Recent Posts

(deactivated member)
on 12/3/11 1:29 am - MD
macrobin
on 11/29/11 10:21 pm
Topic: RE: Joint pain and muscle soreness 3 years post-op RNY
Hi!  I saw your post about considering RNY reversal due to your joint inflammation and pain.  I've been experiencing some similar issues over the last few years.  I'm ten years post now.  However, I've learned how to alleviate the pain and get myself back on track.  Please send me an email to [email protected] and put your name in the subject line so I know it's from you.  I'd love to share with you how to get your body back to normal and live life again!

God bless!

Robin

Open RNY 8/30/01

325/200

http://macrobin2000.tripod.com/

 

 




 

jbird1972
on 11/24/11 3:36 am - Cary, IL
Topic: Happy Thanksgiving everyone!
 Hi all,
I know it's hard sometimes to find things to be thankful for in the midst of all the illness and pain, but I am sure that we all have those family members, even a friend who is totally there for you no matter what. I try and think about people around me that may be worse off than I am and focus on them/their family. It keeps things in perspective. 
Have a great holiday surrounded by the people who love you

Jules RNY 10/30/2007

jbird1972
on 11/22/11 10:48 am - Cary, IL
Topic: Anyone have a PEG tube for venting/decompression? This is not going well so far
It took me a few days after surgery to start eating solid food again, and as soon as I did all the food I am eating goes from my stomach and then into this tube.  I wasn't sure if it was food at first, but some colorful M&M's that I had eaten to raise my blood sugar (I was at our daughter's concert and desperate) told the tale...colorful little bits started coming down the tube about 30 mins after eating them, and it's that way with everything I eat.  I mentioned it to Dr. Guske when I saw him for my labs yesterday and he said that there should not be food coming out and into the tube unless there is a blockage further down in the stomach or small intestine
Anyone else with a PEG have this problem, and what was the cause? I don't know how much longer I can deal with this pain, it has not let up at all.  I did speak with Dr. Kroh's RN today at Cleveland Clinic, she had texted him and for the next couple days they want me to keep and eye on it and the pain, they don't want to rush into anything drastic.  I think they are hoping that the food coming out is due to severe swelling of the stomach.  I would welcome any feedback from anyone who has had a similar issue...Thanks
Jules

Jules RNY 10/30/2007

jbird1972
on 11/21/11 3:37 am - Cary, IL
Topic: PEG Surgically placed/Gastropexy done...Oh, the pain
I did go to surgery the next day, still a nervous wreck.  I kept thinking about how much the liver can bleed when messed with, and that's when too much medical knowledge can be a bad thing when you are the one that is sick.  Each person in the OR assured me that they were going to take excellent care of me, and wouldn't let anything happen to me, I had to believe it, just so I wouldn't go insane.  I'm not sure how long I was in surgery, but when I woke up in recovery, the pain was the kind that makes your whole body twitch, even my toes hurt.  I also woke up with an IV in my neck, external jugular...I kind of figured that was going to happen, I only had one IV left going into surgery and it was barely hanging in there and small, only a 22g. It took a long time for them to get my pain under control in recovery, and then I went upstairs to my room and all the pain was back again as they moved me to my bed.  There was some sort of mix up in the post-surgical orders, so my pain med was still set to what it was pre-op, and my RN had to fight with a resident to get it straightened out...he didn't read my whole chart, just saw PEG tube placement and couldn't figure out why I would be in so much pain.  He missed the part about surgical placement, massive adhesion/scar tissue removal, and Gastropexy.  They already knew that the liver and stomach were stuck together, but there were a bunch of other adhesions throughout the abdomen that they took down.  This surgical pain has been the worst so far, even worse than the last one that was an open procedure.  I left the hospital in Cleveland on Saturday, and they sent me home with oral Dilaudid because the pain was still very bad, with instructions to take it regularly every 3 hours.  My PEG tube is for decompression, not really feeding, so I am still trying to figure that all out.  I do open it up and flu**** to determine if the pain I am having is from gas/air build up in the stomach, but it isn't because venting does not help the pain.  I have been home for 2 nights so far, and I drift in and out of sleep for about 2 hours, wake up in searing/burning pain, wait the extra hour until I can take another pill, and then start the cycle all over again...the whole day is like that.  I know that a certain amount of pain is part of healing, but I have never had to take Dilaudid at home, and then to still be in this much pain is scaring me.  I am seeing the bariatric surgeon here at home (Dr. Guske-not my original surgeon, but nice enough to keep track of my labs and care when I am here at home and not at Cleveland Clinic), my appt is at 4pm to go over my labs, but obviously a lot has happened since then.  I will discuss the pain with him, see what he says.  I hope this finds all of you getting answers and feeling better, and if you aren't, then don't give up!!
Thanks,
Jules

Jules RNY 10/30/2007

jbird1972
on 11/21/11 2:42 am - Cary, IL
Topic: RE: Endoscopy to place PEG tube=failure
 Thanks Hala :)
I made it through the surgery, very painful, he was pretty right about how painful it would be. They were able to place the PEG tube and still do it laparoscopically. I'll post a more detailed update today. Thanks again, and I'm sure you are right...every bad experience I have makes me a better healthcare provider to my patients. 
Thanks
Jules

Jules RNY 10/30/2007

vervetoloose
on 11/20/11 10:18 am
Topic: RE: Any thoughts???
Sounds like it is possibly reactive hypoglycemia. Try to check your bloodsugar by doing a finger stick when you are symptomatic. If you don't have a glucometer you can probably purchase one relatively cheap at Walmart. when you are feeling dizzy. fuzzy etc it is possible your blood sugar has dropped into the low range too quickly.
            

" Oh you who love clear edges more than anything...........watch the edges that blurr."
 
bzbabs
on 11/18/11 12:29 am - Chesaning, MI
Topic: RE: Long post, but I found this article very informative
I guess the biggest question I have is whether or not any of these possible complications and surgeon guidelines have changed in the last three years.  I noticed that this article was dated 2008.  Any ideas?
H.A.L.A B.
on 11/17/11 7:49 am
Topic: RE: Endoscopy to place PEG tube=failure
 "I am again pondering what bad deed I did in a previous life, maybe I killed King Tut?... "

Or maybe your current life was designedfor you to learn about pain and docs and procedures? maybe that one is an intro into the next one... when you will be on the other side... helping someone like you... and you will be able to relate?  I do believe some of the docs were real life patients in the past lifes... they can relate... They are great, full of compassion ...

Or maybe that is a test for you -- to see how much your can take? and take, and take...
Many people would turn into total "*****es"... (not saying that you may have moments like that..lol.. but on top of that - there is this remarkable woman, soul, that keeps plugging along...
(HUGS).

Hala. RNY 5/14/2008; Happy At Goal =HAG

"I can eat or do anything I want to - as long as I am willing to deal with the consequences"

"Failure is not falling down, It is not getting up once you fell... So pick yourself up, dust yourself off, and start all over again...."

jbird1972
on 11/15/11 5:19 pm - Cary, IL
Topic: RE: Endoscopy to place PEG tube=failure
 Thank you, I'll take all prayers and good vibes coming my way :)

Jules RNY 10/30/2007

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