Recent Posts
Topic: RE: Pre RNY, Post RNY, Post RNY takedown
can I ask yu a question? I to had many complication but your complication that you talk about sound like severe vitamin deficiencies that people get when they dont' take there vitamins and get proper labs to check to see what you are missing.
Many of your symptoms like iron deficiency, B12 and B1 deficiency, vitamin A deficiency and probably many other. Just want to know the entire story.
People that dont get enough B1 or B12, get nerve damage and vitamin A can lead to vision loss. Anemia causes lots of things which is due to iron, B12 and folate.
Topic: RE: need encouragement
Wow. I'm so sorry that you are going thru this. Do your Drs say once your body recovers and becomes in sink Again you will be able to feel more Normail As to energy etc? You are only 7 weeks out...and had a major complication. I think your recovery will take longer longer then most. I hope you feel better soon. Good luck!
Topic: RE: Severe chronic abdominal pain (X-Post)
Things have changed greatly for me over the past 1+ years. After another CT and Endoscopy with biopsies were negative, as well as were blood tests for Celiac Disease, both the University GI and my Bariatric Surgeon offered no additional options. Eventually the worst of the middle abdominal pain decreased (i think the last ulcer finally healed).
I started to have dropping blood counts and thyroid functions (especially my T3). The University Endocrinologist was only interested in my TSH, which was not significantly low, and did not want to change anything other than minimally increase my Synthroid dose. In April 2011 I started seeing a different Endorpcrinologist, who started me on Cytomel - I am now taking 5 mg twice a day and do have more energy. I also saw a Hematologist who is jus****ching my blood counts as the low WBC, RBC, and platelet counts are not enough to do further invasive work up unless I want a bone marrow.
In November or December of 2010, I started to experience severe abdominal distention to the point that my waist could increase in size by 4 inches or more between morning and evening, associated with pain and some nausea (with rare vomiting). Work with my Acupuncturist was not successful. I also tried Colon Hydrotherapy without benefit, although was told i had excessive amounts of gas! I started wondering if food sensitivities could be playing a role and worked first with a nutritional consultant and more recently an Integrative Medicine physician. IgG testing showed many food sensitivities, some severe, and I started an elimation diet of the foods I am severely or moderately sensitive to (all forms of dairy, eggs, asparagus, brewers yeast, honey, basil, thyme, cilantro, ginger, kiwi among other things) and all other foods to be eaten on a 4 day rotation for at least 6 months. I am 4 months into this - it isn't fun or easy, especially since I was vegetarian and now have to be vegan. I am monitoring my blood counts and protein levels closely. She diagnosed me with Leaky Gut Syndrome, and feels the RNY was the precipitant. Within 2 weeks my waist measurement decreased over 3 inches and i felt better - still not perfect but much improved. She also started me on Nutrametrix vitamins and minerals, thinking I might absorb the isotonic liquids better (I had a LOT of abdominal pain initially with these as they bubble, but can tolerate them now if I wait to take them until after bubbling stops).
I also saw a new GI who had me do a Hydrogen Breath Test, which was positive for Small Intestinal Bacterial Overgrowth, for which I took Cipro for 20 days with much reduction in flatus. I was told I might have to take antibiotics intermittently for a long time as the conditions that lead to the overgrowth might not go away. A capsule endoscopy was negative except for mild redness at the jejunojenjunal junction ( where the last ulcer was).
So, all in all, I am doing better. I saw many health practitioners and even tried alternative therapies ( despite being a physician myself!). I was unwilling just to go the pain management route. I still eat mostly soft,finely chopped foods and a restricted range of foods but it is worth it given the improvements. I still have pitting edema at times and mostly cannot eat at restaurants. My weight is generally stable ( within a 5 pound range) and at my goal over the past year.
I started to have dropping blood counts and thyroid functions (especially my T3). The University Endocrinologist was only interested in my TSH, which was not significantly low, and did not want to change anything other than minimally increase my Synthroid dose. In April 2011 I started seeing a different Endorpcrinologist, who started me on Cytomel - I am now taking 5 mg twice a day and do have more energy. I also saw a Hematologist who is jus****ching my blood counts as the low WBC, RBC, and platelet counts are not enough to do further invasive work up unless I want a bone marrow.
In November or December of 2010, I started to experience severe abdominal distention to the point that my waist could increase in size by 4 inches or more between morning and evening, associated with pain and some nausea (with rare vomiting). Work with my Acupuncturist was not successful. I also tried Colon Hydrotherapy without benefit, although was told i had excessive amounts of gas! I started wondering if food sensitivities could be playing a role and worked first with a nutritional consultant and more recently an Integrative Medicine physician. IgG testing showed many food sensitivities, some severe, and I started an elimation diet of the foods I am severely or moderately sensitive to (all forms of dairy, eggs, asparagus, brewers yeast, honey, basil, thyme, cilantro, ginger, kiwi among other things) and all other foods to be eaten on a 4 day rotation for at least 6 months. I am 4 months into this - it isn't fun or easy, especially since I was vegetarian and now have to be vegan. I am monitoring my blood counts and protein levels closely. She diagnosed me with Leaky Gut Syndrome, and feels the RNY was the precipitant. Within 2 weeks my waist measurement decreased over 3 inches and i felt better - still not perfect but much improved. She also started me on Nutrametrix vitamins and minerals, thinking I might absorb the isotonic liquids better (I had a LOT of abdominal pain initially with these as they bubble, but can tolerate them now if I wait to take them until after bubbling stops).
I also saw a new GI who had me do a Hydrogen Breath Test, which was positive for Small Intestinal Bacterial Overgrowth, for which I took Cipro for 20 days with much reduction in flatus. I was told I might have to take antibiotics intermittently for a long time as the conditions that lead to the overgrowth might not go away. A capsule endoscopy was negative except for mild redness at the jejunojenjunal junction ( where the last ulcer was).
So, all in all, I am doing better. I saw many health practitioners and even tried alternative therapies ( despite being a physician myself!). I was unwilling just to go the pain management route. I still eat mostly soft,finely chopped foods and a restricted range of foods but it is worth it given the improvements. I still have pitting edema at times and mostly cannot eat at restaurants. My weight is generally stable ( within a 5 pound range) and at my goal over the past year.
Highest Weight 277; Surgery Weight 237, Goal Weight 128;
Lost 40 pounds before surgery
Lost 40 pounds before surgery
scho5
on 1/29/12 4:09 am - WI
on 1/29/12 4:09 am - WI
Topic: RE: Severe chronic abdominal pain (X-Post)
HOW are you doing? I would really like to know. I am having similar problems. Take Care
scho5
on 1/29/12 4:08 am - WI
on 1/29/12 4:08 am - WI
Topic: RE: Severe chronic abdominal pain (X-Post)
I would like to hear how you are doing. I have similar problems. Take Care
scho5
on 1/29/12 4:07 am - WI
on 1/29/12 4:07 am - WI
Topic: RE: Severe chronic abdominal pain (X-Post)
Would like to hear how you are doing. I have had similar problems. Thanks
Topic: RE: Reactive Hypoglycemia
reactive hypoglycemia is one of the MANY long term side effects of wls. I hope your medication helps and that no more problems arise
grace
grace
Topic: Pre RNY, Post RNY, Post RNY takedown
if after reading this you have ANY questions or just want support, PLEASE do not hesitate to pm me. No one should suffer alone.
Before WLS Before my wls I was active. I ran a full licensed home childcare AND worked a full time job at night. I worked out regularly. I was a mother to a preschooler and a junior high student. I went Jeepin and hiking (even hiked up the back of Half Dome in Yosemite) with my two German Shepherds, two dogs that for the most part I trained from little 8 week old puppies. I bungee jumped and hang glided. When I didn’t work two jobs I went to college full time, worked as a phlebotomist full time, was an active Girl Scout leader for a troop of 12 and a co leader for another troop. My girls were on the Food Network and appeared on the local news twice. Before my wls I read all different kinds of books. I LOVED reading. Before my wls I took two prescription drugs regularly and I thought that was a lot. Before my wls whenever I had the chance I loved to snorkel, kayak and white water rafting. I scrapbooked and crocheted. I loved playing games on my computer and even built a computer of my own. After WLS I was tired all the time. I was dizzy ALL THE TIME. Just cooking a quick dinner for my children was painful and wore me out for the rest of the day. I vomited at the very least daily. Despite a myriad of tests saying I was fine I was far from it. I had peripheral neuropathy (thought it was carpal tunnel and even had surgery for it) that made being on the computer, scrap booking, crocheting and anything else having to do with my hands painful. I developed Thoracic Outlet Syndrome. My feet were always ice cold. I had a mental fog that was so bad sometimes my own family couldn’t understand what I was saying and I couldn’t remember a thing. I had painful feet, mainly my sole, that no medication could help. I had the beginnings of epilepsy and reactive hypoglycemia. I had joint pain that I NEVER had post wls. I couldn’t read because I couldn’t understand what I was reading and when after reading the same page 3 or 4 times I understood it but couldn’t remember what I read the next day. After my Takedown I stopped getting worse. I got more energy. My dizziness went away. The symptoms of hypoglycemia were gone. My knee pain got significantly better. The pain in my feet disappeared completely. My feet are still ice cold and even in the midst of summer I have to wear socks and winter slippers inside or socks and shoes outside. I miss my Berkenstocks. I stopped vomiting. My PN in my hands got better but still keeps me from working, scrapbooking , crocheting or even posting here as much as I would like. I am now able to read but I do have to create a cheat sheet to remind myself who the characters are and how they relate to the storyline. I still cannot read at the academic level I used to read. I still have persistent memory problems, which often frustrates both my family and myself. I am no longer on two prescription medications but about 8 or 9 because of the lingering effects and pain from 3.5 years of suffering with my RNY. I can walk, however it takes me an hour and 15 minutes to walk a simple mile. I dream of getting back on that elliptical machine againJ. I dream of kayaking again and maybe one day getting my divers license. Now that I have my takedown I can, at the very least, hope and dream of getting even better, getting off these God forsake pain pills. And maybe, one day, even hike up to Pikes Peak, a mountain I see daily here in Colorado. Grace
Before WLS Before my wls I was active. I ran a full licensed home childcare AND worked a full time job at night. I worked out regularly. I was a mother to a preschooler and a junior high student. I went Jeepin and hiking (even hiked up the back of Half Dome in Yosemite) with my two German Shepherds, two dogs that for the most part I trained from little 8 week old puppies. I bungee jumped and hang glided. When I didn’t work two jobs I went to college full time, worked as a phlebotomist full time, was an active Girl Scout leader for a troop of 12 and a co leader for another troop. My girls were on the Food Network and appeared on the local news twice. Before my wls I read all different kinds of books. I LOVED reading. Before my wls I took two prescription drugs regularly and I thought that was a lot. Before my wls whenever I had the chance I loved to snorkel, kayak and white water rafting. I scrapbooked and crocheted. I loved playing games on my computer and even built a computer of my own. After WLS I was tired all the time. I was dizzy ALL THE TIME. Just cooking a quick dinner for my children was painful and wore me out for the rest of the day. I vomited at the very least daily. Despite a myriad of tests saying I was fine I was far from it. I had peripheral neuropathy (thought it was carpal tunnel and even had surgery for it) that made being on the computer, scrap booking, crocheting and anything else having to do with my hands painful. I developed Thoracic Outlet Syndrome. My feet were always ice cold. I had a mental fog that was so bad sometimes my own family couldn’t understand what I was saying and I couldn’t remember a thing. I had painful feet, mainly my sole, that no medication could help. I had the beginnings of epilepsy and reactive hypoglycemia. I had joint pain that I NEVER had post wls. I couldn’t read because I couldn’t understand what I was reading and when after reading the same page 3 or 4 times I understood it but couldn’t remember what I read the next day. After my Takedown I stopped getting worse. I got more energy. My dizziness went away. The symptoms of hypoglycemia were gone. My knee pain got significantly better. The pain in my feet disappeared completely. My feet are still ice cold and even in the midst of summer I have to wear socks and winter slippers inside or socks and shoes outside. I miss my Berkenstocks. I stopped vomiting. My PN in my hands got better but still keeps me from working, scrapbooking , crocheting or even posting here as much as I would like. I am now able to read but I do have to create a cheat sheet to remind myself who the characters are and how they relate to the storyline. I still cannot read at the academic level I used to read. I still have persistent memory problems, which often frustrates both my family and myself. I am no longer on two prescription medications but about 8 or 9 because of the lingering effects and pain from 3.5 years of suffering with my RNY. I can walk, however it takes me an hour and 15 minutes to walk a simple mile. I dream of getting back on that elliptical machine againJ. I dream of kayaking again and maybe one day getting my divers license. Now that I have my takedown I can, at the very least, hope and dream of getting even better, getting off these God forsake pain pills. And maybe, one day, even hike up to Pikes Peak, a mountain I see daily here in Colorado. Grace
Topic: RE: need encouragement
Are you trying to eat? Or are you drinking protein shakes? There are a ton of shakes made for bodybuilders that have a lot of calories in them as well as protein. They might be good if you need to get you calories up.
Highest weight 265/ Surgery weight 256/ Goal weight 160
Topic: need encouragement
I had my "sleeve " surgery 7 weeks ago. I had a bleed and several blood transfusions. Came home but have been completely exhausted. been back to see the surgeons 4 times . ended up in emergency , who said I had a combination of problems, the trauma of the surgery, the bleed and , now low calories . Told me to go back to the surgeon, Was found to have an iron count of "8" and have been on ferrous sulphate for 12 days. Went back to hospital last week. Had lots of blood testd done and was asked to have an upper gi endoscopy ( to be done in theatre using propofol as an aneasthetic). Had it done and they took biopsies. Dietitian said I had to somehow get my calories up to 1200. I feel completely wiped out with it all. I sooo wish I hadnt had it done. I cant eat red meat , can only have a few teaspoons at any given meal and feel completely despondent as to how Im going to live my life like this. I'm dizzy all the time ( I even lay on the floor today as I knew that if i did that before fainting , at least I couldnt hurt myself falling ! ) Can anyone whose had complications and gone through the "hating the sleeve" process offer me any words of wisdom or encouragement . please ? will I get used to just eating 5 teaspoons full ? I feel so low....
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