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Topic: RE: Update after gastrectomy at Cleveland Clinic
Hi Jules. Newbie on here, and primarily a lurker, but have read your story recently, and have been checking for your update. I am glad to hear that you are overcoming this hurdle. Please do know that prayers are being offered on your behalf. J.
Topic: RE: Update after gastrectomy at Cleveland Clinic
HUGS.. I was worried I have not see you posted. Glad you are OK>
as for hydration -
I know that it may be drastic - but have you tried pure water high enema t see if you can ge****er through the colon?
Google that.
I use holding enema and cleansing enemas but I also notice that my body will absorb some water what you do that. It will clean your colon, but also the colon is disigned to absorb water.
I use distilled or purified water. You also can add minerals to the water. (little bit of salt - not much) to try to match the body (1/2 tsp for 1 galon of water)
Just an idea ...
"Enemas have been used for rehydration therapy (proctoclysis) in patients for whom intravenous therapy is not applicable.[1]"
http://www.jpsmjournal.com/article/S0885-3924(97)00367-9/abs tract
as for hydration -
I know that it may be drastic - but have you tried pure water high enema t see if you can ge****er through the colon?
Google that.
I use holding enema and cleansing enemas but I also notice that my body will absorb some water what you do that. It will clean your colon, but also the colon is disigned to absorb water.
I use distilled or purified water. You also can add minerals to the water. (little bit of salt - not much) to try to match the body (1/2 tsp for 1 galon of water)
Just an idea ...
"Enemas have been used for rehydration therapy (proctoclysis) in patients for whom intravenous therapy is not applicable.[1]"
http://www.jpsmjournal.com/article/S0885-3924(97)00367-9/abs tract
Hala. RNY 5/14/2008; Happy At Goal =HAG
"I can eat or do anything I want to - as long as I am willing to deal with the consequences"
"Failure is not falling down, It is not getting up once you fell... So pick yourself up, dust yourself off, and start all over again...."
Topic: RE: Ulcers along suture line of VSG 4 years post op
Have you contacted your primary or your surgeon at all? That's the first step. The symptoms could be anything. I was having difficulty eating, pain, and nausea. I was also having narrowing at the anastomosis, which resulted in a collection of food turning into a bezoar (calcified food bolus that was blocking the outlet to get rid of food). The flu symptoms could be unrelated. Please see your doctor to get it sorted out. Good luck!
Jules
Jules
Jules RNY 10/30/2007
Topic: RE: Ulcers along suture line of VSG 4 years post op
i am having problems, and i am wonderin if it is ulcers. what were your symptoms, if you dont mind me asking? i am two and half years out, and so nauseous it is interfering with my life. also pain, constant fever flu like feeling. this has been going on about a year, so i know it not a virus or not a normal one atleast lol
Belive in God like you belive in the sunrise. Not because you can see it, but because you can see all it touches. - C.S. Lewis
I WILL DO THIS!!!
I WILL DO THIS!!!
Topic: RE: TPN-feeding tube-complete revision...?
Hello,
I wrote back to you. I had a bowel obstruction last year which resulted in the loss of 90% of my small bowel. I was on TPN for 8 months and I'm doing better now. I can eat and nothing bothers me other than having to go to the bathroom often if I drink a lot of liquids.
Gus
I wrote back to you. I had a bowel obstruction last year which resulted in the loss of 90% of my small bowel. I was on TPN for 8 months and I'm doing better now. I can eat and nothing bothers me other than having to go to the bathroom often if I drink a lot of liquids.
Gus
Topic: Update after gastrectomy at Cleveland Clinic
I had the complete gastrectomy with Roux limb reconstruction and J-tube placement on July 6th at Cleveland Clinic with Dr. Kroh. It was a butt-kicker, but I knew it would be. The surgery went fine, and I'm sure Dr. Kroh has seen a lot of weird stomachs, but he said mine was very bizarre...spongy and lumpy, kind of like a muscle that has atrophied from lack of use. I spent 12 days in the hospital. I needed 2 units of blood after surgery, by blood count had dropped below 8. I was also experiencing tachycardia (high heart rate), at rest my rate was about 125, and if I got up at all it would jump to the 150's. I think in the end they chalked it up to surgery stress, loss of blood, and pain. Pain, that's one I could do without...it's been 3 weeks and I'm still in so much pain. I also had some atelactesis while in the hospital (collapsing of the alveoli in the lungs due to not being able to take a deep breath). I have a huge incision from right under the breast line that goes beyond the belly button. I still have my staples, getting them out on Monday. I had 2 drains which they removed right before I left the hospital, there was one that was super long because it went all the way around and behind the liver, and I believed it when they took it out, yowsa!! I was on full J-tube feedings when I was in the hospital, but it's better to eat through your mouth than a tube so they sent me home without them to see how I could do on my own. I haven't done too well, I can only eat or drink so much, it's very tight in there with esophagus straight to small intestine, no real pouch. I went to my local ER for dehydration on Thursday, got 3 bags of fluid (needed 2 before I could even pee), also had ketones and protein in the urine (a sign that your body is using its own reserves to live). They only let me go home because they had gotten a hold of a resident at Cleveland clinic that agreed they would talk to Dr. Kroh the next morning and get the home health tube feedings reinstated, unfortunately that never happened. Dr. Kroh was in surgery all day, I'm still trying to sip what I can and take small bites of pudding/yogurt/anything that will stay down, but I feel like I'm back in the dehydrated gutter I was in on thursday, muscles don't work and twitch, and very little sleep. I'm trying not to look at now, I am looking to the future and having faith that this will help. I saw a chef on TV the other day and he had his whole stomach and 95% of esophagus removed due to cancer about 5 years ago and other than being a little thin, he was eating and really doing well. It gave me hope to see that, a lot really. It's hard to come across people like us, and that's why I feel like this blog and website are important...I don't want anyone to feel alone, we never are, there's always someone out there that can empathize and you just never know who you may help. Again, I have to thank all my family and friends who keep pushing me to the next step. This is a really difficult hurdle for me, and that's why it has been a bit since I updated. I hope this finds you all feeling better and at least on the right path to wellness. Hugs, Jules
Jules RNY 10/30/2007
Topic: RE: Dilated Stoma - Severe GERD
Hi Divine,
I have the same issue. I had RNY first and while the worlld felt it was successful, I did not. Most of the weight loss came from the pre-op liquids and exercise. I only lost about 40lbs after RNY, but I looked like I had lost an entire person. Now, I'm having a revision (reduceing the size of the pouch and the stoma) due to the stretched pouch and large stoma. Hopefully it will jump start something and I can reach my goal weight or beyond.
I have the same issue. I had RNY first and while the worlld felt it was successful, I did not. Most of the weight loss came from the pre-op liquids and exercise. I only lost about 40lbs after RNY, but I looked like I had lost an entire person. Now, I'm having a revision (reduceing the size of the pouch and the stoma) due to the stretched pouch and large stoma. Hopefully it will jump start something and I can reach my goal weight or beyond.
Topic: RE: My surgery at Cleveland Clinic is on Friday, getting nervous
Can't wait to find out how you are doing! I hope all is well with you and your family.
Blessings!
Blessings!
Topic: still no answer.
Back from Saranac Lake and Dr. Hill's office. have to be on this feeding tube for at least 6 more weeks:( This really sucks! He still can't figure out what is going on and he's been to every advanced conference in the country and is actively still searching for an answer. I know he's not giving up and I know he's really trying to figure this out..... but it is still discouraging to have so much stomach pain and literally not able to get anything down let alone keep it down. I've ner had the dry heaves and vomiting so much in my whole life . I am living on baby food and tube feedings. Not sure what quailty of life this is, but I guess it is what it is. Has anyone ever heard of a mesinteric hernia and if you have had one, could you share your symptoms? Thanks!
Patti Surgery date June 2,2011
BW -242 SW-219 CW-204 Goal - 120
BW -242 SW-219 CW-204 Goal - 120
Topic: RE: Insulinoma/hypoglycemia???
A fellow roux en y friend of mine suffered with this. She finally went to an endocrinologist who treated her with Metformin, a diabetic drug.The low sugar near passing out episodes stopped immediately. The endo told her they are seeing this in roux en y patients 1.5 years or more out. She explained it that over time we can eat more and our body gets used to the food. With thebypass portion by the time our pancreas (which shoots out insulin in response to food) realized we have had food the food is already gone into the small intestine. It shoots out insulin too late for the food intake so your blood sugar drops and there is no food there to cover it. The metformin keeps the blood sugar stable and prevents the spikes and lows. Just a thought that might help you. Her endo told her surgery on the pancreas is only a last resort
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