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I was just reading all of your updates! I'm so sorry you're still suffering. How are you doing?
I have two sides to my brain - a right side and a left side. The trouble is sometimes there is nothing left in the right side and nothing right in the left side.
Post-Op RNY 6.5 years
HW 252 GW 140 CW 140
on 1/18/12 8:22 am, edited 1/18/12 8:23 am
Yeah... Sounds like more surgery is putting the cart before the horse. I think you have more to check out. Doesn't seem they have ruled everything else out as in "differential diagnoses."
If during any testing, they can't view the entire digestive tract, things may be missed. So, you ask them what would be the best way to look at the entire DT.The DBE I mentioned is a good way. This must be done by an endoscopist with a good amount of experience. I had two performed by an internationally renowned Dr in L.A., Ca.
I was told the bacteria couldn't be swabbed due to other contamination caused by stuff in the bowel. Systemic Tx of SIBO is performed using antibiotics absorbed into the blood v.s. Xifaxin which only works when it mechanically comes in direct contact with bacteria and it's not absorbed systemically into the blood. Since Xifaxin can't get into the blind loop, it can't kill anything there. Good luck.
But.... as far as I know - if the meds will not do the job - you may look into a reversal - or even complete removal of the pouch - the dammaged tissue. People live with that... I knwo some... not WLS related... (it was cancer).
(HUGS)
Hala. RNY 5/14/2008; Happy At Goal =HAG
"I can eat or do anything I want to - as long as I am willing to deal with the consequences"
"Failure is not falling down, It is not getting up once you fell... So pick yourself up, dust yourself off, and start all over again...."
it can be anything. Even the hernia back again. (that happened to me..) I had hernia repair and 2 weeks later the hernia was back. I know that for sure since 10 months later (leaving with pain on and off) I had another surgery and another hernia was found and fixed.
It also can be an ulcer... or you may need some good bacteria .... During surgery - they usually give us antibiotics (to prevent infections) and that will kill the friendly bacteria.
I hope you went to see a doc. If that was ulcer(s) - it can be treated.
Hala. RNY 5/14/2008; Happy At Goal =HAG
"I can eat or do anything I want to - as long as I am willing to deal with the consequences"
"Failure is not falling down, It is not getting up once you fell... So pick yourself up, dust yourself off, and start all over again...."
on 1/16/12 10:36 am
I have SIBO confirmed by a breath test. Xifaxin will only work if it has direct contact with the bacteria. Guess what? It doesn't dawn on some docs that if part of your small bowel is bypassed or if you have a blind loop, Xifaxin will not have any direct contact with the bacteria and it will not help. Give any docs you see a drawing of your WLS and ask them about systemic treatment of SIBO. Yes, this is a side effect of WLS... If you have a scope, ask for a double baloon enteroscopy. This is a looooong scope that may be able to negotiate distorted RNY anatomy.
Sorry to meet you on this board. It would take me an hour to describe my post-op journey of constant illnesses. My doc did try or at least listened to me for 1 year but yr 2 I knew he'd lost interest. I stayed away for a yr because I was disgusted and had so many problems that other docs tried to help me with but none of them saw any link to my RNY either. Finally had ER crises (big open exploratory surgery) and was scoped post-op. Found a "huge" ulcer at the anastomosis. Sent away with PPI Rx and a "we'll re-scope in 3 months". Only that PPI and the next 3 others caused a bizarre mouth syndrome (loss of all taste, painful burning of tongue and roof of mouth, and thin skin that tore easily). The carafate (Rx that coats the GI tract) made getting liquids down much easier but carafate also blocks calories and nutrients. I am wasting away. Any have been since Day 1.
Re-scoped Wed and now ulcer is a bleeding ulcer that has eroded so deep that 2 arteries are exposed. They clamped those and said "let's try PPI # 4 and hope it is the charm".
Opinions - I want to have a feeding tube put in so that 1) the ulcer can rest and heal (maybe) and 2) I can finally get some calories and nutrients.
I'm truly afraid of these docs by now. I know if this goes on, 1) my ulcer will perforate or 2) I'll face a big surgery to remove all of the diseased tissues and so on. And if I don't tolerate PPI's at ulcer prevention levels, why would I do so after that?
What do you think? Anyone?
I appreciate how hard it is to reach out like this. You have my sympathies but you're smart to ask the community. The docs often rush you out the door---jmo. My question to you is are you having extreme constipation with compacted stool? The pressure can tear genital tissues that pave the way for all sorts of infections well beyond the usuals. And yes, the steroid cremes and all the rest might provide temporary relief. Anyway, just a thought. Can't imagine why it came to mind .