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lauxman4
on 3/14/12 11:53 am
Topic: RE: reverse gastric bypass
I Had my RNY bypass in March 9th 2011,was sick  and in alot of pain from the get go. In April I had a endoscopy done to check for blockage and leaks. Dr. Hachem said all looked good. later that day I was admitted into another hospital for dehydration. In May had another surgery to find out My liver was infused bad with adheasions Dr put in a Gtube for extra nutriction. Had it taken out in Sept, felt pretty good for about a month and it all started all over again. Had 2 more surgeries 2 weeks apart in Nov.and G tube put back in with constant around the clock feeding. It was a big mess. I couldnt take no more. Dr Hachem suggected 2 options to reroute the byass or reversal. i choose the reversal  My insurance approved it and in Jan 2012 I had it done. My starting weight before the bypass was 227. in 9 months my weight dropped down to 115. I look sick. It has been 8 weeks since I had my reversal. I am still sick cant eat much at all ( but am able to take in fluids) when I do eat I either start vomitting or it all runs right thru me. My big thing is now people are so worried about regaining weight back after reversal but here I am still loosing. I am down to 110 at 8 weeks post op and dont know what else to do. I do know I am sick of being in the hospital.If you have any questions on the reversal feel free to email me at [email protected] but  make sure you question about bypass reversal cause i think some thing are viruses. Dr Hachem in Kansas is a awesome Dr and he never once hesitated to sit and listen to me and did all he could and still does to make me comfortable.
CherylR
on 3/14/12 11:45 am - Blue Springs, MO
Topic: looking for information regarding revision vs selective vagotomy
I have a non-healing anastomotic ulcer three and one half years after proximal RNY. With that exception I have been very lucky with no complications. I do have an extrodinarily large pouch that I have been complaining about since about 3 months out.
This ulcer has caused enough pain that I have been to the ER twice in the past three months. It has not bled that we are aware of. I have had three EGDs and have tried 3 different medications. My surgeon keeps a close eye on me and he practices at a center of excellence. He is starting to talk about exploring a surgical fix.
He is discussing two options.
Option number one is a selective vagotomy done with video assisted thoroscopy. It is done by a cardiothoracic surgeon who I actually work with. It has the shortest hospital stay and the shortest time off work.
Option number two is a revision of my RNY. He said that basically he would resect the pouch making it smaller and redo the anastomosis. There is some indication that marginal and anastomotic ulcers are more common with the larger pouches. This option might correct the huge pouch and hunger issues as well as the ulcer. It requires longer off of work and hospitalization. The surgeon says that about 50% of the time he ends up having to open instead of lap due to adhesions.
What can anyone tell me about the advantages and disadvantages of these two options? What potential complications and side effects can either of them give me? I want to go into this as educated as possible. I have tried reading medical journals but want to hear from survivors and people in the trenches.
Cheryl
Life begins at the end of your comfort zone.
SW--235  Low Weight--145  Goal Weight135
Regain of 20 pounds--Getting Back on track

CherylR
on 3/14/12 11:25 am - Blue Springs, MO
Topic: RE: Bleeding Ulcer 3 + Yrs Out
I too have a anastomotic ulcer, sometimes called a marginal ulcer. They are talking about doing a revision on me. I actually absorb food quite well three years post op but I am tired of the pain from the ulcer. It isn't bleeding. Just wondering how you are doing?
Cheryl
Life begins at the end of your comfort zone.
SW--235  Low Weight--145  Goal Weight135
Regain of 20 pounds--Getting Back on track

Julissita
on 3/14/12 8:49 am - houston, TX
Topic: RE: FYI PETERSEN'S HERNIA
 I too had surgery this past Wednesday for a Petersens hernia, where they found a small bowel obstruction due to adhesions!! I also wish more people had talkwe dabout thsipossible complication! I would get these horrible stomach cramps/spasms and had no clue!!! glad I decided to check it out!!
Thanks for sharing,
Julissita
on 3/14/12 8:43 am - houston, TX
Topic: RE: hand spasms
 I get this if I eat too much sugar. SOmetimes in my feet, hands, jaw. It is weird, painful and drinking tons of water and eliminiating sugar helps tons!!

Julissita
on 3/14/12 8:40 am - houston, TX
Topic: RE: Stomach pain after hernia repair?
 Your story sounds like mine. Same thing I just had it done last Wednesday. I too am having  a hard time eating solid foods. I have been eating Jello w protein, pudding w protien, protein shakes, etc. I go to drink a redimix shake and can only do 1/4 at a time. I think its our instentines being resituated and we have to get it all working again. I am going to see the Dr on saturday and will ask what he recommends. I have one port that is KILLINg me when i get up- on my right side next to my bely button. I had RNY 3 yrs ago.I can hear the food and liquid move in my stomach- it is weird.
Julissita
on 3/14/12 8:29 am - houston, TX
Topic: RE: 10yrs post op and abdominal pinching
 I had like a major cramp in my side, and if I vomitted it was horrible! I had a petersens hernia and last wednesday he went to repair it. WHilr in there he said I was FULL of adhensions and had to take much time to clear all that out, then he found a partial bowel obstruction due to this scar tissue. I ended up staying a day longer in the hospital and was in SHOCK! I really just thought it was a hernia and would wait to get it repaired on my time, but then it just became annoying. Go get it checked out. Dont worry and be proactive!

rbb825
on 3/13/12 2:35 pm - Suffern, NY
Topic: RE: I'm still here...
I have a question - do you still have your gallbladder or was it removed?  I ask this for a few reasons and possible reasons.  You describe terrible pain and nausea which are symptoms of gallbadder disease which would be obvious for someone with a gallbladder.  It is possible to get gallstones after you have your gallbladder out and sometimes you had tiny ones in the ducts when you had the gallbladder out but they were tiny so they didnt' mean anything.  If gallstones get lodged in the ducts, they cause alot of pain and nausea - can cause pancreatitis.

The other thing I read about recently is people that have had there gallbladder out - most times the liver takes over the function within a few weeks and you can digest fats and no problems.  But in some and especially those that have gastric bypass, digesting fats are really dificult and you can get an accumulation of bile in your stomach and/intestines with no where to go and it can cause pain/nausea or severe diarhea called bile salts diarhea. - I see you dont have diarhea but I am sure there are other similar possibilities. 

I have also heard of people getting Sphincter of Oddi Dysfuction which can cause a lot of pain, nausea.  Normally the SOD would be diagnosed with an ERCP but we can't have this so you would need an MRCP - an MRI version.

I know this is all pretty far fetched but thought I would put it out there for you.

I wish you the best/

 

jbird1972
on 3/12/12 11:39 pm - Cary, IL
Topic: RE: I'm still here...
 Thank you so much for your info & support, I'm sorry that you are struggling as well. The tube isn't clogged (but I'll keep that ginger ale in mind!), it was put in as a way for me to vent/decompress my stomach in hopes of easing the pain and nausea. I can't use it as intended because food is taking the path of least resistance out of the tube (which probably says a lot about what kind of physical block is happening downstream), so when I go to vent the tube, a little of the flush drips out but then food/drink starts making its way out but not all the way due to the consistency, so instead of getting relief I end up having to push all that stuff back into my system to keep the tube clear. In the morning it is just a steady stream of bile (sorry, gross), I could stand there for 10 minutes. 
Thank you for the tip on smart pill. I haven't seen it yet, and I'm a terrible pill swallower to begin with, but since my reversal(s) my anatomy is pretty normal at the moment, but you're right, I'm sure there are still pockets of narrow areas. Dr. Kroh is going to do the CT Enterography first, probably to evaluate some of that. 
I have nothing against meds, it's just the way they make me feel, the constipation, and I think when I lowered my dose I was convincing myself that I was getting better. 

Thank you again. If you're not already on my friend list, I'd like to add you. Please keep me updated on how you are doing, and you'll be in my thoughts & prayers!




Jules RNY 10/30/2007

rbb825
on 3/12/12 5:20 pm - Suffern, NY
Topic: RE: I'm still here...
I am sorry you are going through all this and I hope you get some answers.  I have one stupid question - is it possible that the G tube is clogged?  I had a G tube for a while and it wasn't working - at one point it got clogged and at another point, it actually fell out.  When it got clogged and nothing would go through, I ended up in the ER and they put some gingerale in the tube and the bubbles broke the clog after about 5 minutes and they told me to have it in the house all the time in case it happened again.  Just a thought.

as far as the pill test - be careful - I asked my gastro doctor and he said he wont do it on me because he said when we swallow it  = there is a possibilty that it will not go  through our small intestines fully, it may go to the bypassed part and get stuck and then surgery would be needed.  He also said it is a large pill and there is a possibility that it could get stuck at any of the connections also requiring surgery, so he felt it was way too dangerous for us.

I am interested in that special CT you mentioned and I am going to do some research on it.  I have had alot of complications and my digestive tract hasnt' been the same since having my illiostomy reversed.

as far as the fentanyl patch - why are you afraid of it?  If you need it there is no danger to use it long term, that is what it is used for - it says right on the package,not for acute pain, only for chronic pain. I have been on it for about or more years and can't live without it.  Since my abdominal surgeries, I wear the fentanyl patch and use either percocet or dilaudid for breakthrough pain.  I am finally doing better the past few weeks but I used to take the dilaudid every 3 -4 hours with the patch.  there are pain meds out there that can help us - dilaudid is a tiny little pill - the size of a dot.  Even when I couldn't swallow pills, that one I could it is so tiny.
I wish you the best and hope they can fix you

 

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