 180.

I lost 30 pounds in about three months - and then came to a screeching halt.  I meticulously charted my calories, my carbs, my fat content and weighed my food until I thought I'd go insane.  It was all I thought about.  It took over my life.

At 230 pounds . . . it made no sense . . . I could run -- RUN for 45 minutes without stopping!  I'd never done that in my life.  I could do 45 minutes of sustained step aerobics.  I took pictures of myself, measured and weighed myself every day -- which was something that was part of my denial in the past -- looking for something, ANYTHING to give me the fuel to keep going.  I no longer wanted to be denial.  I wanted to see me for how everybody else saw me, and I wanted that to be my motivation to keep going.

Weight loss is its own reward.  You are no longer rewarding yourself with food, so the reward you are getting from your denial is the physical results of how you look.  But I was no longer being rewarded for my efforts and I wanted to know why.  I was running out of steam and I just wanted results.  That's all I wanted.  I went through this for six months of the following:

I started going back to my surgeon, and went to see him at least six times, even once after my insurance would no longer cover seeing him.  He's WONDERFUL . . . but after the last visit with my husband, where I broke down & cried, not able to believe I'd had someone rearrange my insides and made it HARDER to lose weight, he told me, "It might be your metabolism."  WHAT?!  How can that be?!  No one told me that could happen!  What does that mean?  How can we fix it?  You mean NOW I have all the "want to" in the world, which I never had before,  I'm TRAPPED in obesity?!

Finally, after many other doctor visits, I went to see the head endo who approved my surgery, who is 45 minutes away.  He lacks severely in bedside manner, but he was my last choice, really.  Prior to me seeing him, I had done so much reading online and have hundreds of bookmarks trying to figure out why I stopped losing weight.  During this time, I had emailed my own doctor (who was out due to surgery herself and had a stand-in), and I told the stand-in what tests I wanted run.  He ran them, no questions asked. 

Fast forward several weeks later when I drive down to see the endo.  All those tests were now in the computer.  When he walked in, I was at my wit's end.  He asked me how I was.  I said, "That depends on this visit."  He said (and I quote), "I only have 20 minutes.  I have other patients to see."  Gee.  Thanks.

 

I tell him the truth: that I'm having trouble losing weight.  MIND YOU - never in my life have I ever said this to a doctor.  Ever.  It was stupid to make such a lame excuse and say something like that when you know yourself that the reason you can't lose weight is YOU, your OWN lack of self-discipline.  So up until this point, I'd never let those words escape my mouth, because before the surgery, it was a lie, and I knew I could lose it.  I just didn't do it.

But now . . . now I really couldn't, and I feared that he was going to take my complaint just as he takes everyone else's complaint -- an excuse.  And yet . . . you go to the doctor and you tell them what's wrong, don't you?  Anything other than the truth would be a lie.  So . . . why can't doctors hear what you're saying instead of making their own assumptions based upon what THEY think you're doing?

He critically and quietly views all my test results from all the tests -- that he didn't know I ordered.  Without even glancing way from the computer screen, he says (again, I quote), "Whoever your personal endocrinologist is, is an excellent endocrinologist."  !!!!!!!!  I look the man in the face and say, "I HAVE no other endocrinologist.  Those tests?  No doctor made the decision to run those tests.  Those tests are in the computer because I requested them to be run.  If nobody else cares why I had my insides rearranged and can't lose weight, I'M going to figure it out."  He was speechless.  One point for me.

At the end of the visit, he states he doesn't know why I can't lose weight.  He suggests that I'm depressed and suggests medication (to which I respond - "Let's fix the problem, not a symptom of the problem.  Fix the problem, and any sad feelings will go away.  Not the other way around.")  He also suggests that since he personally (but an out-of-state doctor) did not diagnose me with PCOS, he questions the diagnosis, and says that even if I don't have it, my lab results are normal, and it's not acting up, and it's not the reason for the difficulty.  He suggests an endoscopy (which I paid $150 for a few weeks later) to check the surgical connections, and says only if that shows a problem will I be able to get a revision.

Although I still cried all the way home, I had some solace in the fact that I wasn't crazy.  A board-certified endocrinologist for the Southern California region couldn't distinguish my orders from a real doctor's orders.  Little old me.  With a business degree.

Two months later, I go back to him with the endoscopy.  But this time I bring my husband.  The doctor walks in, SHAKES our hands, and proceeds with a 45 minute visit that we can barely get him to stop talking!  He was a different person at this visit.  The diagnosis . . . ?  "It's your PCOS," he states.  This is the same man who told me two months before that he questioned whether I had it, and even if I did, it WASN'T the reason for my difficulty.  Does he even know what he's talking about???

 

Since that time, I've all but given up.  I have several times started to lose weight, I start losing for a few weeks, and the same thing happens.  Everything stops.  In mid-March I started back up again and lost 10 pounds in three weeks.  Five weeks after that?  I was still where I was after three weeks.  I was doing the same thing but getting no results.  I had obviously been doing something right to lose the 10 pounds, so when the results stopped coming, it wasn't because I wasn't doing things right, but that my body stopped responding.  It's like being chained to a tree!  You can run all you want, but if you're chained a tree - you're going nowhere fast.

I have gained some of my weight back, and it makes me ill.  The weight gain is no one else's fault but my own, but I had no reward for continuing.  Deprivation and a new lifestyle is supposed to have rewards.  There were none for me.  Why continue to run if you're chained to a tree?  And when you DO ask for help, no one believes you?  What do you do with that?  I have so many marks and goals on my calendars and various charts I've made to pull myself up by my bootstraps and start yet again.  Now, every week, I watch myself miss goal after goal after goal, even when I'm continuing to do what allowed me to lose weight before.  I'm doing what I need to do to reach my goal.  My body isn't.

But this time . . . dealing with weight gain is very different from the old me prior to surgery.  Before surgery, I would have just bought bigger clothes, and that would have made me feel pretty when other clothes got too small.  That would soothe the pain of having gained weight, and I'd just forget all about the sadness I felt about the tight dress that no longer fit.

Now?  I don't allow myself to do that anymore.  I no longer buy bigger clothes.  Instead, I LET myself feel the pain and the frustration of getting dressed for church and putting on things that don't fit.  I face it.  I let myself feel ugly.  I intentionally box myself into a decision: be miserable or change.  The old Sheryl never would have done that.  That's how I got to 306 pounds - I kept making allowances.  I don't do that anymore.  I let myself feel the discomfort so that I'll be uncomfortable enough to DO something about it!

But what do you do when YOU'RE doing right . . . but your body isn't?  At this point, I'm ready to pay the $$$ and go outside of my PPO to go see someone who specializes in minerals and hormones.  I don't even know where to start with that.  But something's wrong.  I've had my thyroid checked a million times.  The blood tests all say everything is normal.

Now I pray every time I go to the mall or to the store that I don't run into anyone from my class.  I already feel like I failed -- even though I know it wasn't me but my body -- and couldn't stand for someone to pass even more judgment on me.

The only thing that's been consistently off in my blood tests is my Vitamin D.  My surgeon said that has nothing to do with my inability to lose weight.  But, by the same token, I had an RN, who herself had the surgery, tell me (and I quote): "I do know this.  If you're deficient in anything, you won't lose."  But yet I know people who have had the DS who are seriously anemic who lose!  I don't understand it.

So I say all that to say this . . . if anyone has any knowledge or help in the area of vitamins and/or minerals or hormones that could be an issue for me, or the type of doctor I need to go see . . . I've spent hundreds of dollars already and have all kinds of food journals, et cetera.  When you do what you've always done and you don't get any results, it's time to do something you've never done.  And that, for me, means going a different route with a different kind of doctor.

To have what you've never had, you must do what you've never done.  Victories don't come at discount prices.
Most Active
×