Recent Posts
Topic: RE: Update after gastrectomy at Cleveland Clinic
So glad you are marching on! wonderful to hear your great attitude again.
Be well...
Be well...
Topic: RE: Sleeve Leak w/stents
I had a very serious leak and required 4 stents. They were in for about 6 weeks. I also had to have a feeding tube and 3 drains. During that time I was on TPN and then tube feeds only. I couldn't have anything by mouth not even water. I was very uncomfortable. Unfortunately for me the pain from the stents only got worse as time went on. When they were finally removed it was such a relief. I could finally sleep again. It was a very difficult time for me but I kept remembering what I read on this forum from several of the vets...the leak WILL heal. It will take time. You will be okay. Hang in there!
Topic: RE: My friend died 9 yrs after RNY, DS and Reversal
Hello,
I had LAP RNY in October of 2008. I lost 100 lbs. I never reached goal. I maintained for about 2 years. I gained back about 1/2 the weight loss now. I am 44 y.o. I am contemplating revision to DS. My two young daughters (10 and 6) are BEGGING ME NOT TO CONSIDER SURGERY AGAIN because I nearly died the first time around. I had a "white light" moment. I swore that I would never again in life contemplate ANY elective surgery again EVER!!!! I felt that unless you would rather be DEAD than FAT not to consider this option and certainly not if you are a parent. I am the only caretaker to my young girls and they are my life. Thank you for sharing about your friend. I wouldn't want my girls to be typing what you have typed here someday.
This is all just so sad, that I am so depressed about what has happened and that I am still holding onto the dream that this surgery can be for me the crown jewel it has been for so many that have gone before me. I feel that I have already altered my insides so what difference would it make to do so again? I also feel that since I already screwed around with my insides I may as well achieve the desired result and try again. Way back then I had contemplated DS but my surgeon didn't perform that surgery so I went with what most others called the gold standard.
If I dare to have revision surgery there is no one in my entire life that will support me because like I said, I was at death's door. They are all traumatized that I almost died. I had to be rushed back for a second emergency surgery within 24 hours of the first surgery that had been deemed a "success.". No one even realized that I was internally bleeding until it was nearly too late. I remember feeling like I was almost dead and taking my last breath and how scared I felt that I was going to die without anyone with me that I knew or loved as the drs were running me on the gurney back to the OR. I had such severe PTSD that I cried every day for 30 days straight after the second surgery. The insanity of it is that now, years later, with the memories and trauma suppressed, I am so unhappy with my body again that I want to try to make it work this time. I read so many happy stories. I want my happy ending too.
I am so confused...
If anyone else had similar confusion and wants to share their story (good or bad) I would appreciate it.
Hug,
Anna
I had LAP RNY in October of 2008. I lost 100 lbs. I never reached goal. I maintained for about 2 years. I gained back about 1/2 the weight loss now. I am 44 y.o. I am contemplating revision to DS. My two young daughters (10 and 6) are BEGGING ME NOT TO CONSIDER SURGERY AGAIN because I nearly died the first time around. I had a "white light" moment. I swore that I would never again in life contemplate ANY elective surgery again EVER!!!! I felt that unless you would rather be DEAD than FAT not to consider this option and certainly not if you are a parent. I am the only caretaker to my young girls and they are my life. Thank you for sharing about your friend. I wouldn't want my girls to be typing what you have typed here someday.
This is all just so sad, that I am so depressed about what has happened and that I am still holding onto the dream that this surgery can be for me the crown jewel it has been for so many that have gone before me. I feel that I have already altered my insides so what difference would it make to do so again? I also feel that since I already screwed around with my insides I may as well achieve the desired result and try again. Way back then I had contemplated DS but my surgeon didn't perform that surgery so I went with what most others called the gold standard.
If I dare to have revision surgery there is no one in my entire life that will support me because like I said, I was at death's door. They are all traumatized that I almost died. I had to be rushed back for a second emergency surgery within 24 hours of the first surgery that had been deemed a "success.". No one even realized that I was internally bleeding until it was nearly too late. I remember feeling like I was almost dead and taking my last breath and how scared I felt that I was going to die without anyone with me that I knew or loved as the drs were running me on the gurney back to the OR. I had such severe PTSD that I cried every day for 30 days straight after the second surgery. The insanity of it is that now, years later, with the memories and trauma suppressed, I am so unhappy with my body again that I want to try to make it work this time. I read so many happy stories. I want my happy ending too.
I am so confused...
If anyone else had similar confusion and wants to share their story (good or bad) I would appreciate it.Hug,
Anna
Topic: Sleeve Leak w/stents
Hi there. Does anyone here have experience with a leaky sleeve and stent placement? I'm about 2 weeks in to having this stent after my leak (caught 4 weeks post op) and I'm miserable! I am supposed to keep the stent in for 6 weeks, but I can't imagine another month of this! It feels like someone is stepping on my chest 24 hrs a day (which is what the GI doc told me to expect) and I don't sleep much at night.
Anyone else have this? How was your leak fixed? Did it work? Did it leak again? Any insight would be appreciated. Thanks in advance!
Anyone else have this? How was your leak fixed? Did it work? Did it leak again? Any insight would be appreciated. Thanks in advance!
HW (May 20, 2012) 310 SW (June 27, 2012) 302 GW 175
M1=29lbs M2=29lbs M3=5lbs M4=4lbs M5=11lbs M6=10lbs
LEAKY SLEEVE DISCOVERED - July 25, 2012.
Topic: RE: 1 month post-op today with Dr. Kroh
I am so glad to finally read some updates from you. I do wish you were feeling better and stronger by now though. You NEED those tube feedings! You need those calories and protein in order to heal and regain your strength. I don't understand how your insurance could deny this. I hope your doctor can resolve this for you. Your Dory tattoo sounds really cool! Take care.
Topic: 1 month post-op today with Dr. Kroh
So, 22 pounds down in 1 month, great if you're dieting, not good if you're me. Dr. Kroh was a bit shocked when he saw me, used the dreaded words emaciated, gaunt, and sunken to describe my eyes (he knows how to smooth talk the ladies). I admit that I have been bashing my docs for not getting this overnight tube feeding going, but I found out today that my ******* insurance company denied tube feedings...DENIED! In their opinion I don't need them. Dr. Kroh looked like his head was going to blow off when he saw that. I still wish someone had told me that it was an insurance denial, nothing more dangerous than Jules with too much free time, a phone, and a cause. My Aunt Babe and my dad taught me how to squeak a long time ago. So, Dr. Kroh is going toe to toe with the insurance company doctor to get approval. My blood pressure was way down, 90/50. Ryan, Dr. Kroh's PA, just called me. He's trying to get me in to see their nutritionist tomorrow. I hope this doesn't delay getting home. I felt a bit better when Dr. Kroh agreed that I was eating/drinking what I physically could for this stage after surgery, each patient is different. He was impressed with the few bites of meat/cheese/sour cream that I had from a soft taco...all protein! This is probably TMI/overshare, but it's been awhile since I have actually vomited, and certainly not since surgery. Right before Ryan called I had a scary bout, I took pain med (I had some soup & apple juice on board to coat the path), and immediately started having the tell-tale mouth watering and nausea :( I was pacing between the bathroom and where our beds are begging to the regurgitation department to please cancel the order, it eventually subsided, but the thought of vomiting after this surgery freaked me out. Ryan had called right after and of course offered up their ER if it happened again (hell no please!). So, we wait & see what time we see the nutritionist tomorrow.
On an upside, Dr. Kroh finally noticed my Dory (just keep swimming) tattoo. He said it was a perfect tattoo & sentiment for my situation.
I think that's enough for one day
Toni has been a trooper & a helper.
Jules RNY 10/30/2007
Topic: RE: still no answer.
Patti,
I hope that things are getting better and that you are getting some answers. I know how difficult this is and how complicated it can get so I just wanted to reach out and give you some support.
Feel better and find answers soon! -Jules
I hope that things are getting better and that you are getting some answers. I know how difficult this is and how complicated it can get so I just wanted to reach out and give you some support.
Feel better and find answers soon! -Jules
Jules RNY 10/30/2007
Topic: RE: Update after gastrectomy at Cleveland Clinic
When I have diarrhea - I do somethingthe enema - clean - v. light sal****er- to wash the irritatig stuff out and get some water in.
Not sure if yu get taht - but somethime when i get runs - the stuff is burning irritation inside and even though I may be done - still feel cramping.
doing fleet enema - with chemical and stuff - or even too much salt will pull water out of your system and makes you even more dehydrated. So it is a very fine line.
To rehydrate my system and wa**** out (when I get stomach bug) I do pure warm water. Nothing added. At the same time I drink salty water (water with minerals added like salt and some mineral mix, or my greens - if I can handle them... )
Good luck Jules.
Not sure if yu get taht - but somethime when i get runs - the stuff is burning irritation inside and even though I may be done - still feel cramping.
doing fleet enema - with chemical and stuff - or even too much salt will pull water out of your system and makes you even more dehydrated. So it is a very fine line.
To rehydrate my system and wa**** out (when I get stomach bug) I do pure warm water. Nothing added. At the same time I drink salty water (water with minerals added like salt and some mineral mix, or my greens - if I can handle them... )
Good luck Jules.
Hala. RNY 5/14/2008; Happy At Goal =HAG
"I can eat or do anything I want to - as long as I am willing to deal with the consequences"
"Failure is not falling down, It is not getting up once you fell... So pick yourself up, dust yourself off, and start all over again...."
Topic: RE: Update after gastrectomy at Cleveland Clinic
Thanks SevenCats! I need all the prayers I can get :)
Jules
Jules
Jules RNY 10/30/2007
Topic: RE: Update after gastrectomy at Cleveland Clinic
Thanks H.B. It's probably a very sound idea, I'm going to ask my surgeon about it monday when I see him. I'm having a lot of diarrhea and I'm a bit worried it may cause that to continue, not sure, so I'll check it out. Thank you & hugs :)
Jules
Jules
Jules RNY 10/30/2007
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